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Newly diagnosed and in pain
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12/16/2017 05:29
Augnapril 
12/16/2017 05:29
Augnapril 
Newly diagnosed and in pain

Hi, all. I’m glad to have found this group. About 2-3 weeks ago, my palm was itchy. Maybe a day later, I had 2 lumps below my middle finger. By last night, the pain in my hand woke me several times.
I’d already figured out what this was, but had it confirmed today by my doctor. I’d been reading that this isn’t a painful disease, so I’m surprised by how quickly this has become painful, and how strong the pain is sometimes.
Did anyone else experience this when you’d first discovered the lumps? If it starts out painful, does that mean I’ll always have a painful case? And does anyone treat their pain effectively?
I already have fibromyalgia, so I’m pretty upset to have another source of chronic pain, if that’s what this is going to be. I’d appreciate anyone’s insight and feedback. Thanks.

12/16/2017 06:17
wach 

Administrator

12/16/2017 06:17
wach 

Administrator

Re: Newly diagnosed and in pain

Hi Augnapril, first of all, welcome to this forum! Reading your post I have the feeling that you -possibly - might suffer from something else than Dupuytren's. Dupuytren nodules usually won't grow over night, they take months or sometimes even years to develop and there are many other things that can cause nodules in the hand . You might have a look at http://www.dupuytren-online.info/dupuytr..._therapies.html where other causes are listed.

Before embarking on any kind of therapy I would consult another doctor to confirm the Dupuytren diagnosis. It might, of course, be Dupuytren's but it might as well be something else. It would be good to consult with a doctor who is familiar with Dupuytren's and maybe our lists for doctors offering needle aponeurotomy might help finding someone in your vicinity http://www.dupuytren-online.info/NA_list_North_America.html , http://www.dupuytren-online.info/NA_list_UK.html or http://www.dupuytren-online.info/NA_list..._countries.html .

Wolfgang

12/16/2017 07:43
spanishbuddha 

Administrator

12/16/2017 07:43
spanishbuddha 

Administrator

Re: Newly diagnosed and in pain

Welcome to the forum Augnapril. Wolfgang is right that a specialist should confirm the diagnosis as there can be quite a few different reasons for lumps and pain in the hands. DD nodules tend to develop slowly, and to be sore with aches and pins and needles rather than pain that wakes you in the night; but there are always variations and with fibromyalgia maybe that’s the case with you. We are not doctors but if you can post a photo might be able to say it looks typical or otherwise. People with DD use a variety of things to ease soreness and pain discomfort, such as topical application of diclofenac, salonpas, other pain patches, also wearing compression gloves for arthritis, gentle massage, hot and cold therapy. Some Drs will inject nodules with a steroid but that itself can be painful and not always helpful. A second opinion from an experienced DD hand doctor is the next step though. I would want to rule out joint injury or inflammation, and other causes of lumps. Best wishes

12/16/2017 20:21
Augnapril 
12/16/2017 20:21
Augnapril 
Re: Newly diagnosed and in pain

I hope I’m answering in the right place- new to this, Didn’t quite understand instructions.

Both people above said nodules are slow to grow. Mine might have been because I was having symptoms a year ago without visible nodules until recently. I will go to hand surgeon but not until March.

Just to clarify, the nodules are sometimes achy but not painful. The pain I have is more in the thumb and lower palm, traveling down past the inner wrist sometimes. Usually comes when I grasp something either heavy or very small (like trying to open a bottle).

Couldn’t get a good photo. It’s 2 nodules in a line with middle finger.

Thanks for your suggestions for pain. I’m trying heat, will probably get a glove too.

12/17/2017 08:06
wach 

Administrator

12/17/2017 08:06
wach 

Administrator

Re: Newly diagnosed and in pain

Augnapril:
... The pain I have is more in the thumb and lower palm, traveling down past the inner wrist sometimes. Usually comes when I grasp something either heavy or very small (like trying to open a bottle).
...

This is not quite typical for Dupuytren's (though it sometimes happen's and might be related, who knows) but to me it sounds more like a tenosynovitis. You might suffer from both, Dupuytren's and tenosynovitis, the latter causing the pain. You might mention this to the doctor when seeing him next time. If you actually have a tenosynovitis you should not wait until March but have it treated asap or it might get worse and more difficult to treat. It shouldn't get chronic.

Edited 12/17/17 10:09

12/17/2017 19:36
Augnapril 
12/17/2017 19:36
Augnapril 
Re: Newly diagnosed and in pain

wach:
Augnapril:
... The pain I have is more in the thumb and lower palm, traveling down past the inner wrist sometimes. Usually comes when I grasp something either heavy or very small (like trying to open a bottle).
...

This is not quite typical for Dupuytren's (though it sometimes happen's and might be related, who knows) but to me it sounds more like a tenosynovitis. You might suffer from both, Dupuytren's and tenosynovitis, the latter causing the pain. You might mention this to the doctor when seeing him next time. If you actually have a tenosynovitis you should not wait until March but have it treated asap or it might get worse and more difficult to treat. It shouldn't get chronic.

Thank you. I think my doctor mentioned that other disease too but she never said it should be looked at right away. I’ll see if I can get in to the hand specialist sooner.

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