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Plantar fibromatosis and plantar facisitis
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02/20/2010 21:01
footy 
02/20/2010 21:01
footy 
Plantar fibromatosis and plantar facisitis

Hi All, I suffer with plantar fibromatosis which is hereditry from my dad, and also really bad plantar facistiis. Its very painful to walk and I am worried. I do not know if I will be able to have a normal operation for plantar realease which I have been advised to. Im just worried about having the fibromatosis which may make it difficult. Any suggestions. Thanks

02/21/2010 01:18
Wolfgang

not registered

02/21/2010 01:18
Wolfgang

not registered

Re: Plantar fibromatosis and plantar facisitis

Hi footy, even if you had surgery it's not sure it won't come back and maybe even more aggressively than before. Have had a look at the Ledderhose pages of this site (on the left menu)? They might provide useful information. For Ledderhose radiotherapy seems to be a viable way to treat it without surgery, possibly this might be an option for you, too. Others might be injection of cortizone or cryo. You need to consult a doctor who is familiar with the various treatment possibilities. In the mean time keep walking, for most of us keeping the feet busy seems to reduce pain.

Wolfgang

02/21/2010 08:57
footy 
02/21/2010 08:57
footy 
Re: Plantar fibromatosis and plantar facisitis

Hi Wolfgang, Thanks for your info. However I was advised that maybe I may have to have an operation for plantar facsitis not plantar fibromatosis. My foot is really tight apartently and when I walk it becomes very painful if I walk over my limit. I was advised to not have any operation for plantar fibromatosis as its reallly the heel that causing most of the pain. I think I have some form of rheumatism also becasue when its cold weather my foot is very painful. I am now waiting to go another hospital as I have moved areas, I think this hospital deals with bones etc. So I will just wait and see what they say. Anyone else have any info please help! Thanks ps I have also had a cortisone injection for my heel, thats why now they are considering surgery for the plantar faciitis, pain in the heel. Its called a plantar realease operation.

Edited 02/21/10 11:01

04/11/2010 21:15
LubaM. 
04/11/2010 21:15
LubaM. 
Re: Plantar fibromatosis and plantar facisitis

Footy....

It must be so annoying to deal both with plantar fibromatosis and plantar fasciitis on the same foot...I have both, but my plantar fasciitis is in remission...I've had it for years and when it flurs up it can last for months and months...just be patient.

For my plantar fasciitis I've had multiple cortisone injections in my heel (but be careful you shouldn't have more than 3 cortisone shots in a year), but I would rather suffer from the pain than consider surgery for it...from all that I have read about surgery of any kind on your foot, the recovery is hard and long.... and recurrence is very probable anyway in Ledderhose as well as plantar fasciitis, since its a disease that never goes away, but only goes into remission...

For me, stretching exercises have shown to be very effective for my plantar fasciitis when its active. Also icing the foot after you stand on your feet or walk alot is a must. Have you tried wearing a special night splint (like a very heavy boot)...the idea is to keep your foot at a 90 degree angle at night, and you must strech the back of your leg before putting the foot on the floor in the morning.

My two nodules (plantar fibromatosis) ...I treated them with radiation therapy...very effective...the nodules are much softer and much smaller...

I've been a plantar fasciitis sufferer for many years, feel free to ask questions....

06/02/2010 11:48
Pearl 
06/02/2010 11:48
Pearl 
Re: Plantar fibromatosis and plantar facisitis

I had severe plantar facisitis in both feet 13 to 14 years ago. I tried everything except surgery and then one doctor said get fitted for a really good pair of orthodics and start walking. I did and never looked back . With time the pain was gone. So the adivce you had about keeping the feet busy worked for me. The pain for this condition is in the heel.
Although no one here seems to be able to diagnose it I have symptons of Ledderhose but am still walking.
I was diagnosed with Dupuytrens.
Pearl

07/10/2010 10:43
lola 
07/10/2010 10:43
lola 
Re: Plantar fibromatosis and plantar facisitis

Hi,
50 year old diabetic, sleep apnoea UK had plantar fas in heels couple years ago 'cured' with insole/ice/exercise. Now got lump under foot...diagnosos so far fibroma...awaiting scan. Cannot believe pain/speed of onset so far and how debilitating this is...not to mention horrors that lay in future. Work full time...worried sick about future. Any advice welcome.

02/10/2014 02:20
Wes_Cleaver_Sr 
02/10/2014 02:20
Wes_Cleaver_Sr 
Re: Plantar fibromatosis and plantar facisitis

footy:
Hi All, I suffer with plantar fibromatosis which is hereditry from my dad, and also really bad plantar facistiis. Its very painful to walk and I am worried. I do not know if I will be able to have a normal operation for plantar realease which I have been advised to. Im just worried about having the fibromatosis which may make it difficult. Any suggestions. Thanks

I have the big three, Pyrones disease, Duypetrones and fibromatosis.

I have tried many different treatments, injections, orthonics but to be very honest. the only thing that gives me any relief is a freezing gel " rub it on and within minutes the plain is substancial gone.

03/20/2014 11:58
ellenpao 
03/20/2014 11:58
ellenpao 
Re: Plantar fibromatosis and plantar facisitis

I had cryo, and the heel pain is totally gone! Bilateral LD and DD - the cryo worked great on getting rid of the heel pain. I won't lie though - the numbing shotes hurt like $%%*(

03/22/2014 07:05
Tamarakruse 
03/22/2014 07:05
Tamarakruse 
Re: Plantar fibromatosis and plantar facisitis

I have pain all over my feet, not just where my lumps are, but do not have the plantar facisitis, according to doctors. Is this normal for ledderhose? I don't know. But to keep walking is not good advice for me, as it is after being on them too much that I can no longer walk at all. So I would say the opposite, keep off them. And could the person that mentioned cryo say if this was tried for fibromas, or facisitis.

Tamara

05/24/2014 22:38
Lisa617 
05/24/2014 22:38
Lisa617 
Re: Plantar fibromatosis and plantar facisitis

I have suffered from plantar fasciitis for 20+ years. I have spent thousands of dollars on orthotics and shoes and NOTHING has helped. I had surgery on my hand last year for Dupuytren's and I knew the knots were also growing in my feet. I have had many cortisone shots in both feet for the plantar fasciitis, but the Ledderhose disease I have not had anything done yet. The pain is so bad it wakes me up in the middle of the night. I have seen MANY doctors that all said they wouldn't touch me. My only option was to find a train track and let a train cut my feet off. Yes, the pain is THAT bad. Then last week, I FINALLY found a doctor that said he would help me. I go for an MRI (first one ever offered in 20+ years) and he talked that because of me having both conditions really bad that my option at this point is to remove the entire plantar fascia along with all the knots.
My job requires me to be not only on my feet 7 1/2 hours out of an 8 hour day, but constantly walking (production work). I cry every day at work, I can't take it anymore.
Has anyone ever received Social Security Disability for the conditions of Duypuytren's and Ledderhose disease?

I had when I hear of others that suffer from this, I know exactly what you are going through. I just hate the fact there is no cure or at least an easy and quick fix.

Lisa

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aggressively   fibromatosis   debilitating   fasciitis   Seegenschmiedt   operation   substancial   cortisone   radiotherapy   considering   Plantar   suggestions   possibilities   orthordics   facisitis   surgery   Ledderhose   walking   injections   conditions