The medical community generally describes the spread of Dups as "painless". This seems to fly in the face of numerous posters who have experienced quite he opposite. Why do some experience pain in their diseased tissue while others don't? Why was there no pain in the onset of Dups in my left hand while there is now pain as the diseased tissue rapidly spreads in my right? Having read and participated in the posts here for some time, I believe I may have seen a correlation between PAIN and the SPEED of Dups growth. Does anyone's experience equate the relative aggressiveness of the disease with the degree of associated pain?
Randy H, I agree. In my case there was a different feeling during the rapid growth stage. For me it was an ache more than pain. But I did take pain (advil etc.) pills on occasion, especially in cold weather. There was no pain whatsoever until the contracture started. In my other hand, I have no pain, even though I have had "dermal pits" in that hand for 10 years. There is no contracture yet in that hand(yet). I guess it is reasonable to think that in some (many), there will be pain. Depending how the contracture takes place around nerves and tendons, there has to be stress and growing pains. Something unusual is taking place and it is pushing itself into unwelcome territory.
Randy, It's been my experience over the last 30 years that the pain and/or tenderness associated with the nodules is greater when they are growing. So, yes. I've noticed that too.
I discussed this with a doc long ago (who thought I had neurofibromatosis). Told him when they were growing they were sore; he said no, when they're sore they're growing and advised me to avoid physical work and take ibuprofen.
But the link to physical labor is weak if any- mine have grown the most in the past 5-6 years, when I've done virtually no manual labor.