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New to DC
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02/09/2008 21:00
Roannsh 
02/09/2008 21:00
Roannsh 
New to DC

I was diagnosed with DC about this time last week..
I had no idea what it meant nor what it was.. My
doctor said I needed surgery and to cut back on
my drinking ?? She showed me a few pictures and
off I go.. well I have since found Doctor Terrence
Barry in Florida who found for me the only Doctor
in Canada who does NA.. which is the way I feel
I will go at this time.. But most important I found
this forum ..

I am in the beginning stages and I see now it
is straying to my baby finger.. I am getting all
my ducks in a row for the future .. I would not be
doing any of this except for reading your own
private histories.. I guess I want to say Thank You
to this Forum and to you all for the information you
have provided.. I will stay in touch with my own
personal history as it unfolds..
Sincerely

Oh I forgot to Thank Newman ..
Thank You

    02/14/2008 22:13
    Roannsh 
    02/14/2008 22:13
    Roannsh 
    Re: New to DC

    Well I have a consultation for March 4th.. my
    GP sent me to a plastic surgeon who does not
    do Needle release from the info I got on her
    online. Has anyone gone to a surgeon and
    said the want NA instead of OS.. I'm very
    nervous about the reaction I may get..
    What with EGOS etc.. I have the early stages
    of Dupuytrens in my right hand and another small
    nodule showed up about 3 mths ago in my left
    hand.. I have all the info on the Dr I want to
    see but will need to be refered I hope she refers
    me to him.. Is there a proper way I should Go about
    asking for a referal .. To me it's a no brainer to have
    NA but this Surgical Clinic does not practise it..
    My head is kind of spinning...

      02/15/2008 16:16
      Mike S

      not registered

      02/15/2008 16:16
      Mike S

      not registered

      Re: New to DC

      Well, I too (initially) went to a local (highly regarded) hand specialist/surgeon, for the purpose of confirming my self-diagnosis (DC). He confirmed the condition and recommended open surgery. Relative to NA, he was fairly dismissive saying you can go that route if you want to but it's not sometning that he woud ever consider doing.

      PS: I had NA done by a doctor sourced from the predecessor to this Board and am extremely satisfied with the results. Good luck!

        02/15/2008 22:15
        Roannsh 
        02/15/2008 22:15
        Roannsh 
        Re: New to DC

        Quote:



        Well, I too (initially) went to a local (highly regarded) hand specialist/surgeon, for the purpose of confirming my self-diagnosis (DC). He confirmed the condition and recommended open surgery. Relative to NA, he was fairly dismissive saying you can go that route if you want to but it's not sometning that he woud ever consider doing.

        PS: I had NA done by a doctor sourced from the predecessor to this Board and am extremely satisfied with the results. Good luck!





        Thank you Mike your experience helps me organize
        my thoughts

        I'm thinking I'll contact the surgeon I INtend to see,
        explaining my situation.. My assigned surgeon is highly
        qualified with Dupuytren's surgeory .. I'm sure they're
        aware of each other. I live in Canada and there are not
        very many NA surgeons. I'll do this if she gives me the
        same dismissive attiude you unfortunately received.

          02/16/2008 02:44
          newman 
          02/16/2008 02:44
          newman 

          Re: New to DC

          Australia Calling . Hi Roannsh.
          Rember Dupuytrens is a slow growing disease ,which can become dormant , it can be aggressive or mild, so dont panic. Look at Radiotherapy . I have no experience with NA but it appears that patients have a severe contraction ,when the have this done. Radiotherapy is best in the early stage although I 've recently had the treatment as I had a number of nodules (lumps ) started growing. All the lumps in my right hand have gone and the one remaining on my index left finger had reduced 75% in size and I am hopeful it will continue to reduce.
          Be well informed before going to the medicos. You call the shots and tell your general practioner who you want to be referred to . Don"t be afraid to ask the specialist how may patient they have seen with MD. Download the infor from Seegenschmiedt from the Dup/Society web page and send it off with photos to your specialist before you have your appointment. This alows more time at your consultation. Regards from down under

            02/16/2008 16:54
            Roannsh 
            02/16/2008 16:54
            Roannsh 
            Re: New to DC

            Thank you for your time Newman..
            I am in the process of either faxing or Emailing
            the litriture I have on NA and Raditheraphy..
            Botton line will be whats best in my case regarding
            recovery and the over all benifits of the process I end
            up going with.. I feel more empowered as I read these
            posts.. So thank you both for your time

              02/19/2008 00:15
              gavinp

              not registered

              02/19/2008 00:15
              gavinp

              not registered

              Re: New to DC

              Quote from Newman: Australia Calling. Radiotherapy is best in the early stage although I 've recently had the treatment as I had a number of nodules (lumps ) started growing. All the lumps in my right hand have gone and the one remaining on my index left finger had reduced 75% in size and I am hopeful it will continue to reduce.

              Newman - Hi . I am also from Australia with early stage DC. Did you get your Radiotherapy in Australia or o/s and if in Australia, can you please advise the institute that provided the treament.

              Regards Gavinp

                02/19/2008 07:02
                TrevB 
                02/19/2008 07:02
                TrevB 

                Re: New to DC

                Quote:



                Quote from Newman: Australia Calling. Radiotherapy is best in the early stage although I 've recently had the treatment as I had a number of nodules (lumps ) started growing. All the lumps in my right hand have gone and the one remaining on my index left finger had reduced 75% in size and I am hopeful it will continue to reduce.

                Newman - Hi . I am also from Australia with early stage DC. Did you get your Radiotherapy in Australia or o/s and if in Australia, can you please advise the institute that provided the treament.

                Regards Gavinp



                see this http://www.dupuytren-online.info/Forum_E...ma=196&page=1#0

                  02/21/2008 20:11
                  Roannsh 
                  02/21/2008 20:11
                  Roannsh 
                  Re: New to DC

                  Well I went to my GP to cancel my first consultation..
                  I want to start with Dr Binhammer.. she asked if she
                  could keep the literature I brought along about NA..
                  Hopefully her next patient with DC will get a better
                  education of the options now available in Canada
                  than I did.. small steps .. anyway Now I feel relieved
                  and await my appointment ..

                    02/22/2008 03:22
                    newman 
                    02/22/2008 03:22
                    newman 

                    Re: New to DC

                    Quote:



                    Quote from Newman: Australia Calling. Radiotherapy is best in the early stage although I 've recently had the treatment as I had a number of nodules (lumps ) started growing. All the lumps in my right hand have gone and the one remaining on my index left finger had reduced 75% in size and I am hopeful it will continue to reduce.

                    Newman - Hi . I am also from Australia with early stage DC. Did you get your Radiotherapy in Australia or o/s and if in Australia, can you please advise the institute that provided the treament.

                    Regards Gavinp

                    Adeliade Calling-Australia.
                    I was treated in Essen Germany. However since my return I have spoken with Dr.Martin BORG
                    at Adelaide Radiotherapy.He has used the treatment used by Prof Seegenschmiedt Germany, and can offer the treatment here. I am hoping he will list on the Dup/Soc. web.He is waiting on the Medicare Item Nos. for treatment of MD & ML.
                    How about becoming a Registered Member on the forum and you can have direct contact with a member. Regards.

                    Edited at 22.02.08 05:27

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