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new to forum surgery wating on call to say it's on
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12 hours ago
edintology 
12 hours ago
edintology 
new to forum surgery wating on call to say it's on

Hi all,
So I'm due surgery depending on the call to say they are fitting me in so between a day and weeks. Surgery was postponed due to needing to quantify my clotting factors (I'm a heavy bleeder).
Based on the stages on this site left hand pinkie is at stage 4 or worse mostly in the PIP joint.
My right had is easily stage 2 in the middle 2 fingers.
Left had progressed very quickly over 18 months while my right had has progressed slowly over the last 10 years.

For the surgery on left pinky they are going the full open surgery with skin graft expected. They are planning to put a rod / wire down the finger to keep it straight. The rod will be there for 6 weeks and then removed. I have been told once removed I will not be able to bend my finger so will need rehab to learn to operate it again. So far searching the forum I have not read of this as normal. So anyone heard of this method before?

I am aware of the risks to nerves and circulation but at this point I'm willing to lop the little finger off as it catches on everything and I get cramps from the lack of use (I consider adjusting to no little finger as minor). Right hand is the one I worry about long term as again daily activities are getting harder and the 2 middle fingers mean they will be in the way for everything if fully curled in or if amputated that's half my finger function gone on my dominant hand.

8 hours ago
spanishbuddha 

Administrator

8 hours ago
spanishbuddha 

Administrator

Re: new to forum surgery wating on call to say it's on

Hi
The success or otherwise of surgery, especially Dupuytrens, depends on the skill, knowledge and experience of the surgeon. So whilst I can't comment on the specifics of the surgery being done, I do wonder what research or self-advocacy you have done on choosing the surgeon who will treat you. Do you have references and reviews from past patients, and checked the surgeons qualifications, membership and publications, etc. You describe stages 2 and 4; is there no possibility of some contracture reduction for the fingers at stage 2 via a less intrusive treatment, sucs as NA or Xiaflex. As a generality, recovery from hand surgery can take anything from a few weeks to several months, even longer, so patience is required and a good post-op rehab team to help you. Does your surgeon have such a team or recommendation in place? If not don't proceed until you know more about the plans for recovery and rehab to deal with instances of infection, pain, scarring, stiffness, swelling, recurrence, and who will help with physio exercises.

Concerning the pinky I can share from experience on having an amputation of that, if the proposed treatment does not succeed. But let's hope you do get enough improvement so that it is not needed.
Best wishes SB

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