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Mortality and dupuytren
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11/09/2022 09:08
Saus 
11/09/2022 09:08
Saus 
Mortality and dupuytren

I read these studies sugesting shorter lifespan with dupuytren. I’m 49 and just got the stage 1. I’m terrified by the stats.

Any thoughts?

❤️

11/09/2022 09:24
Stefan_K. 
11/09/2022 09:24
Stefan_K. 

Re: Mortality and dupuytren

Quote:
Mortality and dupuytren
I read these studies sugesting shorter lifespan with dupuytren. I’m 49 and just got the stage 1. I’m terrified by the stats.

What studies did you read?

If there was a correlation, then in my view either as a correlation with the same underlying factors that also favor Dupuytrens (mountain climbing, alcoholism,...), as a result of accidents in which impairment from untreated contracture plays a role, or as a result of worrying too much :-).

Personally I'll take DD anytime over the vast majority of other deseases or ailments.

Stef

[60, Dupuytren diagnosis 2006, RH contracture and PNF/NA 2014, radiotherapy RH 2015, LH 2017 & 2018, night splint glove RH since 2015]

11/09/2022 09:38
Saus 
11/09/2022 09:38
Saus 
Re: Mortality and dupuytren

I’ve found a couple of studies that says something about this.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7043723/

https://pubmed.ncbi.nlm.nih.gov/10597922/

True: worrying isn’t a good strategi (:

11/09/2022 09:57
Saus 
11/09/2022 09:57
Saus 
Re: Mortality and dupuytren

What can I do about it? It says somewhere that I have 12 years before the mortality rate increases.

Just live healthy (:

11/09/2022 10:30
spanishbuddha 

Administrator

11/09/2022 10:30
spanishbuddha 

Administrator

Re: Mortality and dupuytren

They are just correlation studies, and usually have to make lots of assumptions about other factors of the lifestyle and health conditions of people in the study. But the first does identify some possible causative factors that you can take into account:

'We have shown that several of the contributing causes of death in this cohort are in part attributable to smoking status, these being cancer, chronic lower respiratory tract disease, and cardiovascular disease. Importantly, this study has identified a 12-year window of opportunity for clinical and lifestyle intervention to avoid premature mortality, particularly with regard to smoking cessation and treatment of diabetes and hyperlipidemia.' So nothing new there in age related western medicine.

The second paper and the association with cancer risk was discussed a bit in this thread https://www.dupuytren-online.info/Forum_...ens-0_1561.html

My own view, diagnosed more than 20 years ago and now into my 70's, is that longevity is less important than quality of life and 'healthy living' contributes towards quality anyway.

Edited 11/09/22 12:37

11/09/2022 10:40
Saus 
11/09/2022 10:40
Saus 
Re: Mortality and dupuytren

Agree about quality/quantity (:

Just think the stats are strange. At least if it’s only linked to genes and not lifestyle.

Thanx
M

11/09/2022 13:09
markharr 
11/09/2022 13:09
markharr 
Re: Mortality and dupuytren

And don't forget that doubling a small number still results in a small number.
For example : 1 in 1000 people die of lung cancer (0.1%), so even if you double your risk, as suggested in one of the papers, you've only really added another 0.1 % risk.

11/09/2022 14:04
Saus 
11/09/2022 14:04
Saus 
Re: Mortality and dupuytren

Thanx. That’s true. Just stressed out about this.

11/09/2022 14:18
markharr 
11/09/2022 14:18
markharr 
Re: Mortality and dupuytren

I understand, it's not easy, but this group is great for keeping perspective after too much time inside your own head.

11/11/2022 08:58
Louise1234 
11/11/2022 08:58
Louise1234 
Re: Mortality and dupuytren

Sorry to piggy back on this thread, but I have just been diagnosed also and am stressing out over the various studies I have read about increased mortality after 12 years. I don't understand how all the percentages of different risks work. If there is someone on this forum who could explain the statistics using actual numbers I would be so grateful. The more I think about it the more I can't work it out, and the more worried I become.

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