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2young2bnpain
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04/21/2010 22:37
footsymomma 
04/21/2010 22:37
footsymomma 

2young2bnpain

April Thomley,
Hey! I was just diagnosed with this illness and would like any information that anyone could give me. I am 26 years old and I have suffered with "knots" in the arches of my feet since I was 18. I keep reading that this disease is mostly male and mainly over 40. Well that doesn't make any sense to me. Almost my entire family has this; my mom, grandmother,great grandmother, great great grandmother, uncle, and my little sister is getting small ones coming up now. Until now we were completely ignorant to this disease, we knew it was an inherited illness but no one wanted to risk the dangers of surgery. We also live in a rather rural part of Alabama and I don't mean to sound negative but we had a lack of faith in the local doctors. My knots are very painful, I just had the one on my left foot removed because it was causing a lack of movement in my ankle. I had it removed a little over a month ago and so far so good. If you suffer or have suffered from this please feel free to share any information you may have. I have so much trouble working with this illness and I am curious to know if I could get disability benefits to help me support my family. If you have any knowledge in this area please share. Thank you.

04/22/2010 07:13
newman 
04/22/2010 07:13
newman 

Re: 2young2bnpain

Hi Australia Calling.Unfortunately when ones takes an average age- the average takes into account the very young and the over the hill as the young may think to obtain the average age. When I was in Essen Germany in 07 receiving Low dose radiotherapy for the treatment of Dupuytrens and Ledderhose a 12 old girl had just been treated for Ledderhose by RT. Last year I returned for a follow up- for statistical reason a 16 yr Old French Boy was receiving the RT treatment for Ledderhose. I had the nodules in the arch and a large lump on the ball of my other foot treated with low dose RT. You mention having surgery on your heel . Are you sure it was not 'heel spur' ? It is important to be diagnosed correctly. The medical people have been slow to embrace this treatment here in Australia. The Germans treat approx. some 40,000 patients for 29 Non Malignant Diseases annually with low dose radiotherapy. I have seen on the forum that this method of treatment is slowly being accepted both in the US and little America.(Australia.) Regards from down under.

Edited 04/22/10 10:16

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