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08/12/2010 08:42
guestnot registered
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08/12/2010 08:42
guestnot registered
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Anyone have info on these doctors? Also NA stats--what is correct?
I just read the Dupuytren Foundation description of the May conference. Does anyone know how to contact the following about their presentations, which I found interesting:
1. Paul Smith, MD--passive manipulation of PIP joint
2. Roger Khouri, MD--lipografting along with NA
Usually in medical conference proceedings there is mention of the institution or country or address of presenter--but there is no info here.
Also, I found disconcerting the data of Van Rijssen--85percent recurrence after mean of 2.3 years post NA. On Dr. Eaton's and Dr. Kline's website and elsewhere I've always read 50 percent recurrence after 3 years.
Any addresses or contact info of above names as well as comments on these stats would be apprecated.
Also I hadn't known that Wolfgang Wach is Dr. Wolfgang Wach!!! For all he has done he deserves may degrees and titles in addition to what he already has.
Thank you.
Jerry S.
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08/12/2010 14:15
brian123not registered
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08/12/2010 14:15
brian123not registered
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Re: Anyone have info on these doctors? Also NA stats--what is correct?
GREAT QUESTIONS....
IN MY OPINION AND EXPERIENCE.....AFTER N.A. IF A SPLINT IS WORN NIGHTLY [ AND IF IT IS THE CORRECT SPLINT]
CONTRACTURE MAY NOT COME BACK OR AT LEAST ..NOT AS SOON.
IN FACT WEARING THE SPLINT CAN ACTUALLY IMPROVE UPON THE N.A. RESULTS.
DUPS AS YOU KNOW HAS A MIND OF IT'S OWN !
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08/12/2010 14:54
LubaM. 
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08/12/2010 14:54
LubaM.
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Re: Anyone have info on these doctors? Also NA stats--what is correct?
@guest:
Also, I found disconcerting the data of Van Rijssen--85percent recurrence after mean of 2.3 years post NA. On Dr. Eaton's and Dr. Kline's website and elsewhere I've always read 50 percent recurrence after 3 years.
Jerry S.
Unfortunately statistics only consider the "average" patient. Dupuytrens is such a "weird" disease and so different from patient to patient, and even from one hand to the other hand in the same person. I have followed this forum since 2006 and have come to the conclusion that no two patients or two hands are alike. What works for one doesn't necessarily work for the next person and, until a cure is found, we can only hope to make the right decision for our treatments, go ahead with it, and then hope for the best.
I had a small contracture at the PIP joint of my right small finger and I waited too long...I was told by four different surgeons to wait until my finger was contracted at least 45 degrees and then do surgery, that it was the only solution, they all were against RT or NA.
In 2006, the finger now had a 45 degrees contracture in the PIP joint ...I decided to do NA, great results... but the contracture returned after six months. Four years later the finger was at 90 degrees, had a boutonierre deformity in the DIP joint and both joints were completely locked. I did NA again in March of 2010. At first the finger was almost straight, but within five months the finger is starting to contract again....I did the NA's with two different doctors, I think they are both the best! the last NA was with Dr. Eaton, who has done more than 8000 NA procedures , so I couldn't have asked for a more experienced Dr. ....
I can still move my finger at the PIP joint and make a fist. My DIP joint is again locked. The PIP joint is now at about 45-50 degrees which is a 50% improvement from the 90 degrees I had before my second NA...and which, by the way, is all that both doctors told me I could expect from a PIP contracture of the small finger.
By the way...I also did physical therapy with a hand therapist for three months, three times a week and wear a custom made night brace, but Dupuytrens has a mind of its own !!!! My only suggestions is....radiation therapy....I had RT on my other hand and left foot, its been nine months and so far...it has stopped the progression of the disease. If you only have nodules, and active disease without cord or contracture, that is the way to go.
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08/12/2010 16:01
Larry
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08/12/2010 16:01
Larry
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Dr. med. Wolfgang Wach ??
@guest:
I just read the Dupuytren Foundation description of the May conference. Does anyone know how to contact the following about their presentations, which I found interesting:
1. Paul Smith, MD--passive manipulation of PIP joint
2. Roger Khouri, MD--lipografting along with NA
Usually in medical conference proceedings there is mention of the institution or country or address of presenter--but there is no info here.
Also, I found disconcerting the data of Van Rijssen--85percent recurrence after mean of 2.3 years post NA. On Dr. Eaton's and Dr. Kline's website and elsewhere I've always read 50 percent recurrence after 3 years.
Any addresses or contact info of above names as well as comments on these stats would be apprecated.
Also I hadn't known that Wolfgang Wach is Dr. Wolfgang Wach!!! For all he has done he deserves may degrees and titles in addition to what he already has.
Thank you.
Jerry S.
I think Wolfgang Wach is a Dr. med. because "med" stands for
"Most Experienced Dupuytren's Doctor !
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08/12/2010 18:36
flojo
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08/12/2010 18:36
flojo
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Re: Anyone have info on these doctors? Also NA stats--what is correct?
Larry,
I like the degree you have awarded Wolfgang and fully agree. I think he could certainly sign his name, Wolfgang, M.E.D. We could certainly refer to him ourselves that way.
Wolfgang has meant and does mean so very much to all of us. Just look at what we have access to because of what he has set up for us on this website. Awesome!
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08/12/2010 19:42
cindy850
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08/12/2010 19:42
cindy850
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Re: Anyone have info on these doctors? Also NA stats--what is correct?
I totally agree. Wolfgang has been there for us through all of this. We owe him a big thank you!
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08/13/2010 05:41
wach  Administrator
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08/13/2010 05:41
wach Administrator
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Dupuytren Society
Thank you so much for your kind acknowledgements! I really appreciate them! But it's not just me, it's you who are contributing to the forum and help others with your experience and knowledge; it's patients like Philip, who e.g. recently made NICE re-consider their recommendations for radiotherapy, and Dupuytren Society benefits from a great advisory team which is at the forefront of research (http://www.dupuytren-online.info/dupuytr...sory_board.html). Consider me I just an engine, you are the driver, and my fuel is your acknowledgement and my own learning experience. I sat at the Miami conference listening to the presentations and thought, hey they are doing all that for me! That was great!
Wolfgang
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08/13/2010 08:41
guestnot registered
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08/13/2010 08:41
guestnot registered
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Yes to Dr. Wach; why Dr. Eaton has not published? and any better results with PIP NA?
Thanks Dr. Wach for the info!
And yes I think everyone who is familiar with this Forum appreciates Dr. Wach deeply for his advice, sage comments and for founding/maintaining this premier source of information.
I just wonder now why Dr. Eaton has not published or presented his results of 8000 NA-s? I didn't know he had done that many and he started in 2003 so that's enough time--most studies have 5 year follow-ups to be credible.
Luda's story is somewhat discouraging--only a few months before recurrence with NA. I can't help wondering if it is at all valuable for small finger PIP?
Has anyone had better results with small finger PIP?
Jerry S.
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