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05/22/2009 08:39
Mary 
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05/22/2009 08:39
Mary
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Re: radio therapy
Just had a call from Dr Goode's secretary, he is back at work. I asked if he was taking new cases and she told me he was.
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06/11/2009 15:36
Mary
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06/11/2009 15:36
Mary
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Re: radio therapy
Saw Dr Goode today for my follow up check. He told me they were now looking at this treatment nationally and wanted to see me again in 12 months to keep an eye on things.
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06/14/2009 20:39
TrevB 
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06/14/2009 20:39
TrevB
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Re: radio therapy
Quote:
Saw Dr Goode today for my follow up check. He told me they were now looking at this treatment nationally and wanted to see me again in 12 months to keep an eye on things.
You were lucky Mary. I've made 4, 7 hour round trips to Poole and seen Dr Goode twice only for about 5 mins in total. The last time I just saw a junior in a back room who told me that my skin was dry and that I should use E45 cream  All rather disappointing really and I'm not sure the next appointment in October will be worth the time and effort! He originally said 12 months as well but then changed to 6, March or April 2010 would be much better.
My GP says that they can do it by phone so that sounds preferable for October. The upside is that radiotherapy seems to work and that's great about it possibly going national 
Cambidgeshire, UK.
Edited 06/14/09 23:45
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06/15/2009 20:18
philwaite 
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06/15/2009 20:18
philwaite
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Re: radio therapy
Post treatment reviews:
I do agree that the long round trips are a time consuming & expensive business for those of us that have been lucky enough to receive treatment. I can't however help feeling that without our 'feedback' & the physical examination of progress/results, the experts will never be certain that there is a potential clinical benefit from this non-invasive treatment?
Lets try and help by providing as much evidence as possible for each of the competing treatments. Only then will the optimal Dupuytrens solutions be commonly available.
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06/15/2009 20:40
TrevB
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06/15/2009 20:40
TrevB
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Re: radio therapy
Quote:
Post treatment reviews:
I do agree that the long round trips are a time consuming & expensive business for those of us that have been lucky enough to receive treatment. I can't however help feeling that without our 'feedback' & the physical examination of progress/results, the experts will never be certain that there is a potential clinical benefit from this non-invasive treatment?
Lets try and help by providing as much evidence as possible for each of the competing treatments. Only then will the optimal Dupuytrens solutions be commonly available.
I agree but I don't feel that seeing a junior in a back room was beneficial to the programme or me. There was no proper examination and my GP immediately said that the note he received must have been written by a locum. I'm my GPs test patient (he's still a surgery man  ) and the feedback received has to be better than that and at a higher level IMO! I appreciate the very serious nature of condition of the patients at the DC Centre means that we are lucky to get treatment but who you see and feedback received does seem a bit hit and miss unfortunately. 
Cambidgeshire, UK.
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06/15/2009 20:52
philwaite
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06/15/2009 20:52
philwaite
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Re: radio therapy
Totally agree with you!
I will certainly now ensure that I make some enquiries, in advance, before my next scheduled trip to Poole (November). If it really isn't going to 'make a difference' then I won't be going.
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