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Swelling two months after Xiaflex?
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06/11/2012 13:03
pia2some 
06/11/2012 13:03
pia2some 
Swelling two months after Xiaflex?

I had an injection of Xiaflex on April 10, exactly two months ago. The cord that was broken released my ring finger. All is fine now except that the ring finger is still swollen. The only way that I know that is because I cannot put my ring on. When I slip my ring on it will go to the knuckle and then stop. Everything below that point is way too large for my ring to fit.

What's up with this? Is that normal? I am still wearing the splint at night and am just surprised that it would still be swollen two months later.

~dawn

06/11/2012 23:34
hammer 
06/11/2012 23:34
hammer 
Re: Swelling two months after Xiaflex?

Hey There,I bought some finger sleeves off ebay they r a black strechy fabric.I guess baketball players wear them,any way I wear them thru out the day and the swelling went down right away and if I wouldnt wear them my fingers would swell back up.They were like 5 bucks for 10 of them.Look in the finger sleeve catagory.Im headed back to Oaklahoma for my left hand up to 5 more injections in July or August.The sleeves made the swelling go away.Keeps them nice and warm.Dave

06/11/2012 23:47
pia2some 
06/11/2012 23:47
pia2some 
Re: Swelling two months after Xiaflex?

hammer:
Hey There,I bought some finger sleeves off ebay they r a black strechy fabric.I guess baketball players wear them,any way I wear them thru out the day and the swelling went down right away and if I wouldnt wear them my fingers would swell back up.They were like 5 bucks for 10 of them.Look in the finger sleeve catagory.Im headed back to Oaklahoma for my left hand up to 5 more injections in July or August.The sleeves made the swelling go away.Keeps them nice and warm.Dave

So how long did the swelling continue? I didn't think I'd be having problems at this point. I'll look for some of the gloves/sleeves. Thanks.

~dawn

06/11/2012 23:51
pia2some 
06/11/2012 23:51
pia2some 
Re: Swelling two months after Xiaflex?

Wait ... you're having 5 more injections? How are you able to do that at one time? I thought you could only have one injection every 30 days. I really need several more in my right hand. But I just can't afford it right now.

The spot where the injection was given in April has no dimpled in. I'm not sure why there is a huge dimple right there where it was injected. Any ideas? I know I need several more injections in that same area to release the other cords. One injection was not enough and my hand is all tight again. Sigh.

~dawn

06/12/2012 00:16
hammer 
06/12/2012 00:16
hammer 
Re: Swelling two months after Xiaflex?

Im in another multiple cord clinic,I will get a multiple injection of 2 the first round,then every 28 days they will inject again till I run out of cords or they run out of Xiaflex,lol.I am a lab rat.You need to register with some of these clinics.Indiana,Oaklahoma are usually the first ones goin.Go to www.clinicaltrials.gov and check it out.Dave

06/12/2012 00:24
pia2some 
06/12/2012 00:24
pia2some 
Re: Swelling two months after Xiaflex?

hammer:
Im in another multiple cord clinic,I will get a multiple injection of 2 the first round,then every 28 days they will inject again till I run out of cords or they run out of Xiaflex,lol.I am a lab rat.You need to register with some of these clinics.Indiana,Oaklahoma are usually the first ones goin.Go to www.clinicaltrials.gov and check it out.Dave

Thanks, I looked at the site. There's nothing close by at this time. I'll keep watching, though. I hope you do well with your next round of injections!

~dawn

06/12/2012 00:36
hammer 
06/12/2012 00:36
hammer 
Re: Swelling two months after Xiaflex?

They havnt posted the one Im goin to yet.They just called me Thursday to tell me.Im a poster child for this stuff.My ring finger is at least 150 degrees ,the only thing holdin the hand open on that side is my fused pinky.Its got hold of the pinky,ring and middle finger.Three cords for sure.They have a lady in Oaklahoma who has a more ageressive case than mine.Shes had 11 injections.Dawn there are 26 sites in the country that do clinics,Go to the xiaflex page and look thru the studys and scroll down to see the clinic Locations.Dave

06/12/2012 00:58
pia2some 
06/12/2012 00:58
pia2some 
Re: Swelling two months after Xiaflex?

hammer:
They havnt posted the one Im goin to yet.They just called me Thursday to tell me.Im a poster child for this stuff.My ring finger is at least 150 degrees ,the only thing holdin the hand open on that side is my fused pinky.Its got hold of the pinky,ring and middle finger.Three cords for sure.They have a lady in Oaklahoma who has a more ageressive case than mine.Shes had 11 injections.Dawn there are 26 sites in the country that do clinics,Go to the xiaflex page and look thru the studys and scroll down to see the clinic Locations.Dave

I looked at them. I'm not able to travel at all at this time, so I was looking to see if anything was close by.

06/18/2012 01:40
pia2some 
06/18/2012 01:40
pia2some 
Re: Swelling two months after Xiaflex?

Dave,

I ordered some of the black finger sleeves from Amazon. They work! My two fingers are really swollen when I wake up every morning. After a few hours, it's not as bad and hardly noticeable. But I've not been able to wear my rings so I knew they were swollen even if they didn't appear to be.

Now I will wear the finger sleeves for a while every day and the swelling stays way down. I am now able to wear my rings when I go out. Thanks for the advice.

~ dawn

06/18/2012 11:17
hammer 
06/18/2012 11:17
hammer 
Re: Swelling two months after Xiaflex?

Im not sure how they work but they work.I couldnt hardly go a day without them now the swelling is completly gone.I have some ready for my next injections probly in august.Dave

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