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From DD to Ledderhose
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05/15/2014 02:21
MikeNinerSeven 
05/15/2014 02:21
MikeNinerSeven 
From DD to Ledderhose

So I am a 55 year old male. I "got" DD in my left hand about seven or eight years ago. I have about a 12 degree contracture in one finger. So, not so bad. I did see a surgeon who is very good and he said he could do an NA. I asked about other treatments and he said basically that none of his patients did RT and the enzyme was doable in the US and expensive. (I am in Canada.) So I did nothing. Well, I did quiet drinking for the most part. I have less than one drink a month but have twice exceeded that, four drinks in four hours and two drinks in one night. That is over about three years.

I did not lose weight however. I am about 325 pounds.


So about a month or two ago I noticed that minor DD had shown up in my right hand. You guessed it. I also felt a thick pad under the pad of the front of my left foot. I have now found two sore points on the inside of my left arch and a thick "flat marble" between the big toe and the next toe. This is making walking difficult at times.

The DD is not affecting my quality of life. Very slow progression, I can get NA. It is the left foot that is the concern. I am looking at RT. Are there things I should be doing to minimize the progression in the foot in the meantime? (I am now losing weight.)

I would really like to know what triggered this. Possible things below.

Thanks,
MikeNinerSeven


Possible causes for second apperance:

* swimming with fins and causing tight calf muscles (then why appear in the right hand)
* 10 pound weight gain
* the two times in the last six months I drank beyond one drink
* the use of stair climber machines from January to April
* the chocolates I ate in February
* I just started to use a bipap machine (okay, I am clutching at straws .....) I felt better so I exercised more
* in January we started to walk one a week to build up from 45 minutes to 1 hour 50 minutes as we are going to Europe and will walk alot there

Edited 05/15/14 05:29

05/15/2014 04:58
wach 

Administrator

05/15/2014 04:58
wach 

Administrator

Re: From DD to Ledderhose

Hi Mike,

the root causes and initial disease development of Dupuytren and Ledderhose disease are not yet understood and therefore it is impossible to say what ultimately caused your new nodule in the foot. An occasional glass of wine likely did not contribute. I guess it just happened.

Suffering from DD and Ledderhose myself I agree that Ledderhose might be affecting life more than DD. You can avoid using your hand or work "around" a bent finger but it's not possible to avoid using your feet.

Irrspective of Ledderhose or Dupuytren's it might to you good to reduce weight. Keep doing that and it will surely improve your quality of life. In parallel you can keep Dupuytren's under control with NA and Ledderhose with RT.

Wolfgang

05/15/2014 09:09
MikeNinerSeven 
05/15/2014 09:09
MikeNinerSeven 
Re: From DD to Ledderhose

Thanks for the quick response.

I am curious, why RT only on the foot and not on the hands and foot?

Thanks,
MikeNinerSeven

05/15/2014 09:29
wach 

Administrator

05/15/2014 09:29
wach 

Administrator

Re: From DD to Ledderhose

RT works on both, hands and feet, but to have a good chance for success you need to irradiate the nodules early. If a finger is already bent, it's too late for RT http://www.dupuytren-online.info/dupuytr..._therapies.html .

Wolfgang

05/15/2014 16:40
cilla 
05/15/2014 16:40
cilla 
Re: From DD to Ledderhose

The thick 'flat marble', I would be cautious of.

I had similar, in the same position, and after having one round of RT a foot specialist diagnosed it as metetarsalgia there, (I have a hammer toe there.)

Maybe that is not Ledderhose.

05/15/2014 19:38
MikeNinerSeven 
05/15/2014 19:38
MikeNinerSeven 
Re: From DD to Ledderhose

Thanks for the thought. I will try and have a podiatrist have a look at it before I head off.

The reason I do think I have some Ledderhose is there are two small bumps close together on the inside of my left arch. They are tender and attached to a tendon. This to me is Ledderhose. They appeared when the DD appeared in my right hand.

The "stuff" on the bottom of my foot has thickened the sole of my foot in a pathway directly under a tendon that runs from approximately between my big toe and the one next to it. It feels like a thick pad under the left hand side of the ball of my foot. When I run my fingers over it there is a hard protrusion between the toes which is not in the other foot. This may or may not be Ledderhose. It could have come from wearing hard soled boots on my once a week long walks. The toughening of the skin however does run under a tendon so I am suspicious.

Does the doctor in Germany not distinguish or look to confirm Ledderhose before RT?

Thanks again,
MikeNinerSeven

05/15/2014 20:42
cilla 
05/15/2014 20:42
cilla 
Re: From DD to Ledderhose

I've got Ledderhose in the arch of the left foot. I had it in the arch of my right foot in 2005. I had surgery.

A foot surgeon still thinks the bit under my right foot that feels like a pebble is not Ledderhose. (Also have D in the hands by the way)

Didn't find that out till between 2 lots of R/T.

A podiatrist locally had never seen a lump like under my right foot (that's when they operated, not really advised these days) so he wasn't much use.

I don't want to continue discussion on this forum about treatment, but felt I wanted to warn you to double-check this.

05/15/2014 23:52
MikeNinerSeven 
05/15/2014 23:52
MikeNinerSeven 
Re: From DD to Ledderhose

Thanks! I am now using gel inserts and the feet do feel better. I will also get the "flat marble" checked out before I have any treatment done.

MikeNinerSeven

05/19/2014 14:42
Jolene 
05/19/2014 14:42
Jolene 
Re: From DD to Ledderhose

I had RT. Both rounds on left foot. Completion was 8 months ago.

Since then, The ball of that foot and the large toe of that foot feel thick. As though the fascia in the area has thicken. There is not a definite hard nodule like in the normal cases. The area between the large toe and the next toe is much thicker and noticeable.

I went to podiatrist last week. He did an ultra-scan and is not convinced that it is a form of fibroma. I assume because there is no hard nodule like 'normal' fibroma. He said it was possible but very rare.

I am scheduled for MRI on the 29th. If the fascia is thickening due to excess fibrotic tissue then I am hoping radiation. Podiatrist said he did not think it would show in the MRI.
It sure feels like fibroma to me.

I share this because I am beginning to think that some of us may not fall into the so called 'normal' fibroma. The difficult part of this is it is already hard to find a knowledgeable doctor on the 'normal' type of fibroma but to find one who can help with the odd cases is near to none.
Anyways I just wanted you to be aware that you’re not alone. Others in your particular situation are experience the ‘not normal’.

05/19/2014 17:56
cilla 
05/19/2014 17:56
cilla 
Re: From DD to Ledderhose

Just to add, as Mike mentioned tight calf muscles. I have also been instructed to do some exercises to alleviate tight calf muscles, which should also help the metatarsalgia (which means the pain where the metatarsal bone in the foot has got angled a bit, and the head of the bone gets too close to the sole of the foot and causes discomfort).

It can feel like a lump of tissue.

If one's calf muscles are tight , it means that the heel is not taking its share of the weight of the foot, and too much weight goes onto the sole of the foot, so it adds to any pressure or pain if there is any abnormality there.

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