| 32 Year Old female with Dupuytren |
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06/08/2011 18:38
Ms.LJ 
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06/08/2011 18:38
Ms.LJ
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32 Year Old female with Dupuytren
I noticed the nodules when I was about 27 years old. I had it looked at by a doctor and she said that it was probably caused by trauma to my hand.
During a family gathering I was telling my father and uncle (his brother) about it. Well, they both have it, as well. I knew that I had to look into it and find out what it is. Well, everything that I have found points to Dupuytren. It also suggests that I have it due to genetics, smoking, alcohol consumption and/or diabetic-I know that there are more distributing factors but these apply to me, my father and my uncle.
Since I am a female and young, I am nervous. It is supposed to, typically, occur in men over 50. I don't even want to think about going to see a doctor. I am an alcoholic (that runs in my family) that recently quit drinking. I am a little overweight and there could be potential for diabetes. I guess I would rather put it out there on a forum and see if any other younger females have this and their experiences.
Thanks,
Ms. LJ
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06/10/2011 03:33
flojo 
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06/10/2011 03:33
flojo
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Re: 32 Year Old female with Dupuytren
There is lots of information on this site under the tabs at the top. Since every single hand is different with this weird disease, you really have to be your own advocate and diagnostician to a certain degree. You will ultimately need to get a doctor who knows what they are talking about to diagnose. Look around the site. The more informed you are, the better off you will be when you find a doctor. Unless you happen to find a doctor who knows this disease, you are likely to know more than he/she does.
I suggest that you research thoroughly on this site. Read the Forum entries and you will learn a lot. When you have a question about what someone has posted, be sure to ask. In the long run, we all have to figure out as best we can for ourselves what to do. You will find caring and helpful people here. Don't hesitate to ask specific questions to help you figure out what is going on with your disease.
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06/10/2011 09:08
BetNY 
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06/10/2011 09:08
BetNY
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Re: 32 Year Old female with Dupuytren
Good advice Flojo.
MSLJ. In my case, I believe that its in the genes. My Dad was about 50's when he was told that he had Dupuytrens, today he is 88. He is not a diabetic or an alcoholic. He told me back then, I should not be concerned because its only in men???? Yeah, Yeah..... I now have this too, I am not a diabetic, or an alcoholic and I am a female.... So I think, that theory could be thrown out the window. I have a sister, and she does not have it. I know that I had been taking glucosomine and choindroitin for at least 15 years and this I found out to be NOT a good idea. One thing that I did about 2 months ago is become a vegan and my tendonitis slowly went out of my hands. This past Monday, I started my first week of RT. I am anxiously awaiting for my nodules to go ba bye... 
Follow Flojo's advice. Read and educate yourself and if you are at the beginning stages you have a choice to slow it down with RT.
There are very good and very knowledgeable people in this forum.
Good luck
Betty
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06/10/2011 14:03
flojo
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06/10/2011 14:03
flojo
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Re: 32 Year Old female with Dupuytren
Good points, Betty. What makes me high risk for Dupuytren's is genes - Northern European heritage. Even so, I was the Quote:
lucky one in my family. I have 2 brothers, neither of which has it. By the way, both brothers drank heavily and I don't. Neither my dad nor my mother had it. No uncles, aunts or cousins that I know of. I have one niece who has it in one pinky finger, DIP joint and before age 50 but it seems to be staying the same. I was 69 when mine started progressing rapidly.
It's just such a weird disease. I'm not trying to figure it out, but I'm doing my best to get the most effective treatments for my disease to keep it under control. There is research going on that is supported by International Dupuytren Society that provides this great website and Forum for us. As random and weird as the disease is, I think it will take a long time to figure it out. Years from now, maybe gene therapy will be available for Dupuytrens, but it is not a priority over other diseases.
If I have to have some "thing", I'll take Dupuytren's over a lot of other terminal diseases or conditions. I try to look on the bright side. 
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06/10/2011 15:06
Ms.LJ
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06/10/2011 15:06
Ms.LJ
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Re: 32 Year Old female with Dupuytren
flojo:
There is lots of information on this site under the tabs at the top. Since every single hand is different with this weird disease, you really have to be your own advocate and diagnostician to a certain degree. You will ultimately need to get a doctor who knows what they are talking about to diagnose. Look around the site. The more informed you are, the better off you will be when you find a doctor. Unless you happen to find a doctor who knows this disease, you are likely to know more than he/she does.
I suggest that you research thoroughly on this site. Read the Forum entries and you will learn a lot. When you have a question about what someone has posted, be sure to ask. In the long run, we all have to figure out as best we can for ourselves what to do. You will find caring and helpful people here. Don't hesitate to ask specific questions to help you figure out what is going on with your disease.
Thank you so much for your imput and suggestions. I will continue to read this website. I appreciate the response!!
Ms. LJ
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06/10/2011 15:12
Ms.LJ
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06/10/2011 15:12
Ms.LJ
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Re: 32 Year Old female with Dupuytren
flojo:
Good points, Betty. What makes me high risk for Dupuytren's is genes - Northern European heritage. Even so, I was the Quote:
lucky one in my family. I have 2 brothers, neither of which has it. By the way, both brothers drank heavily and I don't. Neither my dad nor my mother had it. No uncles, aunts or cousins that I know of. I have one niece who has it in one pinky finger, DIP joint and before age 50 but it seems to be staying the same. I was 69 when mine started progressing rapidly.
It's just such a weird disease. I'm not trying to figure it out, but I'm doing my best to get the most effective treatments for my disease to keep it under control. There is research going on that is supported by International Dupuytren Society that provides this great website and Forum for us. As random and weird as the disease is, I think it will take a long time to figure it out. Years from now, maybe gene therapy will be available for Dupuytrens, but it is not a priority over other diseases.
If I have to have some "thing", I'll take Dupuytren's over a lot of other terminal diseases or conditions. I try to look on the bright side.
Thank you for your information. It's strange that there isn't one specific cause (although, that is the case with a lot of medical issues). I am with you, where as, I would take this "thing" over a lot of other things. I hope your treatments go well and the progression stops. I have had this for about 5 years. There has not been too much change with it. Sometimes it is sore but that is a rare occurance.
Thank you for your response. Please, keep us updated on any progress. -Ms. LJ
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12/06/2014 02:15
saverett
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12/06/2014 02:15
saverett
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Re: 32 Year Old female with Dupuytren
Ms.LJ:
I noticed the nodules when I was about 27 years old. I had it looked at by a doctor and she said that it was probably caused by trauma to my hand.
During a family gathering I was telling my father and uncle (his brother) about it. Well, they both have it, as well. I knew that I had to look into it and find out what it is. Well, everything that I have found points to Dupuytren. It also suggests that I have it due to genetics, smoking, alcohol consumption and/or diabetic-I know that there are more distributing factors but these apply to me, my father and my uncle.
Since I am a female and young, I am nervous. It is supposed to, typically, occur in men over 50. I don't even want to think about going to see a doctor. I am an alcoholic (that runs in my family) that recently quit drinking. I am a little overweight and there could be potential for diabetes. I guess I would rather put it out there on a forum and see if any other younger females have this and their experiences.
Thanks,
Ms. LJ
Hi Ms. LJ,
I realize your post is from 2011 but I have a similar(ish) case and was hoping for a little insite. I'm 26yrs. old w/ DD, diagnosed about 2 months ago. However, I don't drink all that often, l don't smoke, no family history, etc. How has it effected your daily life? Do your fingers and/or hands hurt? Have you had surgery or other treatment Sorry for all the questions but like you I'm a little nervous
Thank you,
Sarah
Edited 12/06/14 04:23
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12/06/2014 02:26
saverett
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12/06/2014 02:26
saverett
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Re: 32 Year Old female with Dupuytren
BetNY:
Good advice Flojo.
MSLJ. In my case, I believe that its in the genes. My Dad was about 50's when he was told that he had Dupuytrens, today he is 88. He is not a diabetic or an alcoholic. He told me back then, I should not be concerned because its only in men???? Yeah, Yeah..... I now have this too, I am not a diabetic, or an alcoholic and I am a female.... So I think, that theory could be thrown out the window. I have a sister, and she does not have it. I know that I had been taking glucosomine and choindroitin for at least 15 years and this I found out to be NOT a good idea. One thing that I did about 2 months ago is become a vegan and my tendonitis slowly went out of my hands. This past Monday, I started my first week of RT. I am anxiously awaiting for my nodules to go ba bye...
Follow Flojo's advice. Read and educate yourself and if you are at the beginning stages you have a choice to slow it down with RT.
There are very good and very knowledgeable people in this forum.
Good luck
Betty
Has changing your diet to vegan changed your DD symptoms?
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