RECENT DD DIAGNOSIS (2) | Dupuytren Disease | Forum for Dupuytren's and Ledderhose

staxman · 2015-10-18T18:51:20+00:00

First off...I discovered this site yesterday and have read many threads. I really appreciate all of you and your stories/guidance. My background: I'm 61 years old and generally speaking in very good health. My dad died of prostate cancer when he was 70 (diagnosed at 60). That was a huge blow to me in my mid thirties and as a result have carefully watched my health. I'm a vegetarian, exercise regularly and don't mind a beer or glass of wine. My mom is still alive(94 years old). No DD in the family. About the time of my father's death, I thought I had arthritis in my knuckles but I'm pretty certain it's Garrod's pads. I have flare ups from time to time but have learned to live with them. I say that, but as a guitarist it has definitely affected my mobility. Current: About six months ago I noticed a nodule directly below my middle finger on my right hand. (I'm right handed). After a period of time, it appeared to shrink. At the beginning of the summer, two more nodules appeared on the same hand directly below the ring finger. One is small, the other, larger than the original one. Interestingly, I experienced a flare-up on the knuckle of the ring finger in question. Knocking on wood, my left hand has been unaffected by nodules. Doctor Visit: At the beginning of summer I went to see a hand specialist. He immediately diagnosed it as DD. Said it was mild. I can place my hand flat on a table with absolutely to problem (he said, knocking wood again.) This doctor had terrible bedside manner. I was dumbfounded when he uttered the diagnosis hearing the word disease without a proper explanation. He said to come back when contraction is present. He mentioned cutting the cords with the needle or surgery. Didn't mention radiation or Xiaflex. His office does administer Xiaflex so that was weird. Future: Going to set up another visit with new, trusted doc in same practice to plan a strategy. Can any of you who have had more than one Xiaflex treatment let me know how much time passed between the first and need for the second? I'm wondering what percentage of people treated with the drug haven't needed followup treatment and how long it's been since the injection.... Sounds like I'd be a good candidate for the radiation. So many things to think about. And I'm a worrier and overthink. If you feel like responding I'm interested in what you have to say. Best wishes to all. Thanks... Staxman

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RECENT DD DIAGNOSIS

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10/19/2015 11:38 gran
10/19/2015 11:38 gran	Re: RECENT DD DIAGNOSIS I think I am receiving e-mail meant for Staxman.???????????? Gran
10/19/2015 11:38 gran	Quote

10/19/2015 22:37 staxman
10/19/2015 22:37 staxman	Re: RECENT DD DIAGNOSIS No disrespect meant to anyone, but I'm going to switch off getting notices whenever someone posts. I'm overwhelmed right now and quite anxious. That can't be good. I'll check in once a day until I get it together. Thank you for your support. It means a lot. x
10/19/2015 22:37 staxman	Quote

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DIAGNOSIS radiation treatment progression Interestingly recommended fingers unpredictably nodules radiotherapy unfortunately Staxman recommendation Xiaflex disfigurement appeared dupuytren-online disease contracture Spanishbuddha

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