Six Xiaflex injections after Open Surgery & NA... (2) | Dupuytren Disease

Dupped · 2013-04-27T16:17:49+00:00

Hi, Im new to this forum. I have aggressive DD in both hands. I have had 6 Xiaflex injections now in both hands. I also had open surgery on left pinky/palm 16 years ago and NA 4 years ago in both hands. My first Xiaflex injection was in the left little finger, it was contracted almost into my palm at this point and I had no release after the first Xiaflex injection but did have a release after the 2nd injection, and a big split in my palm opened when it popped, but it was straight. My right hand responded really good to Xiaflex which broke all my cords and they havent grown back much in the last year. My left little finger responded well to the 2 injections, but my left ring finger didnt release after 2 injections and I had to take a break after having 6 injections in 1.5 years. ALL of my manipulations have been very painful. Some injections are almost painless, others have been very painful for 8 hours after the injection, with my hand swelling to double size and bruising badly. Seems the more pain I feel after the injection, the better results when I get manipulated? The area around my injection is way to painful to be manipulated the next day. My Doc waits 1 week. He injects Lidocaine in my wrist area to numb my hand, but it never seems numb enough, because when he straightens my finger to break to cord it's very painful, even though the pain subsides within a few minutes, but it is severe enough that I had to stop after 6 injections even though I need 1 more cord popped. It's just very hard when I know what to expect and know the level of pain I will have to tolerate during the manipulation. When I had NA, I couldnt feel a thing as I was poked and prodded and straightened. But NA isnt covered by my Insurance, Xiaflex is, as well as open hand surgery, but I went the open surgery route and my Dup started coming back before my stitches were healed. It's been 5 months and I guess I am ready for more punishment, Im going back for another Xiaflex injection, this time I might see if he will inject Lidocaine right into my cord area for manipulation cuz when my cords break, it sounds like a pencil being broken in half, a loud pop/snap and then like cloth being ripped as all the little cords/fibers tear...OUCH!!! It takes all my willpower not to rip his head off when he breaks those cords...Anyone else had very painful manipulations after Xiaflex? Tnx

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Six Xiaflex injections after Open Surgery & NA...

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10/08/2013 02:39 cschieber
10/08/2013 02:39 cschieber	Re: Six Xiaflex injections after Open Surgery & NA... Wow! Glad all is well with the colon! Watching your xiaflex story with interest as I have rather aggressive involvement in both hands as well. Did it help the PIP joints? Is you dups painful and if so, did the xiaflex help that too. Thanks.
10/08/2013 02:39 cschieber	Quote

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