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Today: Information ,NA/Worried and Help
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07/09/2004 23:42
paulette

not registered

07/09/2004 23:42
paulette

not registered

Pinky and Bill

How many many times I read the same post, if only we had known...as I've written before, I have this disease since my mid twenties and I'm 69...very few doctors knew what it was and it progressed slowly...after my pinky on my right hand started to come down, I was warned by many hand surgeons, all considered the best in Manhattan Hospital for Special Surgery, that if I didn't have the surgery my finger would come to the palm and surgery would be very difficult...well, after two surgeries that actually butchered my hand, what they warned me if I didn't have surgery came true, only worse. We now know that surgery escalates this disease..I have been told I have the worst case doctors and therapist have seen...in both feet and they have never been operated on...the noducles sort of come and go..my left hand is now curving in and and I can't straighten out and my right has the pinky and ring finger to the palm...in the last two years since taking msm and g/c I have gotten so much worse...Dr. Eaton said he can help and I hope to report back with the same success as Bill...sorry for the long post, but if I can prevent one person from not having traditional surgery, then this long post served a purpose...good luck to all out there and as bad as my hands are, I still lift weights and play golf...just don't want them to keep getting worse.

07/10/2004 23:03
LINDA

not registered

07/10/2004 23:03
LINDA

not registered

PINKIE

Hi Paulette,
Good luck at Dr. Eaton's... We will be anxious to hear back from you....When is your appointment? Dr. Eaton's can recommend places to stay....and if you like you can e-mail me and I can tell you some of the places we ate that aren't too expensive...oh shoot. I might as well share with everyone.. There is an old diner named The Lighthouse Cafe on the old Highway 1..about 3 miles from Dr's..It has old fashioned style homecooked meals and not too expensive....very casual.. a local's place.....
Good Luck to you....

07/10/2004 23:39
Linda 
07/10/2004 23:39
Linda 
danger of N.A.

Patty,
Don't listen to your Doctor.....PLEASE... Go see Dr. Eaton...RUN...Don't walk..out of your doctor's office ..
I can't help but think of the people that haven't discovered this site yet...I HAVE STATED BEFORE THAT MY SON IN LAW IS AN ANESTHESIOLOGIST..He had never heard of the N/A/ procedure....sure glad I didn't listen to all of my doctors....and read this site for a year....DO NOT HAVE THE TRADITIONAL SURGERY...PLEASE....

07/10/2004 23:32
Bill

not registered

07/10/2004 23:32
Bill

not registered

lodging

Just a note for those staying down near Jupiter, FL. I was told that the least expensive area to stay was on Singer Island which is about 10 miles south of the Jupiter Exit, if you're going down I-95. I stayed at the Rutledge across from a Harley Dealership on the beach for under $100. Nice, older place with a Tiki bar next to the water. I ate at a great restaurant called the Crab Pot next to the bridge going to the island. Reasonable prices, live band outside dining next to the inlet. All told, I spent less than $500 in gas, hotels(3 nites), and food while traveling from NC. This is off season in Florida(very HOT), so you can find even cheaper rooms. Stayed in Daytona the first nite for less that $75 on the beach. Plus all your expenses should be tax deductable so save all receipts! Good luck. This is day 3 since my NA and I have almost no soreness left. Bill

07/10/2004 23:07
paulette

not registered

07/10/2004 23:07
paulette

not registered

Dr. Eaton

Hi Linda, thank you for your good wishes and recommendations..we stay in Jupiter and love Jetty but will try yours as well. went to Dr.Eaton in May, but because my hands are so bad and my own doctors told me not to do this, I was very wary, but after discovering this site and knowing many people in Florida who were helped, I decided to go for it since he said he could help me...one hand being done the end of Aug. and the other a few days later..a bit nervous, but this site has given me hope as well...

07/10/2004 23:37
LINDA

not registered

07/10/2004 23:37
LINDA

not registered

DANGER OF N.A.

PAULETTE. NO ONE COULD HAVE BEEN MORE NERVOUS THAN ME... I HATE FLYING....I JUST DECIDED TO GO AND AM EXTREMELY HAPPY WITH DR. EATON..
HE WILL NOT DO YOUR HANDS IF HE FEELS HE WILL DO MORE HARM...I KNOW BECAUSE I HAVE A LARGE SOFT SPOT ON MY LEFT HAND THAT HE SAID HE COULD NOT DO BECAUSE IT WAS TOO SOFT TO SNIP...SO, I WILL GO BACK WHEN IT HARDENS...
TERI CAN TELL YOU OF A LOCAL MOTEL THAT RUNS ABOUT $70 DOLLARS A NIGHT BY A BRIDGE AND CANAL WITH LOCAL RESTAURANTS...I KNOW I ALWAYS SAY THIS NAME WRONG.. I THINK WELLINGSTON??
ALSO, A LOCAL CAFE..EX DINER ..JUPITER CAFE HAS OLD STYLE DINNERS.. SOUP, SALAD. MAIN COURSE. POTATOES OR RICE..AND DESSERT, ROLLS, ETC.....FOR I THINK ANYWHERE BETWEEN 7 AND 11 DOLLARS..ALSO, ON THE OLD HIGHWAY OR OFF THE OLD HIGHWAY A1A NEAR HIGHWAY 1 THERE IS A RESTAURANT CALLED THE CRAB HOUSE...EXCELLENT VIEW OF WATER..OUTSIDE EATING , NICE ATMOSPHERE..REALLY GOOD CLAM CHOWDER.....YUM.
WE STAYED AT JUPITER BEACH RESORT, A LITTLE PRICEY, BUT WE MADE A VACATION OF IT AND THE VIEW OF THE OCEAN WAS GREAT..
I AM SOOO GLAD YOU DECIDED TO SEE DR. EATON..WE WERE ALL SCARED UNTIL WE WENT...IT WAS HARD TO TRUST STUFF FROM THE INTERNET....FINALLY I JUST SAID..OH , THE HECK WITH IT I AM GOING TO GIVE IT A SHOT...AM VERY HAPPY I DID.. MORE THAN VERY HAPPY...TRUST THE OTHER POSTERS..THEY ARE TELLING THE TRUTH.. I HAVE BEEN THERE AND DONE IT.

07/10/2004 23:21
ell 
07/10/2004 23:21
ell 
nice to see there is spokes woman

watching this site for about 2 weeks i have to conclude ms. linda to be the spokes person. older than some she has experience and splints, calcification,and god knows what else many trips on our welfare cost. stop dont go past go she is such an angel from the N/A dr. eaton maybe on the pay roll or who knows the true webmaster!!! you go girl or ??? man young old what gives? saw so many sites with ms linda B. just can't think it is possible she is with out adgenda??? also saw other young men and woman lost for help just stay the course. also look for twins with same problems living in differen't parts of the world says randy & sean LOVE IT!!!

07/10/2004 23:58
paulette

not registered

07/10/2004 23:58
paulette

not registered

Dr. Eaton

thanks again Linda for your message and hints...very familar with the Jupiter area, so many lovely places. Dr. Eaton said he could help and I'm actually looking forward and posting...as I've said before, not to play can you top this, but unfortunatly since I've had this so long my hands are in very bad shape, but when Dr. Eaton gave me hope, that was all I needed to hear...keep posting Linda, your concern and help is sincere...

07/11/2004 23:59
paulette

not registered

07/11/2004 23:59
paulette

not registered

survey results

New to this site and would like to know if any knows how to get the results of the survey? I would be interested in reading. Thank you..

07/11/2004 23:41
Linda 
07/11/2004 23:41
Linda 
Danger of NA

Dear El,
I cannot believe what I just read...Get a grip!
Although, I would be very happy to be an employee of Dr. Eaton's office. Must be exciting..What are you talking about calcification????

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contracture   satisfaction   TRADITIONAL   totally   Aponevrotomy   consultation   EVERYONE   12---Dissatisfied   dissatisfied   calcification   unsatisfactory   husband   INVASIVENESS   recommendations   surgery   unbeleavable   procedure   11---Dissatisfied   ANESTHESIOLOGIST   consideration