The Dupuytren Society - what we do

Dupuytren e.V. (= Dupuytren Society, "e.V." being the German abbreviation for "registered society" or "registered charity") is a non-profit and independent organization, certified by the German government. The Dupuytren Society is dedicated to inform patients on therapies of the Dupuytren disease and related diseases, like the Ledderhose disease. We provide a platform for research institutions and hospitals to inform about new research results. We also try to explain the specific benefits and drawbacks of various therapies to facilitate the right choice of therapy.

While we will only publish medical results where we believe that there is sufficient scientific proof, we also believe that the free exchange of the personal experiences of patients is a powerful means in finding the appropriate way to handle and cure this disease. We therefore also provide a forum to discuss problems and experience with therapies.

Last but not least Dupuytren e.V. supports research in therapies of Morbus (=disease) Dupuytren and Morbus Ledderhose.

 

What we don't do

Dupuytren e.V. cannot give medical advice to individual patients. Please consult with your doctor/physician to decide on the best therapy suitable for you. You are also invited and more than welcome to place questions or comments in our forum (that's what it is for), maybe other patients can provide good advice!

 

Acknowledgements

Dupuytren e.V. would like to thank all patients, medical doctors, and everyone else who has been supporting our work with comments, donations, a tremendous amount of energy and without payment. Many medical doctors are providing us with publications and other documents, many hints also are emerging from forums.

Currently we are also being supported by the following organizations

• Constantin Fahl Webservice, www.cfws.de (forum software)
• EDV Consulting Dietl, www.ecd.net (web site ranking, server)

• GSF - Forschungszentrum für Umwelt und Gesundheit GmbH (Center for Environmental and Health Research), now Helmholtzzentrum München, (calculation of radiation risk).

 

Specifically we would like to thank all those who support our daily work:

• Annemarie Kaindl              - literature research
• Judith Proctor, Corfe Mullen - web site ranking and honing the English
• Gary Mahagan, Dallas        – honing the English of our web site
• Selwyn Foreman, London   - honing the English of our web site
• Wolfgang Wach, Uebersee – forum contacts.

 

Management Board of Dupuytren Society

as of June 2009

1st Chairman: Dr. rer. nat. Wolfgang Wach, Munich, Germany - Wolfgang Wach is a patient

2nd Chairman: Prof. Dr. med. Heinrich Seegenschmiedt, Hamburg, Germany

Finance: Elisabeth Lewinski

Secretary: Wolfgang Wach (acting)

 

Scientific Advisory Board  (= link)

 

Press contact

Dr. Bernhard Epping

Postfach 21 05 10

72028 Tübingen

Germany

Tel: +49/7071/689482

bernhard.epping /at/ t-online . de (please modify this email addres accordingly).

 

Page last modified: 05/15/2010