Need help finding a Dupuytrens Specalist |
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01/25/2012 00:10
Orrca66
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01/25/2012 00:10
Orrca66
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Need help finding a Dupuytrens Specalist
Hello, I am new to this website. I am 25 years old and I just got diagnosed with dupuytrens last year. I have been living with this in my hand for the past 3 years or so. I am extremely nervous because I recently graduated college and am seeking a career in law enforcement. Dupuytrens affects my right hand which I would obviously need to use. Anyways I am wondering if there are any specialists close to Arkansas or in United States anywhere. I just want to see what my best point of action is since I am so young with this disease. If there is a list somebody could direct me to I would certainly appreciate it. Thank you very much.
Edited 01/25/12 02:10
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01/25/2012 04:35
flojo
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01/25/2012 04:35
flojo
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Re: Need help finding a Dupuytrens Specalist
Look at the list across the top of the page under the drop down menu called Treatment. There are clinics listed for each type of treatment offered.
What is the status or level of you Dupuytren's? Do you just have nodules? Do you have contracture? Or . . . That makes a difference in the kind of treatment you may be a candidate for.
Come back and ask questions. Helpful, caring people on this website will help. You can read what others have already written and get a lot of information that would probably apply to you.
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01/25/2012 23:11
Orrca66
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01/25/2012 23:11
Orrca66
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Re: Need help finding a Dupuytrens Specalist
Okay, thank you for the help!
I am not quit sure if it is nodules or contracture. I have the huge lump in my hand that has been getting larger over time. It has not pulled my fingers down yet but it is extremely tight. It hurts to do the flat hand test and it hurt when i stretch my fingers back.
Again thanks for the help, all this information is great.
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01/26/2012 12:44
wach  Administrator
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01/26/2012 12:44
wach  Administrator
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Re: Need help finding a Dupuytrens Specalist
Sounds like you have no contracture yet a big nodule?
Wolfgang
Orrca66: Okay, thank you for the help!
I am not quit sure if it is nodules or contracture. I have the huge lump in my hand that has been getting larger over time. It has not pulled my fingers down yet but it is extremely tight. It hurts to do the flat hand test and it hurt when i stretch my fingers back.
Again thanks for the help, all this information is great.
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01/26/2012 16:01
LubaM.
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01/26/2012 16:01
LubaM.
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Re: Need help finding a Dupuytrens Specalist
Orrca66: Okay, thank you for the help!
I am not quit sure if it is nodules or contracture. I have the huge lump in my hand that has been getting larger over time. It has not pulled my fingers down yet but it is extremely tight. It hurts to do the flat hand test and it hurt when i stretch my fingers back.
Again thanks for the help, all this information is great.
As Wolfgang said, sounds like you have only nodules and are at the early stages of the disease. Look under "treatments" on this website, and read all you can about Radiation therapy which seems to be a good choice for stopping the progression of the disease at this early stage... you can also do a "SEARCH" at the top of the page on the subject and come back with more questions.
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01/27/2012 00:58
hammer
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01/27/2012 00:58
hammer
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Re: Need help finding a Dupuytrens Specalist
I just drove thru Arkansas yesterday on my way back from Oaklahoma City.I had my 3rd Xiaflex injection in my right hand.You are not far from there.I live in Nashville and drive to OKC to see Dr Joel Fraizer.That injection on me was his 175th xiaflex injection.100% success rate.He had to work on my pinky my cords are real thick but other than a big skin split all went well.My final numbers on the double injection on my ring finger were 75 to start 15 finshed the other cord start 65 finish 10.I had that finger done on 11-16-2011'I still have two more cords in my right hand but Auxillium ask me to get a total 5 injections one injection every 28 days now that the study is over.All in my right hand.
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01/30/2012 15:07
cindy850
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01/30/2012 15:07
cindy850
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Re: Need help finding a Dupuytrens Specalist
I live in Missouri and if your looking for a doctor to do radiation therapy i had my done in Liberty, Missouri. I f you need more info just ask.
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