Hello,
Who knows the protocol for radiation used on dupuytren disease? Is it 6 week break or 8 week break?

I asked ProfS this very question just yesterday. He said 12 weeks is optimum, 6-8 weeks too short. I did not ask about longer than 12.

Hi: I am about to get R/T treatment (electron beam machine) in about a couple of weeks,.......I found a Dr Wolfson at the University of Miami who had attented Dr Seegenschmiedt lecture here in 2010 and has a hieghten interest in the disease as a result. But, I am going to be his first real patient for him (and he likes that, as it appears--having a real live patient finally to work on).

Should I be scared because of lack of experience, though he seems quite good in general, or should I be real happy he is going to take a real interest in making sure everything goes alright because I am the first, as it were.

He spent a lot of time with me, and went over Dr. Seegenschiedt protocols that he said he will be following: (but isn't his protocols from many years ago (or are there recent ones?)....Dont know.

My Doctor also wants to do an MRI of my hands and a CT scan to map the plan for treatment of my hands (seems kind of thourgh I guess)...... wants to make sure also there is no finger involvement----he said that would be tricker to do with radiation, as opposed to just dealing with the palms.

Anybody have any thoughts about all this?


I am apparently going to get 3grays per treatment for 5 days, then wait I guess 8 weeks, and then another 5 days......TOTAL of 30grays. Is this a good approach, anybody know?

He is also downplaying any side effects to be minimal, if any. He also said that according to previous treatments from others in other places (I guess, namely Germany), that there is about an 80% chance that I will see good results from the treatment. Does this sound right?

Anyway, open for any kind of input that anyone can give me about all this.

thanks

Lowell:

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I am going to be his first real patient for him (and he likes that, as it appears--having a real live patient finally to work on).

Should I be scared because of lack of experience

when to treat
what dosage to use
what field (part of your hand) to expose.

So how do I find out for sure if I am at the stage for treating? I just return from Dr. Kay Kirkpatrick. She confirmed I am in the very early stages. She stated radiation does nothing for DD. She said the USA is not keen on radiation like the other countries. When I told her I had the crawling burning sensation she stated no research for DD states that to be a condition. She then x-ray my thumb to rule out carpel tunnel or arthritis. She treats with NA. I also asked for MRI. She said it would not show anything. I explained to her that I have LD and have been treated with RT for that. It has been a success and I have 2 weeks left before I get the 2nd round of RT. I also experience the same crawling burning sensation on the LD. In the end she did right a prescription for me to give to my oncologist in Florida stating that I am in the early stages. I asked if she knew and oncologist in Ga who would do radiation and she said no.

So my question to everyone is:

1. How am I to determine if I am at the stage for RT? Apparently I am going to have to convince the oncologist. I do experience the crawling sensation. My guess is it is active.

2. Do I listen to Dr. Kay Kirkpatrick and not attempt radiation since she says it does not work for DD?

3. Who out there has had radiation for DD?

4. How successful has iradiation been?

5. How do you make sure ALL the diseased area is radiated?

Edited 08/28/13 22:08