Joshua,

I will share the info., but I don't know if we're on the right track or not, be it Dupuytren's, Peyronies, plantar fibromatosis, or anything else for that matter. But I hope and pray that we are close. Thing is, I am ABSOLUTELY convinced that the answer to this and most other diseases is "out there" somewhere. We just have to find it (and then-the hard part-convincing doctors to try something that they've never heard of before). I do know know that they are looking at all kinds of vitamin D analogues (especially ones that are anti-proliferative), but don't have the problems with hypercalcemia.

Frank

My maternal grandfather had it. My mother had it. My sister-we have the same mother but different fathers- has it. I have it in both hands, one foot and my penis. There may be other factors that contribute and exacerbate the disease but you need to start with the genes. My doctor in conjunction with a medical school is trying to isolate the gene by taking dna samples of all his DC patients and their relatives. I beleive only then will we have any hope of some kind of prevention or cure.

My grandmother had arthritis in her hands but as far ar I know I am the first DC sufferer in my family. I believe that for me it is linked to a ring I wore constantly for years, not realizing that with the passage of time my finger had gotten thicker & I was cutting off the blood supply to it. The first sympton was what felt like tendonitis in that finger & the inability to fully exxtend it. I have had this before in other fingers (tendonitis)& it eventually went away. However, this time I got the nodule in the palm & my doctor told me the diagnosis. She said there is no connection with the too-small-ring but I have a hard time believing it.
Do others of you suffer from tendonitis in the fingers or arthritis?

After several doc visits, we believe I have Duppys. Considering my age, I am quite scared. Is anyone out here my age with it? Irregardless, how do you cope with it? I will take any advice!! Thanks in advance.

Here is a list of the main doctors who do NA:

Dr. William Bourland,
The Hand Clinic
1048 Cresthaven Road, Suite 400
Memphis, Tennessee 38119
Phone: 901.259.1600
bourland@orthomemphis.com

Dr. Keith Denkler
275 Magnolia Avenue
Larkspur, California 94939
Phone: 415.924.6010
kdenklermd@hotmail.com

Drs. Charles Eaton and Paul Zidel
The Hand Center
1002 Old Dixie Hwy., Suite 105
Jupiter, Florida 33458
Phone: 561.746.3420
info@handcenter.org

Dr. Gary Pess
Central Jersey Hand Surgery
2 Industrial Way West
Eatontown, New Jersey 07724
Phone: 732.542.4477
handman@doctor.com

The best information on the net can be found at http://www.handcenter.org/newfile16.htm