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Web Site with New Theory
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01/13/04 01:10
jim h

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01/13/04 01:10
jim h

not registered

I think you might be on to something

Yes, after heart surgery patients are home in a day. After Dupuytren's surgery you get home even quicker. And with NA, there's no down time at all. Although these methods aren't completely effective, they all represent viable mechanical solutions to a problem with no systemic remedy.

I suggest we all forget about Collagenase. It's years in the future at best, and I see no advantage over NA for Dupuytren's (although Peyronie's is another matter).

Little research is being done on Dupuytren's because no the drug companies see no big money in it.

What we need are better 'mechanical' solutions. NA and surgery are both effective with clearly defined palmar cords. But when the PIP joints are involved, a downward spiral begins. We need new techniques to restore those joints to full function by disconnecting the DC tissue without causing massive scarring and long-term joint encapsulation. There's no way to prevent recurrence, so we need affordable treatments that can be repeated as needed.

Maybe the next advancement will be ultrasound, or LLLT, or NA guided by real-time imagery. But it won't be a pill or injection.

01/13/04 01:13
David

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01/13/04 01:13
David

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I think you might be on to something

I just visited your website and I have to admit that I think you might be on the right track. I think all posters here should read Kevin's theory. Now, all we need is some medical evidence. Unfortunately, Kevin, you didn't postulate, however, if we know the cause a cure is not too far behind. The medical community needs to do more with DC!! An outstanding job!!

01/13/04 01:17
Mary Beth

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01/13/04 01:17
Mary Beth

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Kevin~sq~s IDS site

Kevin,
Thanks for the site. Any plausible theories should
be presented and yours seems to have merit for additional
research. Finding the cause is the only way to someday
find the cure. Also if DC is a symptom of a bigger health
problem it needs to be identified. While there may not be research studies to back up glucosamine and chondoitin
causing advancement of DC, there are certainly cases of some
sufferers having this happen. Correct diet and enough sleep
are changes anyone can make. There are also medications to
help people stop smoking or drinking alcohol. Unfortunately
those with diseases like epilepsy or diabetes may find
themselves in a position of needing a medication for one
disease which may activate another. Thanks again and
good luck.

01/14/04 01:58
Stage One

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01/14/04 01:58
Stage One

not registered

Erstwhile conjecture

Kevin, thank you for your input. Perhaps you can
interest medical researchers with your concept.
One anomalie regards Betel nut usage and the low
incidence of Asian DD/DC. Are you suggesting that
a misdiagnosis has occurred; i.e., Dupuytrens, Ledderhose,
Peyronnies, AND now OSF? Insulin metabolism is a major
factor in daily living. You may be on to something; and
the connection would lie at the genome level. Your input
would suggest a "higher" level than DNA/Aponeurosis; now
DNA/Insulin metab./ connective tissue/DD&DC(aponeurosis.)
From a practical standpoint, if one could connect the DD dot to a "bigger" dot, i.e., insulin/diabetes/DD, then
the commercial attraction increases for therapeutics.
Personally, while I have an open mind, I am also aware
of co-variability amongst populations. Detailed research
helps to delineate the pertinant factors. I suggest starting
with Dr. Lermusiaaux as a resource to see his input on the
"global" concept of Rheumatic Disease and an Insulin connection. One might proceed from there. (Or not.)
Alas, Diabtetes kills, while Dupuytrens maims. Co-morbidity
might benefit DD research. That could benefit all associated
"sufferers." Do you have a next step proposal?

01/14/04 01:26
Anon

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01/14/04 01:26
Anon

not registered

I~sq~ve been trying...

...but still can't find the website...can someone either post a direct link....or give me some specific words that I can 'Google' with.

thanks

01/14/04 01:26
Kevin

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01/14/04 01:26
Kevin

not registered

feedback

Thanks everyone for your feedback.

Stage One: Who is Dr. Lermusiaaux, and how can he be reached?

Anon: I don't know what to do so that you can access the site. My provider (Network Solutions) says it can sometimes take up to 72 hours for a site to be universally available, but 72 hours was passed a couple of days ago.

Try this instead:

http://dupuytrens-a-new-theory.com.temporary-address.com

01/14/04 01:38
Stage One

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01/14/04 01:38
Stage One

not registered

Kevin and Dr. L reference

You posted on another DD forum maintained by
the Lariboisiere Hospital Group. That site is
maintained by Dr. Badois and DR. Rappaport as
webmasters. Dr. Lermusiaux also visits the
site and was the originator of the NA procedure.
To date, virtually all NA prctioners were trained
by him. Others have been trained by his proteges,
staff members at other locations. The hospital
address is listed on that forum's home page. The
BTC collagenase trials at Stanford and Stoney Brook
would be another source for comment. Dr. Hentz (sp?)
is one name that I recall.

01/14/04 01:30
Dolores

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01/14/04 01:30
Dolores

not registered

Kevin~sq~s site

Anon: This site isn't in the Google directory. I tried various word combinations and came up empty. I don't know what you mean about posting a direct link, (I have Web TV.)

01/14/04 01:06
Jane

not registered

01/14/04 01:06
Jane

not registered

Dupuytren~sq~s Mystery Solved?

Thanks for the great article, Kevin. Will be seeing both a rheumatologist and an endocronologist tomowwow and will see that both have copies.

01/14/04 01:24
Kevin

not registered

01/14/04 01:24
Kevin

not registered

google

Dolores,

I think it takes a while for new sites to be found by google. It isn't automatic. Can't you just type in the address with web tv?

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