Sorry, want to clarify one of my statements. I also do not feel that the vaccine would cause DD, but could arouse it, like other factors.

Nan

Hello,

I have now spoke with three (3) podiatrist and the chemist at the compound pharmacy. All had the same story regarding gabapentin and LD/DD.

All have said Gabapentin is an epileptic but not in the way the others are. And if this medication has helped the pain then I should continue the use of it without the worry.

I have also sent an email to Prof S. his reply was. Since I have not examine your hands then I cannot give determination. However if this is helping ease your pain than you should continue its use.

Another question to those who have ledderhose
Do, did, or have you experience itching in the arch of your foot?

I want to thank everyone for their input. Having this site helps to know I am not alone. Its great to be able to compare how this affects others and what they do to help them along.

Hello Potter

No apology necessary. I appreciate your input. It has put me on a massive search. And although all have lined up with each other I still am leery as this is such a nasty disease.
I keep experiencing itching in the arch of my foot. Concern this mean a growth spurt in the 3 tiny bumps that have formed Before I began down the gabapentin road

My understanding of this ... certain vaccines are made with live viruses. Shingles is one of those. So when you get the shingles vaccine, they are actually injected you with a very small amount of the virus. That will then activate your immune system. When that happens your immune systems attacks the shingles virus and creates a level of antibodies against the virus. That will help your body suppress the virus next time it tries to become active.

If you have an autoimmune disease, your immune system is already compromised. So when you are exposed to any type of illness it's more difficult for your body to fight off that illness. Your immune system just isn't working up to par. Due to that fact, you have to be careful when taking any vaccine that uses a live virus. Receiving a vaccine that contains a live virus will mean that you have a higher chance of actually contracting the disease you're being vaccinated against. Does that make sense?

I have systemic lupus. My immune system is compromised. I have to carefully weigh the pros and cons if I want to receive a vaccination.

~ dawn

Hi all. I know this is an old thread, but I wanted to see if anyone knows of new information regarding gabapentin and DC? Both of my hands have contracted fingers. Started back in 2008 with my left hand pointer, middle & ring fingers. Had my 1st surgery in 2009 with great success in pointer & middle fingers but not my ring finger. Had 2 more surgeries to try to keep ring finger from contracting any further with the last surgery being in 2021. Was not successful and the finger is at a little more than 90 degree contraction. Had to have my wedding ring cut off for that final surgery. Learned to live with it and no further issues until late 2023 when my right hand started to show signs of DD and progressed so very quickly. Had surgery on pointer & middle fingers in April of 2024. The ring finger had started showing signs of contracture and was going to have that finger treated with the other 2, but doctor couldn’t get to it during surgery as she said there was so much removal she had to do on the first 2 fingers and time would not allow for her to get to it. Again, it was not as bad as other 2 fingers. Had 2 rounds of RT after surgery on both hands with last round in September of 2024. The RT seemed to be doing its thing but the first 2 fingers began to contract again, but the ring finger that didn’t have the surgery on started to straighten to almost completely. Also just recently, about 4 months ago, the contracted ring finger on my left hand released a little - enough where I could get my wedding ring back on (it was sized up to get over the knuckle after the final surgery back in 2015). Was kinda crazy. I have not had any pain or problems with my left hand since RT. However, my right hand continues to worsen and I am in pain pretty much daily, but no more contractions- just pain. I’ve been on Gabapentin since 2024 to help with the pain, which sometimes I think it helps and sometimes not. I’ve also had serious pain in my elbow & lower arm, which I feel is associated with DD but neither my hand surgeon or Oncologist thought it had anything to do with DD.
My question is if there have been any recent changes or updates about Gabapentin possibly affecting the disease? I’ve seen bits and pieces of information about it, but nothing solid. I’ve started tapering off the medication but I feel as if the pain is worsening. If the medication isn’t good to take with DD/DC, then I certainly don’t want to take it. Any thoughts and/or advice would be greatly appreciated! This disease just has so many unknowns even though great strides have been made over the years.
I am a 55 year old woman, had partial hysterectomy in 2002, with 1 ovary remaining. In 2020, I had to have the other ovary removed and started estrogen. I also had lower back surgery in 2020. Thank you