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Interesting articles from UK NHS
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05/16/2005 23:42
Terry

not registered

05/16/2005 23:42
Terry

not registered

Interesting articles from UK NHS

Just doing some further research into NA and came across the following site http://www.nice.org.uk/page.aspx?o=ip_177

NICE is the UK National Health Service National Institute for Health and Clinical Excellence. Some interesting articles. The link may already have been posted previously but anyway it certainly shows acceptance at Governmental level for NA.

    05/17/2005 23:37
    marjorie 
    05/17/2005 23:37
    marjorie 
    NA and NICE

    Such a pity that although NA has been approved by NICE since 2004 no one has done any training yet. Feels like we are living in a third world country.

      05/18/2005 23:58
      Sara

      not registered

      05/18/2005 23:58
      Sara

      not registered

      UK INCOMPETENCE


      Marjorie, I agree wholeheartedly.

      I am so tempted to just think "OK, I'll just go to France for treatment every couple of years or so and put up with the expense (travel and acccommodation wise I mean because the treatment is amazingly cheap compared with our option). Frankly, because the doctors there are so supremely competent I shall probably do that anyway.

      HOWEVER, for the sake of others who perhaps do not have that option, either physically or financially, I shall continue to fight to get this up and running here.

      Basically, we are being deprived of the most effective and least invasive treatment for our complaint and nobody seems to give a damn! It is simply a disgrace and I feel so furious. I am absolutely amazed that a country which prides itself on freedom and progress could be way behind the rest of Europe (and others) on this matter.
      Any suggestions fellow UK citizens?

      PLEASE DON'T GIVE UP, WE DON'T DESERVE TO BE TREATED LIKE THIS BY BUREAUCRATS WHO PROBABLY DON'T EVEN HAVE A CLUE WHAT DUPUYTREN'S DISEASE IS ALL ABOUT.

        05/18/2005 23:59
        marjorie 
        05/18/2005 23:59
        marjorie 
        UK incompetance

        Hi again.
        I had arranged to have an op privately as I was told my DC could be too far gone if I waited for the NHS. Having realised how invasive the op would be I cancelled it. That's when I decided to check the alternatives. I am off to have treatment by Dr Lermusiaux in two weeks time. Better to have a few days in Paris than in hospital.
        There is no doubt that when I have had the treatment I shall be sending complaints to all concerned with patient care in the UK.

          05/22/2005 23:32
          Christine

          not registered

          05/22/2005 23:32
          Christine

          not registered

          UK reluctance

          Under EU Regulations you have the right to go to have treatment in other EU countries and have this treatment cost reimbursed. This is mentioned in the Department of Health leaflet on travel overseas, though they suggest you take legal advice first - no doubt to discourage us. The Primary care trust should pay the cost of treatment but not travel.
          Good luck

            05/22/2005 23:32
            Christine

            not registered

            05/22/2005 23:32
            Christine

            not registered

            UK reluctance

            Under EU Regulations you have the right to go to have treatment in other EU countries and have this treatment cost reimbursed. This is mentioned in the Department of Health leaflet on travel overseas, though they suggest you take legal advice first - no doubt to discourage us. The Primary care trust should pay the cost of treatment but not travel.
            Good luck

              05/22/2005 23:03
              marjorie 
              05/22/2005 23:03
              marjorie 
              UK reluctance

              Thanks Christine.
              The problem is that nothing is so simple. First you have to get a referral from a consultant in this country. Finding one who would do that could be difficult if not impossible. Then you have to apply for permission to the local health authority to use an E112 to have treatment in another EU country. This can take weeks, presuming they eventually say yes. I think that this way to go would be like pulling teeth and not worth the hassle to claim the £60 or so pounds it costs to have the procedure in Paris. What we really need to do is get this Government off it's backside and get some doctors to train in the procedure. To this end I have just emailed my MP. It will be interesting to get his reply.

                05/23/2005 23:24
                Sara

                not registered

                05/23/2005 23:24
                Sara

                not registered

                UK reluctance

                I am glad I have understood things correctly, i.e. that travel is not reimbursed, but the treatment is (in theory at least!). As the cost of travel far outweighs the treatment cost, this seems a bit of a farce to me. We simply need people to train in this country, as Marjorie said. I'll believe it when I see it. Don't mean to sound negative, but considering they have been doing this since the seventies in France.....it is a little outrageous. Well done people contacting their M.Ps, doctors etc. I have done the same, but unfortunately did not get much of a result. One day somebody might!!

                  05/24/2005 23:00
                  Christine

                  not registered

                  05/24/2005 23:00
                  Christine

                  not registered

                  claim for costs

                  Majorie
                  The EU Regulations I referred to are separate from the E112
                  See below for an extract form the DH website.
                  However, I agree that it is hardly worth the hassle. With an E112 you should have travel etc costs paid, including your carer, is my understanding. -

                  Following decisions by the European Court of Justice and our domestic courts, a patient can also approach a provider in an EU country directly, i.e. outside the E112 procedure or NHS-commissioned service. As you would have to pay from your own resources for such treatment and then claim reimbursement from the NHS retrospectively for such treatment, you are strongly advised to seek advice from your PCT or board before proceeding. As this is a complex area of developing law you are also strongly advised to take your own legal advice. If you go ahead without both a recommendation from your consultant and the agreement of the PCT you may find that you are subsequently unable to obtain reimbursement. You are also advised to check this section of the Department's website for any updating of this guidance.

                    05/24/2005 23:19
                    marjorie 
                    05/24/2005 23:19
                    marjorie 
                    claim for costs

                    Thanks Christine. I was not aware of the developing law so will look at it in more depth.

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