Hi brianprice,
Thanks for the info the one handed thing I’ve thought about not comfortable with it yet and it impacts on day to day activities anyway, massage was recommended but without breaking that cord just not sure I’ll get a result but if I can find someone I will go once just to see. It’s sad (but good) I’m getting more info here than at the Doctors I’ve seen.

Your comment about the impact was also supported in a way by the last visit to the local Doctors who commented that maybe the impact it’s having is causing enough problems that I’m having trouble knowing how to deal with it something to that effect.

Regards,
Tjay.

Edited 03/19/13 03:40

Tjay,

I am not a physician but the hand looks very much like my left hand years ago, the cord below the ring finger and the edema in the ring finger. My little finger was worse and, after a palmar fasciectomy, the little finger was amputated. The ring finger will receive Xiaflex and NA treatment soon but we wanted to address the right hand first.

Back in the 90s when I was diagnosed doctors here didn't recognize the disease and many still don't. Go to Xiaflex.com and try and see if there are physicians who have been through their training in your area. I am not advocating a particular type of treatment, just seeing if you can get competent medical help.

Good luck and don't delay.

Brian

PS: My discussions with the Xiaflex reps have surprised me in that they are encountering many people who have Dupuytren's in the Pacific Rim and Japan so they are aware of the problem.

Edited 03/19/13 04:07

Tjay:

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Hi Brian PDX,
thanks for the info I will follow up on this.

regards,
Tjay.

Tjay:

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Hi Brian PDX,
thanks for the info I will follow up on this.

regards,
Tjay.

Tjay; I am not surprised at your experience with Australian doctors. My experience was pretty much the same.

Some years back Dr Beard from North Shore Private told me that surgery was the only option. When I visited him again after discovering NA it became clear that he was aware of the procedure but thought it was some sort of witchcraft. He told me that if I decided to go ahead with the NA procedure I would probably need to come back and see him to get the nerve damage repaired.

I went ahead with with the NA with excellent results and no nerve damage. Unfortunately I have the aggressive version of DD with both hands (multiple fingers) and both feet affected so I was not surprised when the condition returned. After two trips to Paris I saw that a number of doctors in Australia were now performing NA so I decided to give this a try. Last July I emailed Dr David Dilley in Sydney. I provided a brief background including details of previous surgery and NA procedures and included photographs of my worst affected hand. His response was to say that the pics were not clear enough for him to make a determination. I took the view that if he couldn't see that I had dupuytrens from the photographs then I wasn't ready for him to mess with my hands.

I sent the same photographs to Dr Manet-Chopin in Paris who responded saying that she could see the problem and said that I needed treatment. What I like about French doctors is that there are no referrals required and no prior consultation. You book the appointment and they do the procedure there and then. And your appointment is your appointment - no sitting around in in waiting rooms waiting for your turn.