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11/03/2005 23:54
Wolfgang Wach

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11/03/2005 23:54
Wolfgang Wach

not registered

time to start

Jim H, you posted in another thread

"There's a Lederhose forum on Yahoo where the moderator has been posting about his recent experience with 'cryosurgical' treatment that sounds really promising. Basically the tissue and involved nerves are damaged, in a controlled way, by extreme cold so the condition is no longer painful."

It might be time to start a specific therad for this therapy. I haven't seen any statistics yet but obviously there are doctors available to provide this therapy. Maybe it turns out a valid option.

David (Yahoo moderator who recently had cryo treatment of his Ledderhose) mentioned the site www.footfreezer.com (nice name!). That's the site of the doctor who he went to. Interesting enough this doctor also treats Dupuytren. David himself is not yet sure whether his nodule is contracting (if you look at his pictures bulb might be a more adequate term than nodule). Let's see how this develops.

My concern about using cryo therapy for the hand is the destruction of nerves. While I probably wouldn't care much about losing some nerves of my foot, the hand might be different.

Wolfgang

11/03/2005 23:31
jim h

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11/03/2005 23:31
jim h

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stop the spread?

I have no real knowledge of this technique but its goal seems to be the elimination of pain. Whether it would stop the 'spread' of Dupuytren's from the initial nodules (if it even is a 'spread') is probably an open question.

11/04/2005 23:18
Wolfgang Wach

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11/04/2005 23:18
Wolfgang Wach

not registered

stop the spread?

Jim, I don't think that any of the current therapies stops the spread. Dupuytren and Ledderhose are systemic diseases and all available therapies only treat symptoms.

Classical hand/foot surgery might be a negative exception in that sense that, for some patients (not for all), it even accelerates the spread.

The radical approach of fasciectomy that removes the complete tissue is possibly the only attempt to "solve" the problem. But in my view it is not a successful attempt.

So for the time being we have to live with therapies that make fingers straight, stop the growth of individual nodules or reduce pain. Better than nothing.

Wolfgang

11/19/2005 23:53
Wolfgang Wach

not registered

11/19/2005 23:53
Wolfgang Wach

not registered

Cryotherapy for Ledderhose

Just to give you an udate on the cryotherapy that David had recently on his Ledderhose. He had more than a nodule on his foot, I would rather decribe it as a little egg. After 2.5 weeks the nodule has visibly shrunken in size, possibly by 1/4, though the amount is difficult to judge, even for himself. He had no pain before and has none now. Pricipally croytherapy ought to kill nerves ends and should have the potential to reduce pain (some Ledderhose patients are suffering from considerable pain).

This is not the end of the story. David expects further progress and obviously there is no experience yet with long term results. Cryotherapy, though in use since decades, has only recently been applied to Ledderhose.

For those who are interested in further details, David documents his status prior to treatment, the therapy itself, and his current status, including pictures, on Yahoo's plantarfibromatosis group. It's actually nice to watch a therapy "live" without being involved ...

So far the results look good and eventually cryotherapy might become a good means to treat big Ledderhose nodules. I doubt whether it will be as good for Dupuytren because in your hands you would rather want to keep your nerves alive and Dupuytren very rarely develops such big nodules as Ledderhose.

Wolfgang

12/02/2005 23:21
Wolfgang Wach

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12/02/2005 23:21
Wolfgang Wach

not registered

Cryotherapy

Here is an update on David's recent experiment with cryotherapy of Ledderhose:

"It has been about six weeks and I think I have about a 50% reduction in each foot. Now, the nodules have become hard again. They were pliable for a good while. I am not sure what this means. I feel pretty good about it, but my one worry now is that aggressive re-growth might occur like in traditional surgery. ... I am glad I did it, but obviously better results would have been preferable."

01/07/2006 23:36
Wolfgang

not registered

01/07/2006 23:36
Wolfgang

not registered

Update

An update from Dave who recently had cryotherapy on both feet:

"I am completely recovered from cryotherapy and just did 50 miles of hiking over two days to see how it help up. It is good to be pain free in the enduro business again. I would definately recommend it.

As for me, I am going to try to schedule a follow up treatment soon so I can further reduce the nodules. This isn't perfect, and isn't cheap - but I feel it works. I guess we will see how long it holds up in a year or two."

More details are available on Yahoo's plantar fibromatosis group or on https://www.dupuytren-online.info/ledderhose_disease.html and http://www.dupuytren-online.info/other_therapies.html.

Wolfgang

01/18/2006 23:34
Wolfgang

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01/18/2006 23:34
Wolfgang

not registered

Documenting cryotherapy

We now have approval and published details of the recent cryotherapy of Ledderhose. If you are interested you find it on www.dupuytren-online.info. Go to "Other therapies" and then scroll down to Cryotherapy. The pictures might not be appealing but the outcome is (all's well that ends well).

Wolfgang

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Dupuytren   footfreezer   nodules   elimination   cryosurgical   Cryotherapy   fibromatosis   recently   contracting   obviously   therapies   considerable   accelerates   plantarfibromatosis   fasciectomy   Ledderhose   treatment   Wolfgang   dupuytren-online   Interesting