| Dr. Rose in Austin |
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08/16/2010 12:21
patandpaula 
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08/16/2010 12:21
patandpaula
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Dr. Rose in Austin
I am driving to Austin tomorrow first visit with Dr. Rose for hopefully NA. I will post on my experience when I get back. (for you guys in Texas) Paula
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08/17/2010 20:31
patandpaula
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08/17/2010 20:31
patandpaula
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Re: Dr. Rose in Austin
Drove to Austin today to see Dr. Rose. He is very nice and seems very knowledgeable. He did say I have cords in my palms which I was afraid of. These are cords that have appeared since I had the RT treatment in Oklahoma, they go towards my wrist rather than going up towards my finger. My pinkie is only bent 20 degrees and he, like others I have talked to, said that he would not do NA until it was 45 degrees. I believe it was Luba that had her pinkie done when it was only slightly contracted with good results. My cord is in the pinkie itself, not coming from a nodule in the palm, so I have no idea how bad it is going to get as it is the middle joint that is bending. Anyway, as I said he was very nice and I understood him to say he is not doing open surgery any longer on people that have not had prior surgeries, only NA.
Paula
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08/17/2010 20:32
patandpaula
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08/17/2010 20:32
patandpaula
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Re: Dr. Rose in Austin
Forgot to say he said I could email him pics any time and gave me his email address.
Paula
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08/17/2010 20:44
patandpaula
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08/17/2010 20:44
patandpaula
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Re: Dr. Rose in Austin
Ok, I looked back on posts and can't find where anyone had NA with only 15-25 degree contracture. I guess I just imagined it. But if there is someone out there who had NA with this degree of contracture, would you let me know who the doc was?
Thanks
Paula
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08/18/2010 02:21
flojo 
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08/18/2010 02:21
flojo
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Re: Dr. Rose in Austin
My contracture was only about 15-20 degrees but the contracture and cording was across my palm from the thumb to the pinkie. There was a lot of tightness in my palm. My grip was much weaker. It was also up into the thumb some. Dr. Denkler did the NA. My grip improved with NA somewhat and the tightness was much less. I then had RT and my grip was much stronger, less tightness, nodules reduced and symptoms of active Dups went away.
It's hard to know just what to do or when. Looking back, for me it was the thing to do. Each hand is different.
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08/18/2010 04:44
wach  Administrator
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08/18/2010 04:44
wach Administrator
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Re: Dr. Rose in Austin
Paula, as Flora already wrote NA is sometimes feasible with just 15 degrees. The cord can sometimes be broken by overstreching the finger after the needling. But not every bent finger is suitable for NA, specifically when the PIP joint is affected. I myself have a bent PIP caused by a larger nodule close to the PIP and doctors are telling me that NA is not feasible.
Wolfgang
patandpaula:
Ok, I looked back on posts and can't find where anyone had NA with only 15-25 degree contracture. I guess I just imagined it. But if there is someone out there who had NA with this degree of contracture, would you let me know who the doc was?
Thanks
Paula
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08/18/2010 13:24
patandpaula
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08/18/2010 13:24
patandpaula
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Re: Dr. Rose in Austin
Thanks Flora and Wolfgang, I appreciate your opinions very much. I guess I will just not worry about it right now (or try not to) and when it gets worse, send Dr. Rose pics. One thing I forgot to say earlier, Dr. Rose did not appear enthusiastic about Xiaflex, I didn't question him as to why, should have, but was too busy trying to figure out if he could do NA on my pinkie. Anyway, thanks again to both of you.
Paula
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08/18/2010 13:35
LubaM.
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08/18/2010 13:35
LubaM.
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Re: Dr. Rose in Austin
patandpaula:
Thanks Flora and Wolfgang, I appreciate your opinions very much. I guess I will just not worry about it right now (or try not to) and when it gets worse, send Dr. Rose pics. One thing I forgot to say earlier, Dr. Rose did not appear enthusiastic about Xiaflex, I didn't question him as to why, should have, but was too busy trying to figure out if he could do NA on my pinkie. Anyway, thanks again to both of you.
Paula
Hi Paula,
I beg to disagree with whoever told you to wait until your contracture is 45 degrees....From my own experience I can tell you that I believe the worst decision I made is waiting, especially when you are dealing with PIP joint of the pinkie finger.
The PIP joint of the pinkie finger (and I know this from my own experience as well as from many posts on this forum) is the hardest to correct, it seems to have a memory of its own, and it can only be corrected by 50% of the degree of contracture.... so the sooner it is corrected the better.
I would suggest your sending pictures to Dr. Eaton and get his opinion.
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08/18/2010 17:26
flojo
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08/18/2010 17:26
flojo
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Re: Dr. Rose in Austin
Hi Paula,
I agree with Luba - I wouldn't wait. I suggest that you get a second opinion, or even a 3rd opinion. You can email pictures to Dr. Eaton and he can probably pretty much tell you what he can do. My first evaluation for NA was by Dr. Denkler via email pics.
If they can't tell by email pics, make every effort to go for an office visit to get that 2nd opinion.
Good luck.
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08/18/2010 20:00
patandpaula
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08/18/2010 20:00
patandpaula
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Re: Dr. Rose in Austin
Thanks for your replies, ladies, I appreciate it. I don't want to wait, but I did email pics to Dr. Eaton and he suggested waiting also. As did I believe it was Dr. Denkler. So seems there is noone who wants to do it right now. I really would like to get it done now so hopefully my finger won't somehow by damaged further.
Oh, well, what do you do?
Thanks again,
Paula
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