Hi Sheryl

Well that doesn't sound promising at all, but... If you ever read any of my old posts, after I had RT on my left hand, I remained unconvinced for 18 months to 2 years that it had worked, as the soreness, tightness, itching, etc continued. But unlike you no new nodules in that time. My left hand now remains good 15 years after treatment. So maybe there is hope yet that in time yours will settle down.

On my right hand, my dominant hand , the outcome after RT was better in a shorter time. The soreness went and it seemed to quiesce. But now more than 12 years later I do have new slow growing nodules and cords; they (have) develop(ed) so slowly in the last few years that I barely noticed except when my hands are sore from doing things like DIY and gardening (dominant hand use). I do have a care protocol that I find helps and am wiling to share privately, but it's just another persons one off experience that has no real generalised benefit and has not stopped the slow onward progression.

Best wishes SB

Edited 05/20/2025 19:31

spanishbuddha:

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I do have a care protocol that I find helps and am wiling to share privately, but it's just another persons one off experience that has no real generalized benefit and has not stopped the slow onward progression.

MissVivid:

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SpanishBuddha, I am also interested in your care protocol. I am waiting for my second RT and a bit worried. I still have itching and it almost ? appears worse. Unfortunately, the radiologist warned me both hands were advanced to a degree that I might not have great results. That’s a warning to others! If you’re not sure what to do, seek a treatment consultation with an expert earlier rather than later. Be persistent. I waited because the hand surgeon I originally saw shrugged me off and told me to come back when it was bent enough to have surgery. As I didn’t get any information about other treatments and it eventually, after 3 or 4 years, progressed very very quickly, iit got to an advanced state. I didn’t know the cords and nodules, hidden to some degree under the skin, were so prolific and had infiltrated the palms.