Surgery in New England |
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09/21/2009 00:49
mikednot registered
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09/21/2009 00:49
mikednot registered
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Surgery in New England
Hello All.
I’m currently 55, and have been dealing with dupuytren's for about 7 years now. I have had NA twice on my left hand, (lucky me I’m left handed.) My index and little finger are affected. NA worked really well the first time, and I was very happy that I was cured. I wore my brace at night for about 6 months, and then figured I was done with dupuytren's. After a year the same two fingers started to contract, when they reached 35 degrees I went back to Dr. Eaton for a second procedure. This time my fingers would not completely straighten out maybe a 15-degree contraction (pip) I still was happy. Within two years I was back to 35 to 45 degree contractions. I managed to get into a clinical trail for XIAFLEX injections the stage three trials.(9 months long) I had no success what so ever with the injection, I did feel some cord burst during the manipulations but my fingers never really changed. A few in the trial did have some degree of success. My hand is worse now than it has ever been and I’ve been told NA is not really an option. Which bring me to my question. I’m going to need surgery and live in northern New Hampshire, everything I’ve read suggest getting a very experienced surgeon, I’m hoping someone here my have some suggestion of Dr's. or just a hand surgery center that has experience. I’m more than happy to travel to Boston to have this done. Thanks for any help.
Mike
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09/21/2009 01:16
flojo
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09/21/2009 01:16
flojo
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Re: Surgery in New England
Mike,
You really have active Dupuytren's. It looks like you may be one of the ones that needs surgery now. You've done NA and the trial injection.
A thought just came to me about radiation therapy. They say to have RT as soon as possible after NA and I can see why. Since RT keeps scar tissue from forming, why not have RT immediately after surgery to prevent scar tissue from forming. Dr. T at Scripps does non-cancerous RT for Dupuytren's and after angioplasty to prevent scar tissue from forming after the stretching of the veins/arteries. RT can be done before a procedure, but I think it would be problematic to do RT on curled up fingers. Doing RT immediately after surgery might be considered. You might explore that idea.
You could email Dr. Denkler (see left margin for his contact info), attach pictures and describe your prior treatments. He will respond to you even though you need someone in New England and are not likely to be his patient. He has lots of experience with NA and surgery. He is a hand surgeon/specialist and did Dupuytren's surgery all the time until he found out about NA. Now, he uses NA whenever possible. He doesn't know much about RT, but he certainly knows NA and surgery. Or you could ask Dr. Eaton. Either might know surgeons in your area if there are no other options for you.
Flora
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10/11/2009 01:52
mikednot registered
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10/11/2009 01:52
mikednot registered
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Re: Surgery in New England
Flora
Thanks for your reply. Mike
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