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Web Site with New Theory
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01/12/04 01:31
Kevin

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01/12/04 01:31
Kevin

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Web Site with New Theory

Hello,

I have recently put together a web site with a theory that I have formulated to explain the cause for Dupuytren's disease.

The web site address is: www.dupuytrens-a-new-theory.com

01/12/04 01:49
Frustrated

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01/12/04 01:49
Frustrated

not registered

No site found

Kevin, I tried to access your site and my search
resulted in zero result. I tried about four times
with careful checking of my typing. Any suggestions?
Any new details about the URL (and/or host/server.)
Thanks.

01/12/04 01:35
Kevin

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01/12/04 01:35
Kevin

not registered

Web Site

It should work ok. Try this link which I copied and pasted: so it has to work)

http://www.dupuytrens-a-new-theory.com/pages/1/index.htm

Kevin

(It only went live a couple of days ago, so maybe it takes a while for it to be universally accessable???)

01/12/04 01:45
Dolores

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01/12/04 01:45
Dolores

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Site found

To frustrated:
I had no trouble accessing the site. Note that hyphens are used in the address. Very interesting theory. I will be hoping to learn reactions from more knowledgable readers than myself.

01/13/04 01:42
John W.

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01/13/04 01:42
John W.

not registered

Kevin~sq~s DC website

Good site about DC. Theroy ounds plausible. The answer might be even more complex, but you are on to something. Coupled with the genetic factor, i think DC is an endocrine and/or metabolic disease affecting specialized tissues in the body.

01/13/04 01:57
Anon

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01/13/04 01:57
Anon

not registered

Theory

I can't get into it either....can anyone provide the direct link here?

Anon

01/13/04 01:52
Sean 
01/13/04 01:52
Sean 
Good website

Anon,
A Copy and Paste got me directly to the website. Good personal website with much thought and preparation.

01/13/04 01:16
Jeff 
01/13/04 01:16
Jeff 
theories abound

Kevin
Good site; I only wish I knew the answer. I'm somewhat in your position--five months with this diagnosis, early stage of two nodules in the right palm and no bending. Saw two hand doctors and both said do nothing--no suggestions for eating, cremes, vitamins, stretching etc.
Russian and Austria-Hungary heritage, age 54, nonsmoker, social drinker, active tennis player (noticed some palm pain a year ago), scuba diver, bread baker, runner and no health issues (at least known). I keep looking for a common denominator but it eludes me.

01/13/04 01:07
Sean 
01/13/04 01:07
Sean 
Dupuytren~sq~s

Jeff,
You might not have a problem if contracture does not occur. I know several people (about 10) who have lived their life after age 50 and had no problem with Dupuytren's. Many didn't know what they had until they were told in their 70's or 80's. They had lived with nodules or "pits" for years without contracture. They thought it was just part of growing old. Most of the time there is no pain involved with Dupuytren's unless associated with other diseases.
Good luck

01/13/04 01:36
Jeff 
01/13/04 01:36
Jeff 
A Continuing Quest

Sean may be right in saying that there may be no progression in my case. There is clearly growth over these five months and I have been obsessed with this mystery condition. Even without pain, its mere existence is something I continually notice. I have attempted to change grips on my tennis racquet and it only lowers my standard of play. I had never heard of DP. But this forum has clearly opened my eyes.
It boggles my mind that medical science has no answer despite 200 years or so of living with this one. This seems a lot easier to deal with than cancer. So I look into my glass ball of the future in the event my condition continues on its way. The Phase III trials of this enzyme are promising, but FDA trials often require more and more data. I doubt BioSpecifics can last that long having reviewed their financial condition. Without an Abbott or Pfizer stepping up I'm afraid that path will lead nowhere. Surgery scares me because of the recurrence rate and the difficulty of this surgery. I continue to be favorably disposed to the NA and plan to follow developments there.
Maybe I am spoiled. I am used to getting answers. Dermotologists give us a magic creme; breaking a bone is repairable; knees and hips are replaced; heart operations get the patient home in a day. Yet DP has no answers.

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