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Question on pain
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10/09/2004 23:02
Jen

not registered

10/09/2004 23:02
Jen

not registered

Question on pain

I noticed the palm of my hand was indenting and in months it started also on the other hand (Sept 03) Today I have pain in both palms but no visable contractures of fingers ;;(Just caved in palms ) Diagnosed with D.C. Is this the way it started for others?? Approximatly how long before fingers may start contracting?? My mother at 95 alive and well has these contractures but never called it anything but arthritis strange huh Thanks Jen

10/09/2004 23:59
Frances

not registered

10/09/2004 23:59
Frances

not registered

one year after diagnosis

Hi Jen,

Welcome to the message board. When I first learned of DC I started looking at peoples hands only to find DC was pretty common. Information on the internet at that time clasified DC as 'rare' and not often studied because it was an 'orphan disease'. It is my belief that DC was simply misdiagnosed as 'arthritis' and the number of DC patients out there is greater then we thought - just like in your mothers case.

By raising awareness....this will change and hopefully NA will become inexpensive and available to all.

Good luck with your hands

Frances

10/13/2004 23:11
greg

not registered

10/13/2004 23:11
greg

not registered

one year after diagnosis

at this point i have DC in fingers of both hands, one palm and one foot. i have'nt met anyone with DC but would'nt mind a friend to talk to every now and then.

11/07/2004 23:45
Roger Levett

not registered

11/07/2004 23:45
Roger Levett

not registered

pension

Have had dupytryns diease for a number of years in hands and feet. Am now trying for a disability pension, has anyone tried for one out there. Typing was my life and now I have one finger on each hand is all that's left. and painfull.

11/29/2004 23:09
diane 
11/29/2004 23:09
diane 
digit widget

Has anyone had surgical follow up using a devise called the "digit wigit". It attaches to a surically implanted pin and puts tension on the joint during healing to hopefully result in straighter longer lasting healing.

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awareness   clasified   dupytryns   Approximatly   arthritis   indenting   started   fingers   hopefully   surically   implanted   contractures   diagnosis   straighter   contracting   disability   available   Information   inexpensive   misdiagnosed