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10/12/2011 11:24
afoxy 
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10/12/2011 11:24
afoxy
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Information
Hello,
About 4 years ago i started to notice a lump in my right foot, which has got considerably bigger over time, and i did not really take to much notice of it.
About 1 year later i noticed the same on my left foot again i did not worry to much. I thought as i do a lot of sport especially Rugby and running that it was die to this and it was a bit of gristle or something.
About 18 months i decided to go to the doctors about them because i had 2 lumps on both feet and they started to hurt a little.
When the doctor saw them he thought he knew what it might be and referred to a specialist at the hospital, upon seeing the specialist he confirmed after a long consultation in which time he kept looking at my hands and asking if i had them anywhere else that i had Dupuytrens on both feet.
When he told me about them and what they may or may not be able to do i was a little worried.
They informed me that they are currently looking into injections but it is currently in test stage, but there is an operation to remove them but only if very necessary.
It has been nearly 1 year since my visit, and they have definitely got larger and are more painful.
They do not hurt during day to day activities but i have found my Achilles are very tight now until i have stretched them every morning or before sport.
Does anyone know what treatments are out there currently and what they can do, the radiotherapy treatment worries me a little though. How big to these lumps get to and is there anything that can really aggravate them.
Any information would be good
Many Thanks
Andy
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10/12/2011 15:44
LubaM. 
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10/12/2011 15:44
LubaM.
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Re: Information
Andy,
From what you describe you have Ledderhose on your feet, and the reason the doctor looked at your hands is because Ledderhose and Dupuytren's in your hands usually go together. I had Radiation for two, hard, marble-size nodules in my left foot, right in the middle of the arch. They were painful and there was a constant sensation of burning and itching. My radiation was in November 2009 at Scripps Hospital in LaJolla, California with Dr. Tripuraneni. After 2 yrs. the nodules on my foot are in remission, they are almost 90% gone.
In my opinion, surgery on my feet would be the absolute "last" resort.....Read all you can on this Forum under Radiotherapy, and then come back here with more questions.
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10/13/2011 00:44
callie
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10/13/2011 00:44
callie
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Re: Information
I agree with LubaM., surgery is a last resort. I have had lumps/nodules in my arches for about 12 years. Mine were very painful when walking in sand and walking barefoot (especially up stairs). I was quite active at the time. Since then I have made sure I had shoes that felt good and didn't do things that stretched the arch. I had burning sensations when I stretched the arch and felt like I was damaging the nodules. For about the last seven or eight years I have had no problems with the lumps. They are there but by knowing the situation they have been no problem. I have Dupuytren's in my hands.
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10/13/2011 01:27
gjf0635
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10/13/2011 01:27
gjf0635
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Re: Information
I have it in both my feet and in my hands it's not fun!! I am looking into radiation in OKC. I just got all my paper work from them yesterday. My left foot is the problem and it hurts to walk and my hands are getting worse.
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10/13/2011 14:35
LubaM.
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10/13/2011 14:35
LubaM.
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Re: Information
Callie is correct...I forgot to mention that wearing comfortable shoes (like well padded sneakers) most of the time is very helpful. The idea is to protect the nodules on your feet from contact with hard surfaces. Before the radiation treatment, I found that I could not walk barefoot. I "live" in my Nike sneakers and wear padded SAS sandals when not wearing sneakers...but also, my foot is so much better since the radiation treatments, nodules are almost gone!
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10/13/2011 23:44
Christl 
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10/13/2011 23:44
Christl
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Re: Information
I just had radiation on both hands in Germany, also have LD in both feet. Prof. Seegenschmied did not want to do RT on them yet, maybe I never have to. I do not have problems with my feet. He told me to walk barefoot, walk in the sand. Roll those spike balls on my feet -the spiky balls seem to irritate my nodule, just an observation -.
Chirstl
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10/14/2011 03:05
callie
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10/14/2011 03:05
callie
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Re: Information
Wow !! I can't believe that advice. I am confident that if I would have followed that advice I wouldn't be walking now.
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10/14/2011 05:31
wach  Administrator
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10/14/2011 05:31
wach Administrator
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Re: Information
Callie, I believe that you always ought to be careful with such advices because everyone is different. Several people with Ledderhose reported on this forum that walking in the sand, dancing or massaging significantly improved their condition. At the same time other patients report that their feet hurt far too much to do that. It really depends. You have to watch yourself and see what does you good.
Wolfgang
callie:
Wow !! I can't believe that advice. I am confident that if I would have followed that advice I wouldn't be walking now.
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10/14/2011 21:57
callie
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10/14/2011 21:57
callie
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Re: Information
Wach,
Thank you for your thoughts. That is why my comments were about my situation and only my situation.
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10/14/2011 22:09
callie
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10/14/2011 22:09
callie
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Re: Information
This is characteristic of almost all of the information I have read about the treatment for Ledderhose:
Treatment:
"Although the origin of the disease is unknown, there is speculation that it is an aggressive healing response to small tears in the plantar fascia, almost as if the fascia over-repairs itself following an injury.
In the early stages, when the nodule is single and/or smaller, it is recommended to avoid direct pressure to the nodule(s). Soft inner soles on footwear and padding may be helpful."
This is consistent with my experience. The "burning sensation" that I felt when exerting my arches was most likely the "small tears" I was feeling in my plantar fascia.
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