Advice on all treatments |
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04/15/2007 20:54
jd778
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04/15/2007 20:54
jd778
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Advice on all treatments
Hi I have had my small finger operated on and now my ring finger is contracting and the pinky is also getting worse I was young (35) to have my pinky done, and things are now at 40 getting worse again! I have read your web site and I wish I had seen it 5 years ago! However now I am keen to see somebody who has experience in all the styles of treatment that are available, and can suggest the best for me rather than the style of treatment they can do! I cannot see from the site who this may be - I am prepared to travel the world, but would prefer Europe as I am in the UK Any advice? Thanks Jonathan
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04/16/2007 04:18
Wolfgangnot registered
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04/16/2007 04:18
Wolfgangnot registered
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Re: Advice on all treatments
Unfortunately there is probably nobody in the world who can do all treatments for Dupuytren, though this would possibly a good basis for a sound advice. My personal experience is
- normal MDs usually only know about late stage surgery
- hand surgeons typically believe in surgery as the only working therapy (but that's not true for all surgeons, there are honorable exceptions!)
- hand surgeons who also do NA are available in some countries (also in the UK) and may offer good advice in the chosing between those two treatments
- radiologists in Germany treating Dupuytren typically work in a clinic and cooperate well with hand surgeons. They can advise whether to radiotherapy makes sense or surgery is preferable. Unfortunately they are tyxpically less familiar with the advantages of NA but that's improving, in part due to our efforts.
Not quite what you are looking for but that's the way it is. It's probably not a bad idea to support your doctor with information that you gathered yourself. Patients that are using the Internet are typically quite well informed about the available options. You could also ask your doctor to have a look at www.dupuytren-online.info. Dupuytren Society can provide additional therapy details if required.
Wolfgang
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