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04/12/2011 09:02
cmb70
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04/12/2011 09:02
cmb70
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New member
Hi Everyone...I'm a new member from Australia. I'm very pleased to have found this forum because I feel quite unlucky in relation to dupuytren's contracture.
I am 40 and first noticed dupuytren's contracture in my right hand when I was 30, now have signs in my left hand as well. My father has dupuytren's and has had surgery on both hands, quite unsuccessfully, and lost his pinky finger on his left hand. My mother also has dupuytren's. My father-in-law has dupuytren's and has successful surgery on both hands. My husband is in his late 30s and also has the first signs of dupuytren's. I don't like our children's chances - I think they will be genetically wired to have it as well!!!
I am hanging out for Xiaflex to be available in Australia. Fortunately the contracture in my hands is not progressing very quickly, so I think I have quite a bit of time before surgery is required.
I'm looking forward to reading through the forums.
Regards Claire
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04/12/2011 11:16
spanishbuddha  Administrator
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04/12/2011 11:16
spanishbuddha  Administrator
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Re: New member
Welcome Claire.
There are a few other Aussie contributors to this forum and I expect you'll hear from them.
Check out all the treatment options on here, and if you've caught it early and active that would include Radiotherapy.
Best wishes
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04/12/2011 15:10
LubaM.
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04/12/2011 15:10
LubaM.
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Re: New member
Claire, Your DD started at a young age, but there are treatments available before you have to think of surgery....read all you can on this Forum about Radiation therapy. There are two clinics in Australia, check out the information under "Treatment" above. Radiation can be very effective in early stages of the disease and can stop the progression.
I had RT in November 2009 and it stopped the progression of my Dupuytrens in left hand and Ledderhose in left foot, in the radiated areas.
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