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06/30/2004 23:38
bbnot registered
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06/30/2004 23:38
bbnot registered
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Research questions.
I hadn't noticed this forum, being a reader of the PD forum.
What is the NA treatment that many talk about here?
How many people in here who have DC also have PD?
Have you noticed any family history of DC/PD? Has anyone experienced DC and had it be uniquie (only case) within the family?
Does any one know of any good research sites concerning DC and its relatedness to PD?
bb
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07/02/2004 23:02
Hugh Chardonnot registered
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07/02/2004 23:02
Hugh Chardonnot registered
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Genetic Conditions
The PD condition is unique, although, perhaps, genetically similar to DD and Lederhose (IMHO.) In all three a connective tissue disorder exists. Epidemiologists can provide connections between the disorders. For the purpose of this forum (primarily Dupuytrens, and secondarily Ledderhose) the collagenase project of Biospecifics sounds promising in a way that Needle Aponevrotomy does not. I am not expert in this matter; I am saying that as a reasonably well-informed Dupuytrens sufferer, the temporary improvement afforded by NA is not applicable to Peyronnie's patients. Better information, if any, might exist on the Biospecifics Peyronnie's website. The French Rheumatologists at the Lariboisiere site might have significant, if only speculative, insight into the condition and possible treatment options. Dr. Lermusiaux would be the number one choice for an inquiry about plausible modalities. That link is referred to as the "Dr. Badois site" on this forum. Wish I could offer more. Watch out for charletons offerring cremes, pumps, herbals, etc. PD is a genetic connective tissue disorder. Rheumatologists specialize in connective tissue /immune response disorders. Urologists can diagnose the condition; my limited understanding is that Urologists have few treatment modalities to offer. Consider going to a major university Med. Center for a diagnosis and treatment options. No one has a "magic" cure at present to the best of my knowledge. Keep searching; the collagenase trials are "encouraging." That might be a place to focus attention. Good luck!
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07/02/2004 23:01
LINDAnot registered
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07/02/2004 23:01
LINDAnot registered
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D.C. QUESTIONS
I am the only one in my family with D.C that I know of..but, have a history of thyroid...also Diabetus in family, although I don't have it. GO TO WWW.HANDCENTER.ORG AND WWW.E-HAND.COM FOR MORE INFO. DR, EATON'S SITE WWW.HANDCENTER.ORG IS FULL OF INFORMATION.
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