Hi cyclist

Me too! First round next month.

For hand DD, at least.

My left foot hurts too with PF but I can't detect any lumps.

I too will provide some feedback that I hope is useful to others.

Best wishes (to us )

Good luck! I found it a relief when I made my decision to get RT. Will look forward to your reports.

Thanks for your thoughts Lori and Flojo

Flojo - I felt the same sense of relief you describe once I'd made the decision to go with RT. The pain is somehow easier to deal with knowing that there's a good chance it will improve or at a minimum stop progressing.

All the best
Di

Diane

I have had an email discussion and consultation with Prof Seegenschmiedt. I sent photo's and a history of the condition.

He agreed I was a candidate for a physical examination, and RT thereafter if indicated.

The RT will be the regime of once a day for five days and then repeated three months later.

So you need to stay in Germany for at least five days, if treated. The Professor gave me a choice of some dates so I could fit it in around work and family.

Best wishes

Congratulation to both of you !

You will not regret your decision: Prof. Seegenschmiedt is the top capacity for the LED and DUP condition.

He will be able to examine your feet and hands and provide a perspective for the long-term development.
They also use magnetic resonance imaging to visualize the size, depth and involvement of deep structures,
if necessary

The PROF will not do, what may have time to wait and he will not do, what is gone to far - he uses the
"Corridor of Active Disease" in which he sees the best approach to inhibit the basic activity of fibroblasts
- that's aleast what he explaned to me, and at least for my feet it worked very well - the ugly pain has
completely disappeared, the nodules in the foot soles are down by over 50% in size, and no side effects
from the radiation (may be a little dryness on the foot sole !). I was very pleased with this result after
a long odysee of unprofessional activities from several medical disciplines

In addition: HAMBURG is really a top choice to spend a week, lot's of culture, events, history, art, music ...

Please keep us further informed about the process of treatment and take pictures of what is done ... Larry