Jaci, finding an email address for Dr Holten in the Internet seems to be difficult. Would it be possible for you to call them and ask for an email address for Dr. Holten? That would be of great help because we need to contact him and get his agreement before adding him to our list. You can send his address to me through the Private Messaging System of this forum or via the contact form of this website http://www.dupuytren-online.info/contactform.html.

Wolfgang

Jaci:

---

Wolfgang, I was told Dr Holten at Skin Face Body is doing NA. I don't know how reliable that is, or what his background in NA is either. Just sharing some info. You could email him?

Edited 06/17/13 15:00

Some interesting info I received today regarding Xiaflex for anyone interested. (A copy and paste of an email I received. I have ** the docs name for privacy reasons but am happy to disclose by PM if anyone wants to contact them)


Thank you for your enquiry. Dr ** advised that he does not use Xiaflex as there is a high complication rate. Both Xiaflex and other injections do not work for Dupuytren’s disease in the fingers but only in the palm.
Our 5 year follow up is very good. The Cost is $1,200.00 injection per hand. Substance is under patent and non disclosure at the moment.

Food for thought

Well, I have just returned home from my first NA treatment this morning. Been splinted up and am about to sit down and put my feet up!
Have to say I was pleasantly surprised with the procedure. The doctor used a local to numb the hand and that would be the most painful part. In saying that, though, my fingers and hand are still a little numb, so might be a different story once the local wears off!
My ring finger contracture has gone from 30 degrees to just about 0 :)
Will be interesting to see what it is like when the swelling reduces.
As part of the process a corticosteroid was injected into the nodules. I'm also hoping this works wonders.
Thought it was worth documenting my initial, immediate reaction to the treatment. In a nutshell, it really wasn't a stressful or a painful experience - but I'm also treating my DD in the early stages with NA in an attempt to be proactive and to stay one step ahead (fingers crossed).
Would thoroughly recommend Dr Tomlinson in Melbourne to anyone looking to go down this avenue.

NA follow up.

Well it's been about 9 weeks since I had NA. Initially, I'd been pretty chuffed with the outcome. Until this week when I noticed a cord forming in the middle of my right palm (NA was on right hand).

I think i may have woken a sleeping giant....

Vonmae:

---

Jaci,
Sorry to hear this. What a terrible disease this is. I hope the RT I'm having on my right hand works. Too early to see any difference yet. I have quite a lot of pain in the hand and up my arm. Have also noticed a nodule forming in the web between thumb and index finger on left hand and also a hard corn which may be ledderhose on left foot. One of the side effects from the RT has been that because it interferes with white cells it has allowed the shingles virus to once again escape into my face and chest - hadn't thought of this. I have been plagued with ongoing shingles for four years but free for last 9 months until now. Pretty compromised immune system because of my leukaemia. Maybe you will be able to have RT therapy on your hand after your babe is born. Very difficult for you.
Yvonne.