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Upcoming Surgery
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02/04/2011 14:05
Stephen332 
02/04/2011 14:05
Stephen332 
Upcoming Surgery

Hi everyone,

Only just found this site and joined. I have surgery booked for 15th Feb - and am dreading it. I'm 53 and am fortunate to never have been in hospital so am really worried about it.

I asked if there was any other option to surgery. It just seems so major for this problem. I was amazed that it has to be a general full surgery. Thought it would be a local.

Does anyone have any advice. I have my small fingar affected and it's about 100 degrees to straight, but I just get used to it.

Thank you

02/04/2011 14:38
callie 
02/04/2011 14:38
callie 
Re: Upcoming Surgery

Surgery for Dupuytren's is a relatively minor surgery. My surgery was for a little finger that was contracted 90 degrees. I had very little pain (no pain in the surgery). The night of the surgery I took three Tylenol and for the next week took two Tylenol as prescribed. Never needed the pain pills that were prescribed. Nine years later I still have zero signs of Dupuytren's in the hand that had surgery. One of the most important precautions about the surgery is to have a HAND surgeon with extensive experience with Dupuytren's. It is not acceptable to have just any surgeon do this surgery.

If you have any questions, be sure to ask.

02/04/2011 15:35
David26

not registered

02/04/2011 15:35
David26

not registered

Re: Upcoming Surgery

Stephen, are you close to a metro area? You can check the ribbon at the top. Under Treatment > NA, there is a list of surgeons who will do a needle release procedure under local. It may be perfect for your situation.

NA is an minimal invasive procedure that is an alternative to traditional open surgery that sounds like what you have scheduled. Like callie says sometimes the traditional surgery does fine. But usually the DD will come back, imo if it does you are in better shape for another procedure if your first one was minimally invasive.

02/04/2011 15:35
LubaM. 
02/04/2011 15:35
LubaM. 
Re: Upcoming Surgery

Stephen332:
Hi everyone,

Only just found this site and joined. I have surgery booked for 15th Feb - and am dreading it. I'm 53 and am fortunate to never have been in hospital so am really worried about it.

I asked if there was any other option to surgery. It just seems so major for this problem. I was amazed that it has to be a general full surgery. Thought it would be a local.

Does anyone have any advice. I have my small fingar affected and it's about 100 degrees to straight, but I just get used to it.

Thank you
Stephen332,
Welcome to this forum. You will find here many people who will answer your questions and, as always is the case, the more people...the more opinions...

There are lucky people who have had positive experiences, like Callie...but if you do more reading here, you will find others who were not happy with the results of surgery. Having an experienced HAND surgeon is a must, like Callie says, but my concern would be that you were not offered other options to surgery.

My personal opinion would be to begin searching this forum and read up on surgery, and...Needle Aponeurotomy (NA) & Xiaflex.... two non-invasive procedures that can work on your contracture and resolve the problem. NA probably has a quicker recurrence rate than surgery and Xiaflex is very new (only approved by the FDA a year ago)...so long term results are not well known yet.

I would advise...why not try the easier procedure first...you always have time to do surgery later.

In 2006 I had an appointment to do open hand surgery for a contracture of the small finger. My hand surgeon, and 3 other hand surgeons I had contacted had never told me about "other options" ... At that time I started reading on this forum and .....a week before surgery, I cancelled and opted for NA. It resolved the problem (not for long) and I did a second NA on the same finger. I prefer to live with the contracted finger (as long as it doesn't get worst), rather than go through the long recovery of surgery.

Do some reading...ask more questions....and whatever you decide, good luck to you!

02/04/2011 15:42
Mike S

not registered

02/04/2011 15:42
Mike S

not registered

Re: Upcoming Surgery

Stephen,

Everyone must make their own decision as to treatment. Open hand surgery is tried and true, has been around for decades, and has a reasonably fair success rate. That said, there ARE alternatives, even for a 100 degree contracture, that are FAR less invasive and have relatively reduced recovery periods - e.g. NA (needle release) and Xiaflex treatments. In my case, 90 degree contracture, NA proved to be successful and a wise choice. Each treatment option does have its pros and cons, and there is a fair degree of variability from patient to patient in terms of disease specifics and treatment outcome. Do the research and "makes yer cherce". Good luck.

02/05/2011 00:18
flojo 
02/05/2011 00:18
flojo 
Re: Upcoming Surgery

Stephen, You'll find information on this site under Disease about the different treatment options. Research all of the options and you are in a better position to determine what is best for you.

Don't know where you live, but you can get an email response from Dr. Denkler in Larkspur, CA near San Francisco. You'll find his contact information under the Treatment tab on the top then under US List for clinics. There are other fine docs who do NA. It's just that my successful experience was with Dr. Denkler. Email him close up pictures of your hand. He is a hand surgeon/specialist, but he also does Needle Aponeurotomy (NA) to release contracture. He is definitely patient oriented and he can tell a lot from the pictures. He usually responds in a day or two.

I had NA from him 2 years ago. I followed up with radiation (RT). I determined that was best for me. I prefer to avoid the invasive surgery. So far, I am doing much better with the NA and RT.

Let us know if you have more questions after researching this site.

Flora

02/06/2011 17:01
Stephen332 
02/06/2011 17:01
Stephen332 
Re: Upcoming Surgery

Hello,

Thank you everyone who has responded to my blog. I really appreciate your advice and thoughts.

I just don't know what to do - I have looked at, and read, so much about this and full-blown surgery seems so wrong to me. Yes I am probably just an afraid guy who has never had surgery.

As my finger closes in on my hand I wonder "does it ever stop" - and does it matter really. I live with it - and it doesn't cause pain - yet.

I don't live in the US, I am in the UK, but having seen the price of injections to sort it out I couldn't pay anyway and the National Health Service, while brilliant, doesn't offer any other form of treatment other than surgery - which I suggest is MUCH more expensive than the injections.

If anyone has any other advice, please let me know, and thanks again for your responses to my earlier blog.

Stephen.

02/06/2011 17:10
Stephen332 
02/06/2011 17:10
Stephen332 
Re: Upcoming Surgery

Sorry, it's me again,

I went to a doctor in the Uk three times - well before my finger was at 100 degrees and was told over and over "leave it until it gets bad."

Never knew it could have been dealt with at an earleir stage with less invasive treatment. My fault for not looking.

Stephen.

02/06/2011 17:13
LubaM. 
02/06/2011 17:13
LubaM. 
Re: Upcoming Surgery

Stephen,

Since you are in the UK, have you considered going to Paris for NA? that would seem to be a wonderful choice providing the trip is financially possible for you.

02/06/2011 21:16
spanishbuddha 

Administrator

02/06/2011 21:16
spanishbuddha 

Administrator

Re: Upcoming Surgery

There's a list on this site http://www.dupuytren-online.info/NA_list_UK.html of places in the UK doing NA. It might be worth to consider delaying your surgery until you have investigated these as possibilities.

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