| Lost password
163 users onlineYou are not loggend in.  Login
“contacting volunteers for trial new treatment in NZ”
 1
 1
02/11/11 08:45
artisthand 
02/11/11 08:45
artisthand 
“contacting volunteers for trial new treatment in NZ”

I would like to make contact with anyone who has had treatment for dupuytrens with Chris Toal.
He place a request for volunteers on this site on November 2009.
http://www.dupuytren-online.info/Forum_English/board/dupuytren/volunteers-for-new-treatment-trial-in-new-zealand-0_662.html

I contacted Chris in November 2010 after seeing the notice.
The free volunteer trial was over, however before booking an appointment with him, he said that he could give me testimonials from other duypuytrens patient. Also he said that he was treating someone wth dupuytrens, at that time, who has not been able to shake hands for decades, however after only 3 treatments, the patient could now shake hands. This gave me great optimism. He said I would need five treatments and that I wouldn't like the treatment but that I would like the results.
The treatment is excruciatingly painful and expensive. He pushes a chiseled greenstone into the lumps and holds it there in order to release the pain. I paid for 3 and a half hours treatment (over three weeks) and bought one of the wooden tools with a chiselled greenstone on one end and a rose quartz on the other end in order to practise the treatment at home, overall cost $500.
I stopped the treatment after this as I found it too expensive and exceptionally painful. After 2 weeks there seemed to be a very slight improvement.
On my hand lumps have moved around, grown and diminished and moved further for about 15 years. It has got worse with my little finger bent now. It is hard to know if there has been any improvement overall from the treatment.
Chris said he has treated 13 dupuytrens patients over the years with 100% success.
I have asked Chris for testimonials or contact with previous patients but he has not been able to provide this.
I have no idea whether pressing into the lumps with the greenstone as I have been for the past 10 weeks is helping or hindering the disease, All I have is his assurance but nothing to cofirm it.
Chris is still advertising on his website treatment for dupuytrens.

02/11/11 09:01
wach 

Administrator

02/11/11 09:01
wach 

Administrator

Re: “contacting volunteers for trial new treatment in NZ”

Sorry about that, sounds like fraud. We have now added a warning to Chris' post. It was worded like a reasonable trial but possibly never was more than an attempt to make money.

Wolfgang

02/11/11 13:13
acacianz 
02/11/11 13:13
acacianz 
Re: “contacting volunteers for trial new treatment in NZ”

Hi Artisthand, thanks for posting this, it is good to know that I need to be aware that this suposed new treatment is here in NZ.

As a newbie to dupuytren's it has been great to discover this site where I can learn so much about this pain in the hands and feet, and the different options available to me before I see the hand specialist. Nothing worse than seeing someone about something you know nothing about.

I do hope though that I can get my treatment of choice without the expense of overseas travel, NZ is a long way from Germany (which seems to be the place to go)

03/03/11 02:28
artisthand 
03/03/11 02:28
artisthand 
Re: “contacting volunteers for trial new treatment in NZ”

Hi acacianz,
I have since requested and been given a refund for my treatment, from Chris so I cannot complain.
With regard to dupuytren lumps on the feet, I had these quite a few tears ago when my dupuytren's was first diagnosed, however these lumps have almost disappeared and have not given me any actual problems.
My little fingure bending forward is what does bother me.
I wish you well and would be interested if you find an alternative treatment that works.
regards.

05/18/11 09:59
MelissaDaisy99 
05/18/11 09:59
MelissaDaisy99 
Re: “contacting volunteers for trial new treatment in NZ”

I do hope though that I can get my treatment of choice without the expense of overseas travel, NZ is a long way from Germany

 1
 1
treatment   expensive   duypuytrens   dupuytrens   disappeared   testimonials   exceptionally   specialist   volunteers-for-new-treatment-trial-in-new-zealand-0   advertising   improvement   alternative   dupuytren   volunteers   treatments   appointment   dupuytren-online   greenstone   “contacting   excruciatingly