| Lost password
89 users onlineYou are not loggend in.  Login
New from Ohio - doctor recommendations?
 1
 1
01/07/2016 18:08
Ropal 
01/07/2016 18:08
Ropal 
New from Ohio - doctor recommendations?

Hello, thanks for allowing me to join!

My husband had surgery for lumps on the bottom of one foot that recurred, and when they operated a second time the doctor removed all of the facia in the arch of his foot - it was a rough surgery, with a long recovery. Lumps occurred in the other foot, and he had a less invasive surgery to remove those last summer, but I honestly expect them to grow back. I suggested that it might be Ledderhose, due to others in his family with similar problems. (He is of German descent.) Two podiatrists said the nodes were of a type consistent with Ledderhose, but that it didn't prove that he actually HAS Ledderhose. (??)

It has moved to his hands. Now, he has very similar and fast-growing lumps that have appeared in the base joints of 2 fingers of his right hand (middle and ring). He also appears to have knuckle pads on the backs of several fingers (both hands).

I have suggested to both his family doctor and his podiatrist that this might be Dupuytren, and related to his foot issues, but they don't seem to be aware of the syndrome at all. So... I guess my questions are:
1. What type of specialist should we be asking to see? Hand surgeon? Orthopedist?
2. Does anyone have a recommendation for a doctor in Ohio?

01/07/2016 18:19
spanishbuddha 

Administrator

01/07/2016 18:19
spanishbuddha 

Administrator

Re: New from Ohio - doctor recommendations?

Ropal:
Hello, thanks for allowing me to join!

My husband had surgery for lumps on the bottom of one foot that recurred, and when they operated a second time the doctor removed all of the facia in the arch of his foot - it was a rough surgery, with a long recovery. Lumps occurred in the other foot, and he had a less invasive surgery to remove those last summer, but I honestly expect them to grow back. I suggested that it might be Ledderhose, due to others in his family with similar problems. (He is of German descent.) Two podiatrists said the nodes were of a type consistent with Ledderhose, but that it didn't prove that he actually HAS Ledderhose. (??)

It has moved to his hands. Now, he has very similar and fast-growing lumps that have appeared in the base joints of 2 fingers of his right hand (middle and ring). He also appears to have knuckle pads on the backs of several fingers (both hands).

I have suggested to both his family doctor and his podiatrist that this might be Dupuytren, and related to his foot issues, but they don't seem to be aware of the syndrome at all. So... I guess my questions are:
1. What type of specialist should we be asking to see? Hand surgeon? Orthopedist?
2. Does anyone have a recommendation for a doctor in Ohio?
You should see a hand specialist. They might advise wait and see then surgery, although if the condition does progress in the hands to a contracture there are less interventional options before surgery.

We list doctors in Ohio performing NA, and even though your husband may not have a contracture, the doctors should be able to diagnose and provide advice.
http://www.dupuytren-online.info/NA_list_North_America.html

RT is the only preventative option, if done at the right time, that is the disease is active with new nodules and growing cords.

Surgery for LD on the feet, is hardly ever advised by a competent doctor experienced in LD. It really is the option of last resort after other options have been exhausted. More info on our website. (Conservative treatments, steroid, RT, Cryo).

01/07/2016 22:40
Doodle 
01/07/2016 22:40
Doodle 
Re: New from Ohio - doctor recommendations?

I have used dr Avery froimson from the Cleveland clinic. He performed na on me. I was very pleased

05/14/2017 17:14
Elainepapakon1 
05/14/2017 17:14
Elainepapakon1 
Re: New from Ohio - doctor recommendations?

I tried to see that doctor at CCF and he retired :(

05/14/2017 22:29
Doodle 
05/14/2017 22:29
Doodle 
Re: New from Ohio - doctor recommendations?

Dr Lacey at university hospital. Also does na. He made the initial diagnosis for me. I used dr froimson for the na based on this site, but dr Lacey has an excellent reputation.

 1
 1
questions   university   interventional   dupuytren-online   podiatrists   preventative   surgery   consistent   Conservative   suggested   specialist   recommendation   Dupuytren   Ledderhose   Orthopedist   fast-growing   podiatrist   contracture   recommendations   experienced