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Anyone have info on these doctors? Also NA stats--what is correct?
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08/15/2010 11:17
wach 

Administrator

08/15/2010 11:17
wach 

Administrator

Registered users - editing your post

Jerry, one of the benefits of writing posts as a registered user is the possibility to re-edit your post!

Wolfgang

@guest:
I wanted to title the previous post as this.


Edited 08/15/10 14:17

08/15/2010 20:47
moondanc 
08/15/2010 20:47
moondanc 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

wach:
Jerry, one of the benefits of writing posts as a registered user is the possibility to re-edit your post!

Wolfgang
@guest:
I wanted to title the previous post as this.

Jerry:

Another benefit is that other forum members can send you private messages perhaps with subjective opinions or information they may not want to post publicly!

Moondanc

08/16/2010 08:36
wach 

Administrator

08/16/2010 08:36
wach 

Administrator

Recurrence data from Degreef and Eaton

Jerry, without doubt Dr. Eaton is an excellent doctor but I guess the issue is actually time & money. Tracking 8,000 patients over a long period of time requires a lot of effort. Only research institutions or clinics with access to according staff and funding can afford that. But maybe Dr. Eaton could track several hundred of his initial patients and see how they are doing. But still a considerable effort and expense.

When comparing recurrence data of Degreef and of other authors you need to keep in mind that Degreef dealt with specifically aggressive cases. I guess that's the reason why both, the NA and the surgery recurrence, are worse than for a "normal" population.

Wolfgang

@guest:
Thanks for the responses. One day I may contact Dr. Eaton myself. My understanding is he does all that follow-up you mentioned, Moondanc, from what I understand he is quite exacting with follow-up and keeping records--it is natural for him--as we all know and feel lucky about, he is a brilliant doctor. And that is why I'm wondering why he hasn't published.

I'm glad to hear that Moondanc is doing ok with her hand after radiotherapy--I was wondering--I've been reading her posts for years and getting much out of them. I hope it continues. Despite the reasons for doubting RT after NA--which are all logical and good--it seems that even unbelievably, it may be of benefit. It will be good to see data published on this as well.

Thanks again,
Jerry S.

08/17/2010 19:57
Mike S

not registered

08/17/2010 19:57
Mike S

not registered

Re: Anyone have info on these doctors? Also NA stats--what is correct?

I had a 95 degree small finger PIP contracture reduced to around 15-25 degrees in November 2006 by Dr. Denkler in SF, CA. So far so good. I do see other signs of the disease but the NA is holding up thus far.

08/18/2010 13:58
LubaM. 
08/18/2010 13:58
LubaM. 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

@Mike S:
I had a 95 degree small finger PIP contracture reduced to around 15-25 degrees in November 2006 by Dr. Denkler in SF, CA. So far so good. I do see other signs of the disease but the NA is holding up thus far.
Mike,
You are very lucky and I 'm very happy for you. Comparing your and my experience it really shows how weird this disease is...and how different from one person to another.

I too had a small finger PIP done by Dr. Denkler (and mine was only about 45 degrees then) in July 2006. I had the NA repeated on this same finger PIP in March 2010 by Dr. Eaton (second time the finger was about 90 degrees). Both NA procedures lasted about six months before the contracture began to return. Perhaps because I also have DIP boutonierre contracture on same finger??? hard to tell.

08/18/2010 16:39
callie 
08/18/2010 16:39
callie 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

LubaM.

I am interested why Dr. Eaton did not perform a limited fasciectomy on your little finger? Did he suggest it? He does do the surgery.

My little finger was 90 degrees contracted. I had a limited fasciectomy 8 1/2 years ago and still have no sign of Dupuytren's.

08/18/2010 17:49
LubaM. 
08/18/2010 17:49
LubaM. 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

callie:
LubaM.

I am interested why Dr. Eaton did not perform a limited fasciectomy on your little finger? Did he suggest it? He does do the surgery.

My little finger was 90 degrees contracted. I had a limited fasciectomy 8 1/2 years ago and still have no sign of Dupuytren's.
Callie,
By limited fasciectomy to you mean "open surgery"? He did not suggest it, and I will not do surgery if I can help it.

I did NA on same finger in 2006 with Dr. Denkler and the same happened, the finger started to contract after six months. Mine is a complicated case because I also have a boutonniere deformity and DIP contracture on same finger. I took a chance thinking the second NA will last longer.

It did however improve the contracture from 90 degrees to about 45 degrees (a 50 % improvement which is all they promised me for a PIP joint of the pinkie) and my hand is more functional since I can almost make a fist and it was totally "locked" before...if it stays like that a few years, I'll be happy....in the meantime its buying me time....

I'm glad you are doing good after 8 1/2 years...keep it up.

08/19/2010 17:13
David26

not registered

08/19/2010 17:13
David26

not registered

Re: Anyone have info on these doctors? Also NA stats--what is correct?

Dr. Eaton will only do open surgery for local patients. Too much pre and post surgery follow up involved per my inquiry to his office. NA is different of course.

08/20/2010 00:05
LubaM. 
08/20/2010 00:05
LubaM. 
Re: Anyone have info on these doctors? Also NA stats--what is correct?

David26:
Dr. Eaton will only do open surgery for local patients. Too much pre and post surgery follow up involved per my inquiry to his office. NA is different of course.
That makes sense...maybe that is why he didn't suggest it...since I am from southern CA. I happened to be in Florida on vacation and combined that with the NA procedure with Dr. Eaton. Anyway....I will only do surgery when all else fails....

09/02/2010 00:49
guest

not registered

09/02/2010 00:49
guest

not registered

NA stats and Xiaflex causing nodule to disappear

Thank you Wolfgang for pointing out that the Degreef study is on aggressive disease--which probably makes the difference why NA recurrence previously seemed to be lower. I was also interested to read that one person with Xiaflex had his nodule disappear. Others who posted after Xiaflex said differently. I guess sooner or later someone is going to inject Xiaflex into a nodule and see what happens.

Jerry S.

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dupuytrensymposium   CONTRACTURE   surgery   doctors   different   degrees   correct   discouraging--only   miamibreastcenter   Wolfgang   dupuytrenfoundation   RESULTS   Rijssen--85percent   published   recurrence   Xiaflex   EXPERIENCE   Conference--evidently   Dupuytren   stats--what