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Needle Aponevrotomy experiences
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07/21/2002 23:46
Pierre Pouliot

not registered

07/21/2002 23:46
Pierre Pouliot

not registered

Just back from Paris after aponevrotomy

On July 15th 2002 I had a aponevrotomy performed by Dr. Lermusiaux. Little finger of right hand at stage 3 on Tubiana,s scale (110 degrees). In 20 minutes a 15 year anomaly came to an end. Today the finger is 7 degrees short of being straight again. With some exercise it will recover its normal position says Dr. Lermusiaux. Cost: 60 Euros? (about $90.00 canadian Dollars).
I am amazed that North American surgeons ignore such a painless and ultra simple technique!
Good news for Canadians and Americans close to the border:I talked to Dr. Helena Spacek at Notre-Dame Hospital in Montreal. She has obtained approval of payment for aponevrotomy from the Québec Health Insurance system. However, so far the medical establishmnet, i.e. the plastic surgeons who have, so it seems, a monopoly on this intervention, refuse to relinquish their trade. Dr. Spacek thinks that she will have overcome their objections in the early part of fall this year. Dr. Lermusiaux told me that she is very skillfull at performing the needle aponevrotomy. To reache her office call 514 340-2770 or Notre Dame Hospital in Montreal: 514 350-5136.
Many thanks to Tom Towle of Miami and others who have shared their experience and helped so many of us. It is because of you Tom, that I went to Paris and contacted Dr. Helena Spacek in Montreal. I am very grateful.
Sincerely yours,
Pierre Pouliot, Québec City.

07/22/2002 23:26
Joe 
07/22/2002 23:26
Joe 
USA Surgeons

Susan,

Needle Aponevrotomy is not practiced in the United States for reasons too numerous to mention.

Contact Dr. Badois in Paris, France.

If you would prefer a personal accounting of my experience with Dr. Badois please vist Walt Stagner's site, (see testimonials) or contact me directly for addtional information.

07/23/2002 23:09
Jan

not registered

07/23/2002 23:09
Jan

not registered

thanks

Pierre, thanks for the info on Dr. Lermusiaux in Montreal. i was just there last summer, would have visited the office in person for more info if i had known. altho i am not needing this procedure just yet.

07/30/2002 23:20
Neil Matheson

not registered

07/30/2002 23:20
Neil Matheson

not registered

No more surgery

Mine started when I was approximately 16 (1986) in my ring finger,left hand near my palm and it was about the size of a plastic,coloured pinhead.I ignored it until it started growing and then went to see a doctor about it. I had my first surgery in 1989/90 in Scarborough,Ontario,Canada and the doctor said that I was the youngest patient that he had ever seen with this problem. I had the surgery and the Contraction just grew back stronger. I had the surgery done again out here (Vancouver B.C. Canada) in about 1996 and again in about 1998. The last time I had it done I told the doctor not to worry about scarring my hand,just try and get it all out so I wouldn't have to have surgery again and each time it has come back worse.My ring finger now points straight up when I have my palm flat and up to the sky. It is now also slowly pulling my middle finger in as well. I went to see another plastic surgeon about two months ago and he said that the wait time for an operation in a hospital out here would be a year and that he could do it in his own operating room in his office for about $700.00 in a few weeks. I have a hard time paying that much money for something that I know will only be a temporary fix.(and possibly result in losing my finger)
To anyone thinking about having surgery done on their hand for this, please reconsider. I know that it will not work and will only come back stronger.I will be contacting Dr. Spacek in Montreal to see if I can get her to perform the needle aponevrotomy when I move there in November.I would much rather have the needle procedure done every few years than another terrible surgery even once !!
I will post the results of my aponevrotomy when I have it performed.........Neil
Please do noit hesitate to write me with any questions.

08/05/2002 23:23
Gary Evans

not registered

08/05/2002 23:23
Gary Evans

not registered

Needle Aponevrotomy

This is an interesting message from a NA message board. Perhaps Robert is on this board also.

Posted by Robert on August 05, 2002 at 01:16:41:

Hello,
I have been looking at this forum around two years. It has provided me with interesting and useful information.I have decided
to write my story,now,in hopes that it will prove helpful to others with this disease. My father has DC, is 80yrs. old, never
been treated, and his fingers are'nt too bad. He says he physically straightened them over time, when they were starting to
claw up, (his words)this was semi-painful.
I am a 50 yr. old white male, who found out what Dupuytren's Contracture was about 3and1/2 yrs. ago. I had a slight bump
with a little skin adherence on my left hand 1&1/2" below the base of my middle finger ever since I was quite young,(9 or 10),
with no disfunction of my hand. Since I was around 8yrs.I also
had a bump on the inside arch of my left foot,(Ledderhose disease).This caused very little occcasional discomfort, and no
disfunction. Later on in my late 20's to early 30's this bump doubled in size, and another bump grew on my right foot. Some
years later the one on my right foot almost disappeared, and the one on my left foot may have reduced a little. In April 99 I
started to get nodules in the palm of my right hand, the disease progressed to both hands and both little fingers started to
contract with bumps in other places.Last Nov.01 I went to Toulose, France and had needle aponectomy done on both hands,
3 times in 8 days.The little finger on the left hand was about 66 degrees, and the middle finger was starting to contract.The
little finger on my right hand was worse,(90+ degrees), and the index finger was starting to contract. The procedures were at
times slightly unconfortable,(one session my hands were poked 17 times with needles),but not more painful then getting a
shot,(lots of shots). the results in my left hand were very good; I could almost fully straighten out all my fingers. The little finger
on my right hand was better, but still had a 35 to 45 degree bend in it. Once or twice during the procedures I felt nerve tinges
where upon the doctor immediately ceased in that area. Several hours after my last treatment, laying in bed at the hotel, one
side of my little finger on my right hand went numb, and remains that way to this day. Returning home to the U.S. I started to
feel the bands regrowing between 3and 6 weeks after treatment. Now it is just over 8 months and on my left hand the little
finger is just over 90 degrees and the middle finger about 30 to 40 degrees. on the right the little finger is 90 to 115 and the
index is 30 to40 degrees.I am now trying to decide what my next step should be: 1.return to France this fall for another
aponectomy. 2.go to begium for a procedure there that's not as complex as a full operation. 3.consider
a operation here, which I don't favor. Or 4.amputate
half my little fingers, which I admit seems a little radical, at least for now. My main hesitation with a repeat aponectomy is the
possibility of nerve damage, and the speedy return of the contractures. I know this message is quite long, but I hope it is
helpful to someone out there.If there is anyone that can help me
deciding what my best optionsare, please e-mail me.
Good Luck to all!
Sincerely,
Robert

08/05/2002 23:52
Eddie 
08/05/2002 23:52
Eddie 
Posting Robert via Gary

Synthesis of that posting :
I have Dupuytren, what now ??????????????
I don't mean to sound cynical, but I think that says it all.
It is clear that Robert's case is much worse than the 'average' , and am sorry for him.
About the discussion whether to have NA or surgery, I don't think there is a clear answer. After my surgery I met many people with DP (there is a patients group over here that meets every couple of months, for a lecture by professionals). At the last meeting, the speaker was a hand surgeon, who also performs NA. He advises his patients what to have, but lets the final choice up to them, since there is no guarantee in either method ( of course except in clearcut cases ).
For me, the answer is simple, every action taken (even none) is a gamble. The surgeons, rheumatologists or whatever have no control about how our hands (feet) will react afterwards.
Sorry to sound somewhat negative, let's keep our hopes up for the future.

08/05/2002 23:19
Gary Evans

not registered

08/05/2002 23:19
Gary Evans

not registered

Needle Aponevrotomy

Eddie,
I agree with all of your comments. My only reason for placing that message was to point out that (as you said), there is not any one method that works for everyone.
Gary

08/06/2002 23:06
JERRY 
08/06/2002 23:06
JERRY 
APO VS. SURGERY

Eddie,

I don't wish to become embroiled in the current discussion, but you have probably noticed my postings.

Where do you live that you have a surgeon that practices both procedures? Just curious of course.

I have had both methods performed on different hands. As far as I am concerned, if my right hand's fingers weren't encapsulated it would have been APO all the way.

JERRY

08/06/2002 23:39
Eddie 
08/06/2002 23:39
Eddie 
country

I live in Belgium Jerry

11/09/2002 23:48
Gary Evans

not registered

11/09/2002 23:48
Gary Evans

not registered

Needle Aponevrotomy

I was able to get an email through to a leading surgeon/author and authority in the world. I will not give his name because he did not know that I would post his response on a public forum. I asked him directly, what in his opinion is the reason that Needle Aponevrotomy is not used or accepted in the U.S. His response was this:

"You are correct the procedure is not popular in the US, mainly because the high recurrence rate. The procedure is not new. It is similar to Cooper closed fasciotomy. There is a renewed interest however by using collagenase and rupturing the cord. I rarely use percutaneous fasciotomy."

This is an opinion of a surgeon, but also from a person who has researched DC for most of his lifetime. I hope we can find an opinion from Dr. Moermans at the University of Brussels.

This doesn't solve anything, but it does add a little bit of information. It will always come down to personal preference and the evaluation of each persons particular situation. I thought his remark about using collagenase combined with rupturing the cord, was interesting.

Gary

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