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Forum for Dupuytren's and Ledderhose 
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  • youth onset of D.D.
    • youth onset of D.D.
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     1
    03/28/2000 23:49
    Nancy Fulcher

    not registered
    03/28/2000 23:49
    Nancy Fulcher

    not registered

    		 youth onset of D.D.

    My 16 year old daughter was recently diagnosed with D.D. It appeared after surgery for a broken finger. A tumor rapidly grew on the outer edge of her palm under the pinky .(the broken finger was teh index one) and a red mark appeared under the ring finger on the palm. She had the tumor removed and the dr. said she had D.D. and that the red mark was a cord significant of D.D. She now has a knuckle pad on the finger that was broken. I can't find much on kids with it. I think it is rare, but studies seem to say it progresses rapidly. Anyone with experience in this.
    06/11/2000 23:56
    C. Powers

    not registered
    06/11/2000 23:56
    C. Powers

    not registered

    		 DD ove all body

    My husband first discovered knots on feet at age 25 has had numeouis oprations on same but they return rapidly Now at 78, his body is pretty well a mass of knots, particularly on his legs, up his spine and in his neck. His hands though affected are not as hard to manage as his legs which are drawing and make over exersion difficult. He is also limited in movement of the spine. We've never been able to get any advice as to slowing or halting this disease -- only the usual, surgery when movement is too impaired. If anyone has any help, would be interested.
    06/13/2000 23:17
    D Beason

    not registered
    06/13/2000 23:17
    D Beason

    not registered

    		 Non-Surgical Cure ?

    Hope you can help!

    I’m new to the Dupuytren's Forum, but not to Dupuytren's that showed up about 10 years ago. Had surgery on my left hand 2 years ago but Dupuytren's is now back in the L hand worse than ever. So I know from experience surgery is only a stopgap.

    I know about the French Needle so I am very interested in info about non-surgical cures. Question:

    1) Are there any legit non-surgical cures? Who and where?
    2) Is the SUNY Stony Brook cure near going public? Any info on the status?
    3) Are there any doctors (or anyone else) doing injections? Who and where?

    Please help with any info you have. I don’t want any more surgery!

    Thanks Very Much!
    06/09/2006 23:34
    Bill James

    not registered
    06/09/2006 23:34
    Bill James

    not registered

    		 youth

    My Dr. told me he sees young patients with DD about every two years. I think youth onset is uncommon. I hope these young men and women are aware of the benefits of NA. To have surgery at that young age could be a disater.
    06/09/2006 23:09
    Graeme

    not registered
    06/09/2006 23:09
    Graeme

    not registered

    		 Youth on-set of DUPS

    There is an article on Entrez PubMed 1985;17(3):139-42 details a two year old boy with a contracture of the second and third digit - begining at the age of seven months.

    I have read another abstract article (PubMed), of a baby aged about 14 months presenting with a contracture. The nodule was noticed at birth.

    So DUPS can develope shortly after conception.

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