Are the NHS people aware of their own documents? The NICE paper on http://www.nice.org.uk/nicemedia/pdf/ip/...infoenglish.pdf is of 2004. Not THAT outdated. NA (also called PNF) is an established method to treat Dupuytren's contracture. Don't give up. Tell them to have a look at the proceedings of last year's ASSH meeting or on our web site www.dupuytren-online.info and the links there to UK sites.

Can Dupuytren's get worse through manual work? Maybe (see http://www.dupuytren-online.info/dupuytr...ure_trauma.html) but most office work is most likely not associated with it. Eventually the thing is just getting worse by itself.

Dupuytren's typically is not painful, at least not very painful. You might feel it when it grows. But there are exeptions. I read about a patients where the nodules actually got infected and must have been very painful.

Wolfgang

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Hi,

I have just started researching and all a bit mind boggling at the mo! I was diagnosed in my early 20's (female) now 37 and at a stage where the NHS have suggested operating. They have dismissed NA as being outdated but I will discuss injections/radiotherapy on my next visit. It's frustrating that the NHS will not accept it could be worsened by work, I also have RSI and Psoriatic arthritis so I think fairly obcious these things could be linked? I work in an office and have said if they think this would make my condition worse I would give up, it has certainly got a lot worse in the last 2-3 years. I also have pain although I am told Dupuytrens is not painful just maybe when it is growing? Maybe this is why....
I feel written off at a fairly 'young' age and do worry about the future and how much worse it will get.

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Hi,

I have just started researching and all a bit mind boggling at the mo! I was diagnosed in my early 20's (female) now 37 and at a stage where the NHS have suggested operating. They have dismissed NA as being outdated but I will discuss injections/radiotherapy on my next visit.

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Keep researching, it's your choice and the professional people who can help you to possibly avoid surgery at this point are listed on the site. IMO it's frustrating that we have to try to make difficult decisions on our own but that's the way it seems to be.

Good luck!

Surgery was the best decision I have made concerning Dupuytren's treatment. Now six years later, there is not even a hint of Dupuytren's in my fingers. My little finger was at 90 degrees contracture at the time of surgery.

Pixie,
It was hard at first to explain why my little finger had a knot on it and it was bent once I found out what it was I was in shock never heard of it and NO family history or to this day have ever seen another women even close to my age with it.. I am a very active and healthy person with no other health issues at all. I am a track coach and avid runner and enjoy any kind of exercise. Now that I have gotten use to the idea ( about 5 years now) I do not think of it everyday like I use to. My grip is not a strong as it should be but I have really worked hard with weights trying to gain back and maintain the strength I have been able to achive. My foot also use to bother me, my big toe would not bend much and the arch of my foot use to be really tight and sore but have since improved with stretching and a lot of foot exercise with weights and a step. I have know gained all mobility of my toe back and can bend my foot. I am not saying that it does not hurt sometimes but have been able to work thru it . In a weird way it was a wake up call for me. I work harder than I ever did before to stay healthy and eat right and besides my fingers being a little bent and not 100% I am in the best shape of my life and consider everyday a blessing and I know I can work thru anything that is put in front of me!

that's right!! I was wondering do you have any digestive issues?? I have noticed when my DC flares up Mt stomach kinda gets out of wack....