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Xiaflex clinical trial for ledderhose disease
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09/28/2016 02:08
Grlwthgrniis 
09/28/2016 02:08
Grlwthgrniis 
Xiaflex clinical trial for ledderhose disease

So excited, my rheumatologist just informed me she is starting clinical trials for xiaflex for ledderhose disease. I'm the first on her list, and it should begin in 3-4 months. I have cords on both my feet; 2 small ones on my left and 2 large on my right. Wish me luck!

Ro

09/29/2016 08:06
GaryBall 
09/29/2016 08:06
GaryBall 
Re: Xiaflex clinical trial for ledderhose disease

Wishing you the best.......please let us know how it goes.....

Gazza

10/07/2016 16:54
Grlwthgrniis 
10/07/2016 16:54
Grlwthgrniis 
Re: Xiaflex clinical trial for ledderhose disease

You know i will. I'll post before, during, and after treatment pictures. Thank you for the well wishes!

10/20/2016 03:01
SurferDad 
10/20/2016 03:01
SurferDad 
Re: Xiaflex clinical trial for ledderhose disease

Hi Ro,

I live in Southern California and I was wondering if the clinical trails are open to more patients? I sent you a Private Message with more information. Thanks for any possible help.

Sincerely,
SurferDad

11/19/2016 20:36
Doblake 
11/19/2016 20:36
Doblake 
Re: Xiaflex clinical trial for ledderhose disease

Owen B.I hope u don't get the control medicine. Something to ask about. This is not something to wait a year on. Good Luck.

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