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RIGHT PALM
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03/18/04 01:52
DONNA

not registered

03/18/04 01:52
DONNA

not registered

RIGHT PALM

HI,
MY DAUGHTER AN OCCUPATIONAL THERAPIST SAYS I HAVE DUPUYTREN SYNDROME. I'M A 59 YEAR OLD WOMAN. LAST YEAR I FOUND SMALL HARD BALLS ON MY PALM BELOW THE RING FINGER. JUST IN THE PAST 2 WEEKS I CAN SEE THE V BELOW MY RING FINGER BECAUSE MY SKIN ON EITHER SIDE OF THE V HAS PUFFED.I'VE GONE TO WEB SITES AND THEY ALL SAY THERE IS NO CURE.IS THIS TRUE? DOES THIS SOUND LIKE THE DISEASE? SHOULD I SEE A DR.? THERE IS NO PAIN AT ALL.
THANK YOU,

03/19/04 01:15
Eddie 
03/19/04 01:15
Eddie 
@Donna

Donna, it seems like you have the first symptoms of DP.
Should you see a doctor ? From what you write, I think it would just be a waste of time and money, since any doctor will tell you just to wait and see how it evolves.
No cure ? Right.
My advice would be to just forget about it, you wouldn't be the first to live for the rest of your life without the need for any kind of 'surgery'.

03/19/04 01:52
joe

not registered

03/19/04 01:52
joe

not registered

Donna

Donna, I would suggest you post what area you live in...maybe someone will no a doctor in your area that is familiar with dups. Also, there is plenty of information on this site...just go through some of the posts. Good Luck

03/19/04 01:24
miriam lubow

not registered

03/19/04 01:24
miriam lubow

not registered

dups diagnosis

Donna:
I agree with Eddie
save your money
sure sounds like dupuytren's and since there is NO CURE - at least for now- I too would suggest you wait and see how this progresses and BEST of all keep reading all the posts these wonderful people are sending in.
I've really been helped a lot here.
In a few weeks I am going to FL to Dr Eaton's office for treatment on both hands. (I have Ledderhose on my feet too).
My progression has taken 10 years to get to the point I need surgery... hope you have the slow grower!
We are all hoping there WILL be a cure in the not too distant future!


Good luck, MIriam

03/19/04 01:01
Patty

not registered

03/19/04 01:01
Patty

not registered

agree

I agree. When I first went to the doctor 3 months ago, all I did was spend $50 to be told " Let's wait this out and see what happens" I know now, when the time will be right for me to do something, and when I can't lay my hand flat, I am going to Florida to Dr. Eaton. That could be months or years, or never. Everyone is different.

03/23/04 01:27
Barbara Bernard

not registered

03/23/04 01:27
Barbara Bernard

not registered

web sites of interest

www.dupuytrens-a-new-theory.com
www.lynndketchum.com/
Both are very good and informative sites.
Where do you live? Where did your family originate?
How old were you when you got DC? What kind do you have?
email or post these on the site. We can all learn from each other. We have children and grandchildren who can benefit from a support group. It is up to us to make this disease known worldwide so there can be more research done.
We need to write to our goverment and educate them about this disease. Look how long it took for AIDs to get attention. We could all be dead and our children fighting this disease before someone decides to do domething about it. I myself did not know what it was until 1996 and my mother had it in the early eighties. Her doctor did not know what it was either, nor the health insurance companies.

I live in New Orleans, Louisiana. My family has been traced back to the Netherlands. I was 47 years old when I went to my derm. and he told me it was DC. He said I should see a surgeon right away. And see one right away I did. I was afraid I would be paralized like my mother if I didn't. He did surgery in 2000, and it's been downhill since. Three surgeries later and I've lost my small motor skills in my left hand. I can't work. I had to sell my business. My husband is 70 years old with a bad heart and he is afraid to retire. We don't know what is going to happen.
We have three children-- three granddaughters, and I worry that one of them will get this disease.
Let's get all the information gathered on this disease that we can before we lose the ability to do so.
God bless.
Barbara

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