| Lost password
181 users onlineYou are not loggend in.  Login
radiation
 1 .. 4 5 6 7 8
 1 .. 4 5 6 7 8
12/19/2008 15:03
dude 
12/19/2008 15:03
dude 
Re: radiation

okay,I'm trying,like many others,
to organise all this info.

radiation in America...

We have Dr Kline &Dr. Kuhn,of Boise,Idaho.

Univ. of San Fran Med Center-Dr Penny Snead

St Vincents Hospital,N.Y.C.-Dr Cuttino

Oklahoma Univ. Health Scince Center
---Dr Herman

the Hand center in Jupiter,Fl.,was mentioned somewhere
----do they do radiation?

any other U.S. sites for radiation,anyone know of?

12/19/2008 15:10
dunegirl 
12/19/2008 15:10
dunegirl 
Re: radiation

Yes Dude, there is Doctor Tripurninini, (not sure I spelled it right) at La Jolla, Ca Scripps Medical Center. He is head of oncology raditation there and treats dupuytrens without hesitation.

12/19/2008 16:33
Wolfgang

not registered

12/19/2008 16:33
Wolfgang

not registered

radiation clinics

Clinics that we are aware of are listed at

http://www.dupuytren-online.info/radiotherapy_clinics.html

The Hand Center in Jupiter is the US pioneer of NA, does also classical hand surgery but does not offer radiotherapy.

Wolfgang

12/19/2008 18:38
Megan 
12/19/2008 18:38
Megan 
Re: radiation

Hi Dude,

That's great that you are organizing this. Dr. Kline doesn't actually do the radiation but he refers patients to Dr. Tonya Kuhn at Mountain States Tumor Institute (part of the St. Luke's system).

Dr. Kline is at the Dupuytren's Center, 750 Warm Springs Ave., Suite A. Boise, ID 83712, phone: 208-344-5628. Dr. Kuhn is at St. Luke's Mountain States Tumor Institute, Radiation Oncology, 100 East Idaho Street, Boise, Id. 83712, phone. 208-381-2711.

Megan

12/19/2008 18:41
Megan 
12/19/2008 18:41
Megan 
Re: radiation

Hi Dude,

there were also some people writing in this forum earlier who were seeing a doctor in Kansas City...if we go back to the archives, we could find his name.

Wolfgang, I imagine it would be allright to add Dr. Kuhn's name on the website. Do you think we would need her permission first?

Megan

12/20/2008 10:34
wach 

Administrator

12/20/2008 10:34
wach 

Administrator

Re: radiation

Megan, we would be happy to add Dr. Kuhn's name to the list but usually ask for permission first. Do you - or anybody else - happen to have her email address? If so, please mail it to me w. wach (at ) dupuytren - online.info. Or post it here but please in a way that mail harversters can't read it. Thank you!

Wolfgang

Quote:



Hi Dude,

there were also some people writing in this forum earlier who were seeing a doctor in Kansas City...if we go back to the archives, we could find his name.

Wolfgang, I imagine it would be allright to add Dr. Kuhn's name on the website. Do you think we would need her permission first?

Megan


12/23/2008 14:36
dave_h 
12/23/2008 14:36
dave_h 
Re: radiation

RJJESSE

I'm the first person at U of M who started the treatments ahead of you. They told me at my last appointment that they started treatment on another person. I asked at that appointment if it was OK with them to post there information on this web site. They were reluctant to do so at this time. They want to see how it goes with us before they commit to anything further. Very nice doctors there. Maybe I'll run into you.

12/23/2008 15:00
dunegirl 
12/23/2008 15:00
dunegirl 
Re: radiation

It is very interesting to me that you are recieving treatment at U of M. I am currently going to Scripps in LaJolla, CA, but I live in Ann Arbor in the summer months and attempted to recieve radiation there. They wouldn't hear of it, in fact they seemed annoyed when I persisted somewhat. They sent me to physical therapy and told me to come back when I needed the surgery. I assumed being a teaching college they would be more open minded and for the first time I felt let down by this fine hospital. This happened just last spring. Do you mind sharing the name of your doctor?

12/23/2008 23:26
IVY

not registered

12/23/2008 23:26
IVY

not registered

Re: radiation

Hello I was treated at St Francis Hospital in Topeka, KS by Dr Reymond this summer. There were at least two of us being treated then. I was mis-diagnosed by my primary care physician who thought I had a Ganglion Cyst. He refered me to a hand specialist Dr in Overland Park, KS who dianosed my Dupuytrens and said that we would just watch it and wait until it was at least contracted enough to do surgery that doing surgery too soon would cause it to get agressive. I went home and started researching the internet .....this site was a life saver. I started calling around and found Dr Reymond. He was great. staff was great and my insurance paid for it. No real side effects except some dry skin. the cord and nodule is softened somewhat and doesnt seemed to have progressed.

12/23/2008 23:40
rjjesse 
12/23/2008 23:40
rjjesse 
Re: radiation

Dave,
I do not remember being told about any reluctance about the site. My wife was there also and she doesn't remember this either. I would certainly have respected their wishes if that is so. I feel somewhat sad since it was on this site that I received my own education about this possibility of treatment early stage after visiting the hand specialist who told me that there was no other treatment. I do understand why they might want to go slowly. In my case, at 69 years old and the nodules growing rather rapidly from only 6 months ago, I am elated to try this no matter what the outcome, especially since the risk is minimal and the alternative could mean years of physical therapy and retraining for a classical guitarist. (my years account has been dwindling lately)
RJ

 1 .. 4 5 6 7 8
 1 .. 4 5 6 7 8
Seegenschmiedt   “N-Acetyl-L-Cysteine   information   Jennifer   contracture   treated   dupuytren-online   Germany   Dupuytren   diagnosed   radiation   radiotherapy   Wolfgang   hospital   surgery   Seegenschmiedt-with   treatments   pianist-in-recovery   treatment   disease