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Research questions.
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06/30/2004 23:38
bb

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06/30/2004 23:38
bb

not registered

Research questions.

I hadn't noticed this forum, being a reader of the PD forum.

What is the NA treatment that many talk about here?

How many people in here who have DC also have PD?

Have you noticed any family history of DC/PD? Has anyone experienced DC and had it be uniquie (only case) within the family?

Does any one know of any good research sites concerning DC and its relatedness to PD?

bb

07/02/2004 23:02
Hugh Chardon

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07/02/2004 23:02
Hugh Chardon

not registered

Genetic Conditions

The PD condition is unique, although, perhaps, genetically
similar to DD and Lederhose (IMHO.) In all three a connective tissue disorder exists. Epidemiologists can
provide connections between the disorders. For the purpose
of this forum (primarily Dupuytrens, and secondarily
Ledderhose) the collagenase project of Biospecifics sounds
promising in a way that Needle Aponevrotomy does not.
I am not expert in this matter; I am saying that as a
reasonably well-informed Dupuytrens sufferer, the temporary
improvement afforded by NA is not applicable to Peyronnie's
patients. Better information, if any, might exist on the
Biospecifics Peyronnie's website. The French Rheumatologists
at the Lariboisiere site might have significant, if only
speculative, insight into the condition and possible treatment options. Dr. Lermusiaux would be the number one
choice for an inquiry about plausible modalities. That
link is referred to as the "Dr. Badois site" on this forum.
Wish I could offer more. Watch out for charletons offerring
cremes, pumps, herbals, etc. PD is a genetic connective
tissue disorder. Rheumatologists specialize in connective
tissue /immune response disorders. Urologists can diagnose the condition; my limited understanding is that Urologists
have few treatment modalities to offer. Consider going
to a major university Med. Center for a diagnosis and
treatment options. No one has a "magic" cure at present
to the best of my knowledge. Keep searching; the collagenase
trials are "encouraging." That might be a place to focus
attention. Good luck!

07/02/2004 23:01
LINDA

not registered

07/02/2004 23:01
LINDA

not registered

D.C. QUESTIONS

I am the only one in my family with D.C that I know of..but, have a history of thyroid...also Diabetus in family, although I don't have it. GO TO WWW.HANDCENTER.ORG
AND WWW.E-HAND.COM FOR MORE INFO. DR, EATON'S SITE WWW.HANDCENTER.ORG IS FULL OF INFORMATION.

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secondarily   significant   connective   Lariboisiere   Epidemiologists   Urologists   encouraging   Aponevrotomy   information   HANDCENTER   treatment   Dupuytrens   Biospecifics   connections   well-informed   collagenase   speculative   understanding   modalities   Rheumatologists