In 2013, I posted my story and some pictures. It was good then, and still good news. In the archives will be that thread, but I wanted to post a new thread for those with a similar case as mine, and considering Xiaflex in 2015.
- Procedure was not painful, but the injection, as many have written, is done without pain blocker and that sucker hurts. - I was lucky to have insurance pay 75%. - I've been wearing my brace at nite, for all the 26 months, even business trips, vacation, always. - I think I was also fortunate to have a really protruding cord, that was not deep, rather sticking out big. I suspect my doc is very well skilled and was able to really focus the med right in there. - Golf and mountain biking are no problemo. I have the scar you'll see, but that doesn't bother me.
Congratulations on a successful Xiaflex procedure. Mine was done in July 2014 on my left hand and I, too, am quite pleased with the results. I can still hyperextend my hand by about 30 degrees. I believe success depends upon many factors, including doctors skill and experience with all DC procedures, how far the DC has progressed and how quickly/slowly the DC has progressed over time. I did have a couple of nodules pop up on my palm and middle finger several months after the procedure, I don't think there's any way to predict if that will happen. My right hand also has some large nodules and if they progress into DC I will probably have Xiaflex injections done on it too.
thanks for posting. my hands are quite a bit worse than yours, especially the left hand. i had not been to the hand doc in over a year, but i went today. I didn't think my DC had worsened that much, but I guess you don't notice bcuz it's so gradual, bcuz my "measurements" were a lot worse today than my last appointment.
so i'm finally giving in and doing xiaflex next month. little nervous, but we shall see.....
had my injections yesterday.Three shots in both finger/palm area and WOW not pleasant. Tomorrow i at 7am I get manipulated.What can I expect for that to feel like ...about the same as the injections?
For me the worst part of the manipulation was the injections to numb my hand. Once numbed no pain and all I heard was a snapping type sound during the manipulation. After that a night splint was made to fit my hand.
aagrub:had my injections yesterday.Three shots in both finger/palm area and WOW not pleasant. Tomorrow i at 7am I get manipulated.What can I expect for that to feel like ...about the same as the injections?
Good for you! Tomorrow expect to have a straighter finger. Wear a splint and follow your doctors instructions & for rehab.
I had mine done last February. Xiaflex also eliminated the horrible scar tissue from surgery. The bio drug is a enzyme that breaks up collegen ( also scar tissue & DD) . Xiaflex is in another study to eliminate scar tissue for approval from the FDA.
Hope all goes well my doc used freeze spray on my hand for injections and manipulation. I heard nothing. Just closed my fingers and a second later my pinky finger was open. After 2 years it's was great !
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