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11/05/2014 16:14
DanaAnderson
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11/05/2014 16:14
DanaAnderson
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Ist treatment
okay, so my pinky is bent at 90 degrees. The Dr. recommended a "joint jack". So monday I get measured for it and I'm suppose to wear it only during sleeping hours. I guess my question is, has this seemed to work for anyone? He said it would take time to straighten the finger as the joint is now mis-aligned. He mentioned that he doesn't recommend the NA as it is too expensive and difficult to obtain the medicine. He also said surgery is out of the question ("you could lose your finger"). Of course I'm dealing with the Veterans Administration hospital and while he said that he's seen "a lot of these", I just wonder if this joint jack thing is a good start?
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11/05/2014 16:48
Stefan_K.
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11/05/2014 16:48
Stefan_K.

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Re: Ist treatment
Hi Dana. I am not a doctor, just another patient with Dupuytren contracture who got his pinky straight with successful NA in 3 minutes at the cost of two metro tickets (less than 4 (four) US$), thanks to my location and the expertise and social security system here in France. Others may have other valuable input especially if you give a more detailed description of any nodules or cords.
My first reaction, unless there was a misunderstanding, would be to go see another doctor if yours actually mentioned medicine and its cost as a reason for not recommending NA, because all needle aponeurotomy takes is a needle with a local anesthetic and a trained and skilled doctor, see http://www.dupuytren-online.info/needle_aponeurotomy.html.
I cannot speak to a "joint jack" as I have not heard of it but from your description I am sceptical about its usefulness for Dupuytrens contracture.
With a little reading on this website and other feedback you will hopefully get here you should be well informed by the time you see your doctor on Monday and able to ask the right questions before getting into any treatment.
When talking about expensive medicine, your doctor may have been thinking about the injection of XIAFLEX enzyme to weaken the cords instead of with the needle used in NA (http://www.dupuytren-online.info/dupuytren_collagenase.html), although I have no idea of its cost as a "medicine". I would be interested in hearing more about his reasons for discounting other treatmens as to expensive because of medicine.
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11/05/2014 16:58
wach  Administrator
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11/05/2014 16:58
wach  Administrator
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Re: Ist treatment
Hi Dana, there might be a misunderstanding: Needle Aponeurotomy (NA) is a technique to get a bent finger straight http://www.dupuytren-online.info/needle_aponeurotomy.html. It's not a medicine. Your doctor may have meant Xiaflex, which is am enzyme (collagenase) that is injected into the cord to get a finger straight http://www.dupuytren-online.info/dupuytren_collagenase.html . If your doctor is not recommending surgery, collagenase or NA would be the alternatives.
Wolfgang
DanaAnderson: ... He mentioned that he doesn't recommend the NA as it is too expensive and difficult to obtain the medicine. ..
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11/05/2014 17:24
Alan_Hepburn
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11/05/2014 17:24
Alan_Hepburn
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Re: Ist treatment
Hi Dana,
Which VA facility are you dealing with? In the past I've had my DD dealt with by our local Kaiser hospital, but I switched over to VA for my health care last year. I haven't asked my doctor about DD expertise yet, but I know I'll have to investigate it in the future - I use the VA in Palo Alto, Ca.
As for the joint jack, when I had my first surgery the surgeon was unable to get my ring finger to straighten out because the PIP joint had become fused. The PT prescribed a contraption that attached to my hand on either side of the PIP joint, using velcro. It had a screw mechanism that was supposed to put pressure on the joint to straighten it out. I had to wear it for an hour at a time, constantly turning the screw every 10 minutes to force the finger straight. It didn't work. I guess once the joint fuses there's not much you can do about it.
I had NA done at Kaiser several years ago on my other hand and it seems to have helped - the finger that was affected can be straightened and used, but I can still see the affected area in the palm - NA apparently doesn't remove the cords, it just breaks them.
Alan Hepburn San Jose, Ca, USA
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11/06/2014 20:11
Tusk
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11/06/2014 20:11
Tusk
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Re: Ist treatment
Is your doctor a hand surgeon (board certified ASSH) or just an orthopedic surgeon? You want someone with expertise and experience in treating the disease. The joint jack you mention will not correct a contracture, especially a severe one like 90 degrees. If it were that easy we would all be wearing one and this board would probably not exist.
I would get another opinion. You can check here: http://handcare.assh.org/Find-a-Hand-Surgeon.aspx If it were me, I would try and find an experienced doctor to evaluate for NA. Some have also been helped with Xiaflex.
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