Web Site with New Theory |
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01/12/2004 23:10
jim hnot registered
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01/12/2004 23:10
jim hnot registered
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I think you might be on to something
Yes, after heart surgery patients are home in a day. After Dupuytren's surgery you get home even quicker. And with NA, there's no down time at all. Although these methods aren't completely effective, they all represent viable mechanical solutions to a problem with no systemic remedy.
I suggest we all forget about Collagenase. It's years in the future at best, and I see no advantage over NA for Dupuytren's (although Peyronie's is another matter).
Little research is being done on Dupuytren's because no the drug companies see no big money in it.
What we need are better 'mechanical' solutions. NA and surgery are both effective with clearly defined palmar cords. But when the PIP joints are involved, a downward spiral begins. We need new techniques to restore those joints to full function by disconnecting the DC tissue without causing massive scarring and long-term joint encapsulation. There's no way to prevent recurrence, so we need affordable treatments that can be repeated as needed.
Maybe the next advancement will be ultrasound, or LLLT, or NA guided by real-time imagery. But it won't be a pill or injection.
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01/12/2004 23:13
Davidnot registered
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01/12/2004 23:13
Davidnot registered
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I think you might be on to something
I just visited your website and I have to admit that I think you might be on the right track. I think all posters here should read Kevin's theory. Now, all we need is some medical evidence. Unfortunately, Kevin, you didn't postulate, however, if we know the cause a cure is not too far behind. The medical community needs to do more with DC!! An outstanding job!!
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01/12/2004 23:17
Mary Beth not registered
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01/12/2004 23:17
Mary Beth not registered
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Kevin~sq~s IDS site
Kevin, Thanks for the site. Any plausible theories should be presented and yours seems to have merit for additional research. Finding the cause is the only way to someday find the cure. Also if DC is a symptom of a bigger health problem it needs to be identified. While there may not be research studies to back up glucosamine and chondoitin causing advancement of DC, there are certainly cases of some sufferers having this happen. Correct diet and enough sleep are changes anyone can make. There are also medications to help people stop smoking or drinking alcohol. Unfortunately those with diseases like epilepsy or diabetes may find themselves in a position of needing a medication for one disease which may activate another. Thanks again and good luck.
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01/13/2004 23:58
Stage Onenot registered
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01/13/2004 23:58
Stage Onenot registered
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Erstwhile conjecture
Kevin, thank you for your input. Perhaps you can interest medical researchers with your concept. One anomalie regards Betel nut usage and the low incidence of Asian DD/DC. Are you suggesting that a misdiagnosis has occurred; i.e., Dupuytrens, Ledderhose, Peyronnies, AND now OSF? Insulin metabolism is a major factor in daily living. You may be on to something; and the connection would lie at the genome level. Your input would suggest a "higher" level than DNA/Aponeurosis; now DNA/Insulin metab./ connective tissue/DD&DC(aponeurosis.) From a practical standpoint, if one could connect the DD dot to a "bigger" dot, i.e., insulin/diabetes/DD, then the commercial attraction increases for therapeutics. Personally, while I have an open mind, I am also aware of co-variability amongst populations. Detailed research helps to delineate the pertinant factors. I suggest starting with Dr. Lermusiaaux as a resource to see his input on the "global" concept of Rheumatic Disease and an Insulin connection. One might proceed from there. (Or not.) Alas, Diabtetes kills, while Dupuytrens maims. Co-morbidity might benefit DD research. That could benefit all associated "sufferers." Do you have a next step proposal?
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01/13/2004 23:26
Anonnot registered
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01/13/2004 23:26
Anonnot registered
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I~sq~ve been trying...
...but still can't find the website...can someone either post a direct link....or give me some specific words that I can 'Google' with.
thanks
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01/13/2004 23:26
Kevinnot registered
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01/13/2004 23:26
Kevinnot registered
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feedback
Thanks everyone for your feedback.
Stage One: Who is Dr. Lermusiaaux, and how can he be reached?
Anon: I don't know what to do so that you can access the site. My provider (Network Solutions) says it can sometimes take up to 72 hours for a site to be universally available, but 72 hours was passed a couple of days ago.
Try this instead:
http://dupuytrens-a-new-theory.com.temporary-address.com
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01/13/2004 23:38
Stage Onenot registered
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01/13/2004 23:38
Stage Onenot registered
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Kevin and Dr. L reference
You posted on another DD forum maintained by the Lariboisiere Hospital Group. That site is maintained by Dr. Badois and DR. Rappaport as webmasters. Dr. Lermusiaux also visits the site and was the originator of the NA procedure. To date, virtually all NA prctioners were trained by him. Others have been trained by his proteges, staff members at other locations. The hospital address is listed on that forum's home page. The BTC collagenase trials at Stanford and Stoney Brook would be another source for comment. Dr. Hentz (sp?) is one name that I recall.
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01/13/2004 23:30
Dolores not registered
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01/13/2004 23:30
Dolores not registered
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Kevin~sq~s site
Anon: This site isn't in the Google directory. I tried various word combinations and came up empty. I don't know what you mean about posting a direct link, (I have Web TV.)
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01/13/2004 23:06
Janenot registered
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01/13/2004 23:06
Janenot registered
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Dupuytren~sq~s Mystery Solved?
Thanks for the great article, Kevin. Will be seeing both a rheumatologist and an endocronologist tomowwow and will see that both have copies.
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01/13/2004 23:24
Kevinnot registered
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01/13/2004 23:24
Kevinnot registered
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google
Dolores,
I think it takes a while for new sites to be found by google. It isn't automatic. Can't you just type in the address with web tv?
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