| Lost password
175 users onlineYou are not loggend in.  Login
New
 1 2
 1 2
03/11/2011 19:54
cricket 
03/11/2011 19:54
cricket 
New

I think I have Dupuytren's. I'm not sure. I'm waiting for drs. appointment. I've had trigger finger and so far 2 injections. They worked - for awhile. Now my left, ring finger keeps bending toward the palm and I can't straigten it. The palm does not have a huge nodule but I do feel something and it (the palm) hurts like crazy. I'm a 50 year old, female, also diabetic. I'm feeling overwhelmed and don't know where to start.

03/11/2011 21:04
LubaM. 
03/11/2011 21:04
LubaM. 
Re: New

Welcome to the Forum. You have come to the right place.

What kind of Dr. do you have your appointment with? After your appt. when you have the correct diagnosis, come back to the Forum and ask lots of questions. Many on this Forum will answer. Also read all you can about Dupuytrens and possible treatments here.

You have many choices..Radiation Therapy (for beginning stages is very successful at stopping the progression of the disease), Needle Aponeurotomy (an easy procedure where they cut the cord and straighten the bent finger), Xiaflex (an enzyme that dissolves cords) and in the end there is always surgery.

In my opinion.... I would do everything I can and try other options before having surgery. So the sooner you get treatment, the better...and if Radiation (RT) is an option I would start with that.

Edited 03/11/11 23:06

03/11/2011 21:09
lori 
03/11/2011 21:09
lori 
Re: New

Cricket,

When is your doctors appointment and who is it with? Give us a little information about what you feel in your palm. If your finger is bending do you have a cord? I was 53 years old when diagnosed and my palm also hurt like crazy. I had a sore spot in it, felt like I'd pinched it. Then I got a hard knot which I figured was a callus. I had horrible pain in my plam that radiated up through my arm to my shoulder. It was the pain that sent me to my GP, who did not have a clue as to what I had. She referred me to a hand surgeon which took 6 weeks to 2 months to get into. By that time I had a cord that extended from my middle finger to my palm.

Try not to feel overwhelmed. I know it is hard not to feel overwhelmed, but get back to the forum with some information and maybe someone can help you.


Lori

Edited 03/11/11 23:10

03/11/2011 21:30
spanishbuddha 

Administrator

03/11/2011 21:30
spanishbuddha 

Administrator

Re: New

Welcome to our community.

As LubaM says, what sort of Dr. are you seeing? An accurate diagnosis is important, usually a hand specialist who has seen lots of different conditions, but more importantly knows about the treatment options.

On this site and forum you will discover a range of treatment options if it is Dupuytren's with a lot of useful information, successful treatment and hope for the future.

03/12/2011 02:05
flojo 
03/12/2011 02:05
flojo 
Re: New

I agree with all of the above. Use the menus at the top of the page to research about the disease itself and the treatments.

You will undoubtedly have questions as time goes along. Come back to this Forum. You'll find people here who are interested in helping and giving information for you to consider.

03/13/2011 05:18
cricket 
03/13/2011 05:18
cricket 
Re: New

Thank you!

On Monday I am seeing my regular internist. She will refer me to someone, she is great about working with me, not dictating (we know each other personally) Is there a specific type of dr. I should be seeing? I assumed I'd go to an orthopedic surgeon that specializes in hands, is that correct?

One of the many things that confuses me is the connection between Dupuytren's and Trigger Finger. I have had a couple of flare ups of Trigger Finger in this same finger (Left Ring Finger) I have had cortisone injections 2 or 3 times in the last few years. My finger has gotten dramatically worse in the last month. The palm and finger are pretty painful. the pain is when something touches the palm or I try to straighten the finger. There is no obvious cord in the palm just a small hard nodule.

In the FWIW category I don't fit the typical profile as I read on the Mayo Clinic site. I'm a 50 year old female, of Polish/Irish descent, not a smoker or drinker but I am a T2 diabetic.

Thanks for all your help.

Edited 03/13/11 07:21

03/13/2011 05:46
LubaM. 
03/13/2011 05:46
LubaM. 
Re: New

cricket:
Is there a specific type of dr. I should be seeing? I assumed I'd go to an orthopedic surgeon that specializes in hands, is that correct?

In the FWIW category I don't fit the typical profile as I read on the Mayo Clinic site. I'm a 50 year old female, of Polish/Irish descent, not a smoker or drinker but I am a T2 diabetic.

An orthopedic surgeon will be the right dr. to diagnose Dupuytrens because of his experience with Dupuytrens surgery. But, DO NOT let him tell you "that surgery is the only option and to come back when your finger is contracted".... there are other choices before surgery, that will prevent the progression of the disease or resolve early contractures before they get worst.

Many people with Dupuytrens do not fit the "typical profile". Mine started at about the same age, I am from Russian descent, not a smoker or drinker.

Let us know how your appointment goes.

03/13/2011 05:54
cricket 
03/13/2011 05:54
cricket 
Re: New

Thanks so much. I'm not sure how to tell how much it's progressed. The finger isn't always bent, just most of the time. And it's never perfectly straight.

I thought surgery was an automatic until I found this site. Though I have to admit the treatment where they stab the cord repeatedly sounds a little scary. However, so does the surgery when I see that it isn't just a little one or two stitch incision. Then I read about people losing their fingers - YIKES.

We'll see what happens Monday but this is really a problem. It's even hard to type.

03/13/2011 08:12
LubaM. 
03/13/2011 08:12
LubaM. 
Re: New

cricket:
Thanks so much. I'm not sure how to tell how much it's progressed. The finger isn't always bent, just most of the time. And it's never perfectly straight.

I thought surgery was an automatic until I found this site. Though I have to admit the treatment where they stab the cord repeatedly sounds a little scary. However, so does the surgery when I see that it isn't just a little one or two stitch incision. Then I read about people losing their fingers - YIKES.

We'll see what happens Monday but this is really a problem. It's even hard to type.

By the way...the treatment where they stab the cord (Needle Aponeurotomy or NA) sounds more scary than it really is. I had it done twice... you might also benefit from Radiation or RT if your disease is in the early stages.

Don't think of surgery yet ! Wait and see after your appt. and referral to the surgeon... DO come back with questions. It would also help us to know where you live so people on this forum can make the appropriate suggestions.

03/13/2011 10:42
spanishbuddha 

Administrator

03/13/2011 10:42
spanishbuddha 

Administrator

Re: New

I think in your case the diagnosis is even more important than usual. The palm symptoms and hard lump could be as a result of the ongoing problems with trigger finger. Duputytren's is a disease of the underlying fascia attached to the skin. An expert will help with this differentiation.

Will be thinking of you on Monday. But even if it's an early Dupuytren's diagnosis, worrying about Needle Aponeurotomy or Surgery can be put aside for now as in many cases the disease does not progress, and there are good reports of using Radiotherapy to hold it back.

 1 2
 1 2
orthopedic   questions   appointment   Dupuytren   differentiation   cortisone   information   experience   surgeon   rheumatologist   surgery   situation   injections   trigger   significantly   treatment   therapist   Aponeurotomy   circumstances-   presentations