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Anyone have info on these doctors? Also NA stats--what is correct?
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08/13/2010 09:24
brian123

not registered

08/13/2010 09:24
brian123

not registered

Re: Anyone have info on these doctors? Also NA stats--what is correct?

NO SURE WHAT YOUR QUESTION IS BUT..

I HAD NA 19 MONTHS AGO WITH DR EATON ...LITTLE FINGER...PIP...95 DEGREE.
.TODAY.....STILL PERFECT

08/14/2010 01:23
guest

not registered

08/14/2010 01:23
guest

not registered

Re: Thanks Brian and still wanting to know about Dr. Eaton's results

Thanks Brian. I've read a few of your postings and was wondering if your small finger was PIP or MCP--your results are encouraging considering what others have written about quicker recurrence--for example what Luba wrote in response to my original query. One of my questions in response was if there were people who had longer term good results with NA, which would make it worthwhile. 6-12 months to recurrence is not very encouraging--19 months and still going strong sounds much better.

If there is anyone else with encouraging PIP results with NA, I'd like to know.

My other question, which no one has addressed is why Dr. Eaton has not published his results from 8000 NA-s--or why he didn't present the findings at the Miami Conference--evidently he keeps meticulous records, being a published medical scientist by experience. I'm concerned about this because of the latest report of Van Rijssen of 85 percent after a mean of 2.3 years from NA--if this is true, it makes NA not as "glorious" as I had thought--Dr. Eaton previously has been quoted as stating 50 percent after 3 years.

Jerry S.

08/14/2010 02:54
flojo 
08/14/2010 02:54
flojo 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

I did not expect NA to stop my Dupuytren's. My understanding is that it only releases cords. While I had mild contracture, I felt it needed to be released. Following NA with RT was my plan to stop the progression. Fortunately, it has worked so far. My understanding is that the hand needs to be as flat as possible for RT as the equipment is set for depth and NA facilitates the hand lying flatter.

Anyone who has NA gets a beneficial treatment to release cords. If their DD happens to be dormant, the release might well last, but if it is active, more cords and nodules will likely be growing. That's just the nature of this disease. I did not have involvement with my PIP or DIP joints. Mine was mostly in the palm and my thumb was the most involved digit.

Keep researching and trying to see what bits of information fits your hand and how DD is affecting you. Each person and each hand is different. My left hand has very little evidence of DD. I wouldn't think anything of it if I hadn't had it more seriously in my right hand. That's the only reason that I even notice what's going on in my left hand, but I'm watching it like a hawk. It has not affected function yet. No tightness. No contracture. It has some lumps and cords telling me that it is lurking in my palm, so I'm watching. If it gets active, RT on that hand will be much sooner than I had it on my right hand. I won't wait until I need NA first.

08/14/2010 06:33
LubaM. 
08/14/2010 06:33
LubaM. 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

@guest:
Thanks Brian. I've read a few of your postings and was wondering if your small finger was PIP or MCP--your results are encouraging considering what others have written about quicker recurrence--for example what Luba wrote in response to my original query. One of my questions in response was if there were people who had longer term good results with NA, which would make it worthwhile. 6-12 months to recurrence is not very encouraging--19 months and still going strong sounds much better.

If there is anyone else with encouraging PIP results with NA, I'd like to know.

My other question, which no one has addressed is why Dr. Eaton has not published his results from 8000 NA-s--or why he didn't present the findings at the Miami Conference--evidently he keeps meticulous records, being a published medical scientist by experience. I'm concerned about this because of the latest report of Van Rijssen of 85 percent after a mean of 2.3 years from NA--if this is true, it makes NA not as "glorious" as I had thought--Dr. Eaton previously has been quoted as stating 50 percent after 3 years.

Jerry S.
Jerry,

I am sure that there are many out there with better results than mine...Strange how two people with the same PIP contracture on small finger at about 90 degrees can get such different results....and we both had NA with Dr. Eaton...Brian's results with 19 months and still going strong definitely is much better than mine, and even though my contracture is returning after five months, I still consider myself lucky, especially when I read posts by others on this forum who have it worst than me. My hand is totally functional, I can't complain.

My PIP joint is now at about 45-50 degrees and I can almost make a perfect fist (except for the DIP joint that is locked)...and the palm of my hand is totally flat with no visible cord after the NA.

Also because of my experience with my right hand....I watch my left hand like a hawk (just like Flojo does), and plan to be more careful and treat it early with radiation if necessary.

08/14/2010 11:59
msavilla 
08/14/2010 11:59
msavilla 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

Not sure how to post. Does anyone know the best doctor in Virginia for the enzyme procedure?

08/15/2010 00:08
moondanc 
08/15/2010 00:08
moondanc 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

@guest:
My other question, which no one has addressed is why Dr. Eaton has not published his results from 8000 NA-s--or why he didn't present the findings at the Miami Conference--evidently he keeps meticulous records, being a published medical scientist by experience. I'm concerned about this because of the latest report of Van Rijssen of 85 percent after a mean of 2.3 years from NA--if this is true, it makes NA not as "glorious" as I had thought--Dr. Eaton previously has been quoted as stating 50 percent after 3 years.

Jerry S.

Perhaps you could write directly to Dr. Eaton and ask him. I'd imagine the reason he hasn't published is the horrendous time and effort it would take to do followups with his patients. He'd have to have a questionnaire, perhaps pictures, someone to mail or email the info, someone to tabulate the results and on and on and on.

I've had mixed results-- one NA procedure that lasted less than 6 months, two with Dr. eaton- one lasted a couple years, another is almost 12 months old and much better but I had RT after that and Xiaflex hardly lasted a year.

08/15/2010 01:29
flojo 
08/15/2010 01:29
flojo 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

Quote:
Perhaps you could write directly to Dr. Eaton and ask him. I'd imagine the reason he hasn't published is the horrendous time and effort it would take to do followups with his patients. He'd have to have a questionnaire, perhaps pictures, someone to mail or email the info, someone to tabulate the results and on and on and on.

I've had mixed results-- one NA procedure that lasted less than 6 months, two with Dr. eaton- one lasted a couple years, another is almost 12 months old and much better but I had RT after that and Xiaflex hardly lasted a year.


Moondanc,

With all those different procedures and results, you're almost a research project all by yourself. Good information.

08/15/2010 02:51
moondanc 
08/15/2010 02:51
moondanc 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

flojo:
Quote:
Perhaps you could write directly to Dr. Eaton and ask him. I'd imagine the reason he hasn't published is the horrendous time and effort it would take to do followups with his patients. He'd have to have a questionnaire, perhaps pictures, someone to mail or email the info, someone to tabulate the results and on and on and on.

I've had mixed results-- one NA procedure that lasted less than 6 months, two with Dr. eaton- one lasted a couple years, another is almost 12 months old and much better but I had RT after that and Xiaflex hardly lasted a year.


Moondanc,

With all those different procedures and results, you're almost a research project all by yourself. Good information.

Hey Flojo,
My hands have been doing really well since my RT last fall but are starting to ache a little bit again and I'm starting to start worrying. Your comment gave me a great chuckle, thanks much! I also enjoyed your magnetic bracelet thread--I know you know it, humor is about the only thing we know for sure that helps with this disease! I also enjoyed Wach's bee pictures, almost as fun as a Xiaflex injection :-)

08/15/2010 10:20
guest

not registered

08/15/2010 10:20
guest

not registered

Re: Anyone have info on these doctors? Also NA stats--what is correct?

Thanks for the responses. One day I may contact Dr. Eaton myself. My understanding is he does all that follow-up you mentioned, Moondanc, from what I understand he is quite exacting with follow-up and keeping records--it is natural for him--as we all know and feel lucky about, he is a brilliant doctor. And that is why I'm wondering why he hasn't published.

I'm glad to hear that Moondanc is doing ok with her hand after radiotherapy--I was wondering--I've been reading her posts for years and getting much out of them. I hope it continues. Despite the reasons for doubting RT after NA--which are all logical and good--it seems that even unbelievably, it may be of benefit. It will be good to see data published on this as well.

Thanks again,
Jerry S.

08/15/2010 10:21
guest

not registered

08/15/2010 10:21
guest

not registered

responses; and moondanc's story

I wanted to title the previous post as this.

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correct   surgery   published   doctors   different   dupuytrenfoundation   RESULTS   miamibreastcenter   EXPERIENCE   stats--what   degrees   Dupuytren   recurrence   Xiaflex   Wolfgang   CONTRACTURE   discouraging--only   Conference--evidently   Rijssen--85percent   dupuytrensymposium