StephenJeffrey,
In re-reading some of the older posts about the reaction to Xiaflex...came across this one, for example:


04/15/10 22:20
Lars
not registered
Re: Xiaflex information
Sandy,

My trial experience worked out fine. I had about a 25 degree contracture of my right hand middle finger. The cord is in my palm. The trail consisted of up to three injections. Unfortunately I received the placebo all three times. After the trial ended I was able to receive the Xiaflex. I received the injection into three parts of the cord (you will know immediately that you received the drug and not a placebo - redness, swelling, and in my case bruising up my arm to my arm pit). The next day the physician was able to tear the cord at one of the injection sites. Two tries (some pain & discomfort). It is an interesting experience in that you can hear the cord tear from across the room. It sounds something like the sound you would make cleaning out the seeds and strings from a pumkin. The finger staightened out completely (some tenderness for a couple of weeks) and is still straight almost two years later.

I have two other cords in my right palm leading to my ring finger and little finger, but at the time the contractures weren't enough to receive any more injections and manipulations. As they have slowly contracted in the last two years I am probably close which resulted in my calling the clinic to get the update. If insurance covered it I probably would have gone in for injections again. I have good insurance (no deductible or co-insurance, just an office visit co-pay).

I have read on this site that there is a physician at the Mayo Clinic in Rochester who does NA. I will check him out.

Lars

Edited 01/11/12 17:56

Hello,
My therapy was for surgery. I did almost exactly as you (exercises and night splint) for two sessions. I did the therapy on my own and my procedure turned out great (zero contracture after 10 years). My surgeon agreed with me that I could do the therapy on my own, but that I had to do it and not get lazy. It was no problem for me to do it during the day as part of my daily life.